Susan Dougill

I am a married mother of one teenage son. I have a wonderful husband who cares for me. I have ME/CFS Fibromyalgia, POTS, peripheral neuropathy & other things

[Garden Brocante @GardenBrocante]

Warehouse 26 at Rotherfield Peppard which is between Reading and Henley on Thames.

[Susan Dougill @SusanD1408]

My husband got the job. Just has to go through all the checks and then he should be able to start.

[Susan Dougill @SusanD1408]

@PlanetEarth_HD Stay safe and look after yourself ❤️

[Liam's LC/ME Journey @liamsLCjourney]

Until now, there has not been a list of recommended UK Long COVID and ME doctors all in one place... so we decided to make one!

https://t.co/NnYarA6rEq 🇬🇧

We painstakingly collated hundreds of comments from Reddit, Twitter, and group chats with only the most-rated doctors, pricing, and pros and cons from real patients.

25 doctors and clinics are listed, from NHS to private specialists, pharmacies for LDN and ketotifen, and even a link-out to @ChronicLiving1 for therapy options!

This is a living document and will be continually updated. Suggestions and updates welcome!

[Susan Dougill @SusanD1408]

@HarrietSergeant If there is a risk of life then they have to do a full death investigation. If they didn't and it went to court it would be thrown out.

[Susan Dougill @SusanD1408]

@cfs_jo @nonregemesse Most councils say you have to have planning permission because of the impact of the noise on the neighbours. You can request retrospective planning permission

[Susan Dougill @SusanD1408]

@GardenBrocante Yes and the temperature keeps rising 🥵

[Carl Bovis @CarlBovisNature]

My daughter just recorded this amazing horizontal lightning from her bedroom here in Somerset! 😯
The thunderstorm is approaching!
#heatwave ⚡️🌩⛈️

[Susan Dougill @SusanD1408]

@SarahBarx035 @subversivepsych I have parma ham. I have to have protein so coq10 works better. So I have two slices a day for breakfast. Plus I can keep a stash in because they have a long shelf life. Gets my salt up for my pots for the morning

[Susan Dougill @SusanD1408]

@areyoflight Could a cool mat help? We have multiple for our dog and I have seen a lot of people with cats using them.

[Susan Dougill @SusanD1408]

@JamesMelville Next day they come back & finally fix it. Inform them the pipe in-between that and another pipe will go because they just put a smaller pipe inside. Said oh sorry I am only allowed to do fixes. Sections of pipe behind houses has gone 8 times already.

[Susan Dougill @SusanD1408]

@JamesMelville Next door had a large leak (mains water). Man came to inspect and said yes that needs fixing. 8 hrs later another man oh we'll have to request a mains switch off. Turns up at midnight can I leave the tools here. 2 days later they come to fix it. They don't finish it leave

[Susan Dougill @SusanD1408]

@useless_priest I have heard a lot of people with ME having their diagnosis changed after a lot of years to FND so it can be classed as a mental health condition again. This is where people have a problem.

[Susan Dougill @SusanD1408]

@SarahMiller1979 For my dog we have two. As the one warms up he swaps to the other one.

[Susan Dougill @SusanD1408]

@JamesMelville Be careful it's not covid or pneumonia. A lot of pneumonia going round at the moment.

[Susan Dougill @SusanD1408]

@KSchnickelfritz Beautiful. Hubby was complaining this morning. He has really bad hayfever (under control with meds). We went onto the patio and all you could smell was honeysuckle and jasmine. It was gorgeous.

[Susan Dougill @SusanD1408]

It's 2 degrees warmer upstairs but I can lie on my bed in my knickers in front of the fan so I don't care.

[Carole Bruce @CaroleBruce17]

The Heritage study funded by the government states the annual cost to the U.K. economy from #ME and #LongCovid exceeds £12 billion.
That’s £32.8 million a day to the U.K. economy.

Yesterday they pledged £4.75 million for research.

This makes no economic nor humanitarian sense.