Alternating Hemiplegia of Childhood UK

AHC is a rare medical condition that causes transient weakness of either or both, sides of the body & affects less than #1inaMillion | Reg UK Charity No 1192701

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

What is AHC?
#1inamillion #AHCawareness

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

Living with AHC: "What is it like to live with AHC? Over the next few days you'll get a tiny glimpse of what it's like through stories about how AHC families celebrate birthdays.

#1inamillion #ahcawareness

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

"🎧Make your own 1-minute version of the AHC Song!

Scan the QR code for instructions on how to participate in the AHC Song Challenge.

#1inamillion #ahcawareness

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

AHC SONG CHALLENGE 1. Download the materials here/from the link in bio:
https://t.co/JM6xI7KJIR
AUDIO KARAOKE
AUDIO ORIGINAL
CHORDS & LYRICS SHEET
MELODY NOTES
VIDEO KARAOKE & LYRICS
VIDEO ORIGINAL & LYRICS
2. Record your version
3. Upload your song!
#1inamillion #AHCawareness

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

"Just a few days to go until International AHC Day. Stay tuned and take part in AHC Awareness Week next week"!

#1inamillion #ahcawareness

[Abhishek Behl @iABehl]

@elonmusk That's a good move especially for very small organisations like @SupportAHCUK will make a massive difference.

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community https://t.co/kVa9BIVj4z #10yearsatp1a3 #1inamillion #ahcawareness

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases https://t.co/yxDPcQxksA #10yearsatp1a3 #1inamillion #ahcawareness

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 https://t.co/EdMpRCKL5N

[Abhishek Behl @iABehl]

Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases https://t.co/NztGUyh6wd

[Abhishek Behl @iABehl]

Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 https://t.co/1lZXbDIXzd

[Abhishek Behl @iABehl]

Just awesome and cannot wait for the symposium to start #10YearsATP1A3 #AhcAwareness #1inaMillion #raredisease cc: @SupportAHCUK @aesha_ahcspain @AHCFE_ @olliesmission @kewdoc @RCPEdin @SigurdurJohann4 @PsychDrJo @bridget_vranckx @lyndseyamorton @_adriankowal @AHCkids

[Abhishek Behl @iABehl]

What a great 1st day we have had on the 10th year since the gene discovery: Defining the future for AHC & ATP1A3 Diseases. The venue was great @RCPEdin @RCPEVenue with captivating talks from speakers . #10yearsATP1A3

[Abhishek Behl @iABehl]

Viewing the posters at the @10yearsatp1a3 - amazing research being done and nice to see new things happening #10yearsATP1A3

[Abhishek Behl @iABehl]

Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community https://t.co/ZQp16kqoJH #10yearsATP1A3 #ahcawareness #1inamillion

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

Join us in Edinburgh or online 19th-21th Oct22 for a 3day unique hybrid event incorporating: 10yrs anniversary conference to recognise the discovery of the ATP1A3 gene for AHC & ATP1A3 diseases, & the 10th Symposium on ATP1A3 in disease #10yearsATP1A3 #ahcawareness #1inamillion

[Inclusive Solutions @IncSols]

Access no areas: the day wheelchair activists stopped the traffic https://t.co/S55RDfScom

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

@Tbrotherstrust hello. We are a very small charity in the UK and were wanting to touch base with you/your team. Have been trying to get your email to make connection. Thank you

[Epilepsy Research Institute @EpilepsyInst]

To mark #InternationalWomensDay, we’re celebrating the extensive contribution of women to epilepsy research. And when it comes to that contribution, few have had an impact greater than that of our very own President, Professor J Helen Cross OBE. https://t.co/71ViULGCXP #IWD2022

[Alternating Hemiplegia of Childhood UK @SupportAHCUK]

Today 8th March 2022 #InternationalWomenDay we stand & salute all the women involved with an AHC Champions' life. It may be the champion's grandmother, their mother, their sister and all their aunts. Thank you ladies for being that support #AHCAwareness #1inaMillion #IWD2022