31y/o with Muscular Dystrophy. Running a family fund with my sisters in memory and honour of our mum, Sandra who had FSHD (personal acc: @alannahwhitbread)
Welcome, this page is dedicated to raising vital funds and creating awareness for people living with muscle washing conditions. We set up a family fund in memory of our mum who sadly died at just 51 with FSHD (a type of Muscular Dystrophy)
Myself and my sister are going to watch the #londonmarathon this year but our Air B&B has been cancelled. Does anyone know of anywhere reasonably priced in a decent location to the course?
I’m off to The Neuromuscular Centre today for some physio. So grateful for their expertise and service even if it is >1 hour drive. It would be great to have more centres like this across the UK.
@kayteebeexx You need to care for yourself in order to provide the best care for somebody else. Try to be easy on yourself and know it’s in both of your best interests 🧡
We’re running a sweepstake for this years #GrandNational. We have just 4 horses left at £5 each. You will be selected a horse at random once we have filled all 40 spaces 🐴🧡✨
@LondonMarathon For anyone unlucky this time, why not explore a charity place with us. We’re a family fund for Muscular Dystrophy. Please DM us if interested/for more info & you can apply here https://t.co/3Dz7SKV2Nm
@Yorkshire_Huds @LondonMarathon The charities pay for these places themselves & are often over subscribed too so need to make it worth their while. We run a family fund for Muscular dystrophy UK with a min. Sponsorship of £1750 https://t.co/3Dz7SLc5Pm.
Good luck to everyone finding out if they have secured a ballot place in next aprils London Marathon! 🏃♀️ if you’re unlucky, you could still run by applying for a charity place and we’d love to have you!
Run for Succeeding for Sandra (a family fund for Muscular Dystrophy UK). Apply here: https://t.co/3Dz7SLc5Pm & enter our name. We’d love to support you all the way!
Congratulations to everyone who ran the London Marathon today, including the 140+ people who did it for Muscular dystrophy UK. Why not apply for a place in Aprils race today and join Succeeding for Sandra? https://t.co/G8evkEYIR9
We will be there for you from start to finish, helping you with ideas to fundraise, support you in your training, give our (non expert😅) guidance and of course cheer you on on the day!