TGCT Support

The mission of TGCT Support is to improve the treatment and quality of life of #TGCT patients through #research #advocacy #compassion & #education |👇🏻

[TGCT Support @TGCTSupportorg]

And famously, @Ramysaleh86 ! 👏🏻

[TGCT Support @TGCTSupportorg]

Several #TGCT faces of #ASCO26 ! We are grateful for your dedication to the TGCT community❤️‍🩹

[Sydney Stern, PhD, MS @stern_sydney]

Day 2 of #ASCO26 coming at cha!

[TGCT Support @TGCTSupportorg]

We are headed to ☀️ Chicago for the American Society of Clinical Oncology (ASCO) annual conference! #ASCO annual conference is the largest oncology conference in the world with over 50,000 attendees 🌎🌏 we can’t wait to discuss #TGCT, stay tuned for more updates!

[touchONCOLOGY @touchONCOLOGY]

📢 In this interview, Dr Stern (Head of @TGCTSupportorg Programs) discusses how advances in CSF1-targeted therapies are reshaping the treatment landscape, alongside the continued importance of multidisciplinary care and earlier specialist referral.

Read: https://t.co/HvSznFMOQ0

[TGCT Support @TGCTSupportorg]

We are so excited to announce that we are presenting at the 23rd International Society of Limb Salvage (#ISOLS) annual conference in Vienna, Austria 🇦🇹 📣 This is our FIRST talk at an orthopedic conference and we are honored to amplify the pts voice in research 🔬
Stay tuned!

[TGCT Support @TGCTSupportorg]

We are 1 MONTH away from our #TGCT Day of Learning (TDOL) conference at LUMC in 🇳🇱 (May 08)! Our agenda is jam packed with talks from experts and moments to connect with pts living with TGCT.

registered to attend the free day event, go to👇👇👇
https://t.co/8Q7azNBJ32

[Rob Ashford @RobAshford2]

Good work @stern_sydney Need to spread the word @SarcomaEast @BritOrthoOnc @EastleyNick @MrJDStevenson

[TGCT Support @TGCTSupportorg]

We’re proud to share the UK TGCT Consensus Guidelines are now live on Bone & Joint Open, alongside a patient-friendly version on our site.

Thank you to @BoneJointOpen and all the authors!

Medical: https://t.co/WXHgqNe8zX
Patient: https://t.co/y7sAGQaZvb

[TGCT Support @TGCTSupportorg]

A pt with #TGCT in our community, Timo, presented his experience to amplify the voice of patients at a symposium @ @myESMO Sarcoma & Rare Cancers conference in Lugano🇨🇭! Our community is dedicated to spreading awareness among clinicians. 💪🏻💪🏻💪🏻

[TGCT Support @TGCTSupportorg]

Check out our newest webinar on our TGCT Registry, comparing 122 pediatric patients to 497 adult patients with #TGCT 📖 recently published.

https://t.co/6IvepKlYHC

[César Serrano García @DrCeSarcoma]

🤩 Una de las mayores recompensas de ser oncólogo es realizar ciencia con un beneficio tangible en pacientes

🏥 Pimicotinib es un fármaco muy eficaz en pacientes con tumor tenosinvial de células gigantes, #TumorRaro sin fármacos aprobados en España

https://t.co/peUNqlKvIe

[TGCT Support @TGCTSupportorg]

@DrCeSarcoma Thank you for raising awareness and we hope there’s an approved therapy in Spain soon! 🙏

[TGCT Support @TGCTSupportorg]

We have 5 available episode of our Herding Hope: Zebra & TGCT Talk podcast 🎙️🦓! Want to hear firsthand experiences, stories, and key messages from patients with #TGCT?

Listen on Spotify or Apple Podcasts:
https://t.co/bQH9E3O4rT

https://t.co/7seAMrAI7i

[TGCT Support @TGCTSupportorg]

Thanks to @assotgctfrance for their efforts and collaboration ☺️ we celebrate today 🌍

[TGCT Support @TGCTSupportorg]

France 🇫🇷 becomes second European country to get approval/access to ROMVIMZA 👏🏻👏🏻 exciting news for our European patients!

https://t.co/UJYqzDSmWE

[TGCT Support @TGCTSupportorg]

We are wishing @jarenjacksonjr a speedy recovery. Want to learn more? Check out the consensus on the management of #TGCT and why the naming is so important to patients!

go to https://t.co/AECGHDNTnM

[Utah Jazz @utahjazz]

Jaren Jackson Jr. underwent successful surgery to remove a localized pigmented villonodular synovitis (PVNS) growth in his left knee.

Details 📰👇

#TakeNote

https://t.co/8HhBKAkH9K

[TGCT Support @TGCTSupportorg]

Check out our newest podcast episode featuring Alex 🎙️ Alex shares what it’s really like living with #TGCT amid a changing treatment landscape and why expert care matters so much.
Listen now 🔗 on Spotify:

https://t.co/KEbs2InVfO

And Apple Podcast:
https://t.co/7seAMrBfWQ

[TGCT Support @TGCTSupportorg]

We submitted our #ISOLS2026 abstract 😁 See you in 🇦🇹 to talk about #TGCT!

[TGCT Support @TGCTSupportorg]

Ultra-rare ≠ low impact. Grateful to @nationwidekids for spotlighting our pediatric #TGCT registry:
☑️ 2/3 of Peds pts wait ≥1 yr for dx
☑️ high misdiagnosis
☑️ surgery common w/ high recurrence & functional burden
☑️high unmet need

https://t.co/CPXBukrwQy #RareDisease