TGCT Support

The mission of TGCT Support is to improve the treatment and quality of life of #TGCT patients through #research #advocacy #compassion & #education |👇🏻

[TGCT Support @TGCTSupportorg]

👀 MHRA approves vimseltinib for use in adult patients with tenosynovial giant cell tumour (TGCT) when it impacts movement or where surgery is not an option. 

The first approval in the UK! So exciting! Here’s hoping for a favorable NICE decision next 🤞🏻👏🏻
https://t.co/z4QZbcXrGJ

[TGCT Support @TGCTSupportorg]

A great webinar about treatment advancements in #TGCT presented by Dr @ShepardDale ! Please find the recording below!

https://t.co/BDYNJFE0KO

[TGCT Support @TGCTSupportorg]

⏰ Just 1️⃣ week to go!

Exciting advances in TGCT research, you won't want to miss this opportunity to hear the latest from Dr. Dale Shepard.

📅 Advancements in TGCT
🗓 August 5
🕕 6:00 PM ET

🔗 Register today: https://t.co/cCXwg5PYef

[TGCT Support @TGCTSupportorg]

Our #TGCT registry is contributing to scientific advances in the understanding of TGCT at #ISOLS ! Stay tuned for more

[Sydney Stern, PhD, MS @stern_sydney]

Honored to represent @TGCTSupportorg at the 23rd annual ISOLS meeting in 🇦🇹 in September! Check it out 👀

[TGCT Support @TGCTSupportorg]

You don’t have to climb to the top of the Empire State Building to learn more about #TGCT this TGCT & Sarcoma Awareness Month!

Learn more to today at https://t.co/JMTmeUjcu9

[TGCT Support @TGCTSupportorg]

We are honored to share we will be presenting at the 23rd General Meeting of the #ISOLS conference in Vienna 🇦🇹 , on Sept 26.
Check it out:

📍 Session 3.13: TGCTs
🗓️ September 26, 2026
⏰ 10:00–11:00 AM CEST
📌 Vienna, Austria

[TGCT Support @TGCTSupportorg]

🎗️🦓 It’s #Sarcoma & #TGCT Awareness Month!

Have you ever wondered:
❓ What is sarcoma?
❓ What is TGCT?
❓ Why is TGCT often treated in oncology centers?
❓ How are TGCT and sarcoma similar and how are they different? (Hint: TGCT is not cancerous!)

We’ve got you covered! 🚨

[TGCT Support @TGCTSupportorg]

@stern_sydney was part of a mini-documentary about her journey living with #TGCT/#PVNS. The video follows her experience as a patient, educational journey, and how those experiences ultimately led to creating TGCT Support 🎥
Living with a rare disease https://t.co/6wkVXwxjxT

[TGCT Support @TGCTSupportorg]

Check out our podcast with our first-ever medical oncologist, @ShepardDale, as he discusses shared decision-making and treatment expectations in #TGCT

Spotify:
https://t.co/RnPXNFXbnP

Apple Podcast:
https://t.co/wEPH2IEYuN

[TGCT Support @TGCTSupportorg]

See you in ☀️ Seoul! We have submitted 2 ABSTRACTS for #CTOS2026 🤞🥳 #TGCTStrong @ctosociety

[TGCT Support @TGCTSupportorg]

And famously, @Ramysaleh86 ! 👏🏻

[TGCT Support @TGCTSupportorg]

Several #TGCT faces of #ASCO26 ! We are grateful for your dedication to the TGCT community❤️‍🩹

[Sydney Stern, PhD, MS @stern_sydney]

Day 2 of #ASCO26 coming at cha!

[TGCT Support @TGCTSupportorg]

We are headed to ☀️ Chicago for the American Society of Clinical Oncology (ASCO) annual conference! #ASCO annual conference is the largest oncology conference in the world with over 50,000 attendees 🌎🌏 we can’t wait to discuss #TGCT, stay tuned for more updates!

[touchONCOLOGY @touchONCOLOGY]

📢 In this interview, Dr Stern (Head of @TGCTSupportorg Programs) discusses how advances in CSF1-targeted therapies are reshaping the treatment landscape, alongside the continued importance of multidisciplinary care and earlier specialist referral.

Read: https://t.co/HvSznFMOQ0

[TGCT Support @TGCTSupportorg]

We are so excited to announce that we are presenting at the 23rd International Society of Limb Salvage (#ISOLS) annual conference in Vienna, Austria 🇦🇹 📣 This is our FIRST talk at an orthopedic conference and we are honored to amplify the pts voice in research 🔬
Stay tuned!

[TGCT Support @TGCTSupportorg]

We are 1 MONTH away from our #TGCT Day of Learning (TDOL) conference at LUMC in 🇳🇱 (May 08)! Our agenda is jam packed with talks from experts and moments to connect with pts living with TGCT.

registered to attend the free day event, go to👇👇👇
https://t.co/8Q7azNBJ32

[Rob Ashford @RobAshford2]

Good work @stern_sydney Need to spread the word @SarcomaEast @BritOrthoOnc @EastleyNick @MrJDStevenson

[TGCT Support @TGCTSupportorg]

We’re proud to share the UK TGCT Consensus Guidelines are now live on Bone & Joint Open, alongside a patient-friendly version on our site.

Thank you to @BoneJointOpen and all the authors!

Medical: https://t.co/WXHgqNe8zX
Patient: https://t.co/y7sAGQaZvb

[TGCT Support @TGCTSupportorg]

A pt with #TGCT in our community, Timo, presented his experience to amplify the voice of patients at a symposium @ @myESMO Sarcoma & Rare Cancers conference in Lugano🇨🇭! Our community is dedicated to spreading awareness among clinicians. 💪🏻💪🏻💪🏻