TNGB - Telethon Network of Genetic Biobanks

Network of 11 Italian Rare Disease Biobanks.

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

We are at the @BiobankWeek 2025 presenting our 18-yrs experience in the rare disease biobanking. Come visit our posters #388 and #394!

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

Registrations still open for the @EJPRareDiseases training "Managing RD biological sample data in Biobanks: lessons learned from the EJP RD training workshops" in Milan on 13-14 December. Don't miss it!
https://t.co/I3iDMXVzm4
#rarediseases #biobanking #biomedicalresearch

[ERDERA @ERDERA_org]

📢Join @EJPRareDiseases for a groundbreaking 2-day face-to-face event that presents the culminating workshop in its series of capacity-building programs on biobanking.
The free event will be held on December 13-14, 2023.
📝 Registration Deadline: Oct 23rd
https://t.co/UPgzzpHRsG

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

📣New @EJPRareDiseases training
ERN biosamples in RD research: added value and usefulness
🗓️ 12-14 June @SaludISCIII , Madrid 🇪🇦
📝Registration deadline: 20 April

[ERDERA @ERDERA_org]

📢 Calling all biomedical researchers, medical professionals, and biobank managers! Don't miss the @EJPRareDiseases training in Madrid on June 12th. Learn how to optimize ERN samples for RD research and unlock their high value in networking and research.
ℹ️https://t.co/cT38dfDCPZ

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

Visit our poster #201 at the @Telethonitalia XXI Scientific Convention! #RareDiseases #biobanks

[Fondazione Telethon @Fondaz_Telethon]

📢 Al via la XXI Convention scientifica di Fondazione Telethon
🔬 L'evento che coinvolge i principali attori del mondo delle malattie rare è realizzato con il supporto di @ProvinciaTrento, dal 12 al 15 marzo a Riva del Garda
👩‍⚕️👨‍⚕️ Più di 850 partecipanti
👉 https://t.co/vgEqTNyZ0Z

[European Reference Network on Rare Bone Diseases @ern_bond]

We wish to all of you Happy Holidays and a joyful New Year, from ERN Bond 🎄🎊

[Lorena Casareto @LorenaCasareto]

Ready to tell about the @TNGBnetwork at the biobank training workshop organised by @EJPRareDiseases !!!

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

Domani alle 19 il webinar "Il ruolo del campione biologico nella ricerca scientifica" organizzato da @ern_bond insieme a @AsItOI @uniamofimronlus e A.C.A.R. onlus con il patrocinio di @istsupsan @Telethonitalia @BBMRI_it

[As.It.O.I. @AsItOI]

Domani, 18.03 alle 19.00 ti aspettiamo ad un altro #webinar su "Materiale biologico nella ricerca scientifica"!
Di seguito il link per accedere, ti aspettiamo...
Non mancare!

Join Zoom Meeting
https://t.co/dG3qRSUKue

Meeting ID: 813 0882 7209
Passcode: 124526

@ern_bond

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

@EJPRareDiseases Online Training "Rare Disease Biobanks: Roles in Research Networks and International Collaborations" on 10-11 May 2021. Registration deadline 13 May 2021.
Full programme and info at https://t.co/AjvC3H7Gn3

[Rare Disease Day @rarediseaseday]

📅 Today is #RareDiseaseDay 2021, the rarest day of the year!

How are you raising awareness for people living with a rare disease and their families?

[BBMRI_it @BBMRI_it]

Una survey lanciata da @BBMRIERIC per capire le reali necessità dei ricercatori. Qui maggiori dettagli: https://t.co/VU6RkL0tFs

[Mary Wang @marywangCM]

Get your solidarity @Telethonitalia chocolate 🤎and support research on #genetic diseases. Available via Amazon eShop! #maratonatelethon #ilmiodono

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

We are presenting at the @BiobankWeek 2020 our experience on sample access proceure. Visit our poster no. PO-09!

[Lorena Casareto @LorenaCasareto]

Attending the #EBW20 ePoster session! Visit the @TNGBnetwork poster no. PO-09 on governance access in #biobaking presented by @SofiaIacomussi

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

Our advisor Simona Borroni talked today at the #EJPRDTraining

[Mary Wang @marywangCM]

#EJPRDTraining continues on Day 2. Simona Borroni tells us why #raredisease patients are motivated to share their biological samples for research, and the perspectives on transparency, governance of #biobanks. #Dravet

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

La @biotechweek volge al termine: come hai trovato le nostre video interviste? 💪

Faccelo sapere compilando questo veloce questionario ⬇️ La tua opinione è preziosissima ⬇️
https://t.co/VdZxZG4bDT

#Biobanchegenetiche
#TNGB
@AssobiotecNews
@EuropaBio

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

Con la dottoressa Chiara Baldo, biologa genetista presso le due #Biobanche TNGB dell'Istituto Gaslini di Genova parliamo dei registri di patologia 📚

Guarda il video su YouTube: https://t.co/J8k0QWVHsl
@biotechweek @AssobiotecNews @EuropaBio

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

Insieme a Elisabetta Abelli, tecnico biomedico presso @IRCCS_Rizzoli approfondiamo il "Processo del campione biologico" 🔬

Guarda il video sul nostro Canale YouTube: https://t.co/i1jBBCsQOX

@biotechweek @EuropaBio @AssobiotecNews

[TNGB - Telethon Network of Genetic Biobanks @TNGBnetwork]

@marywangCM @Telethonitalia Thank you so much @marywangCM 😁 We're so glad you enjoyed!

[Mary Wang @marywangCM]

A nice Q&A #Genetic #Biobanks. Nice work @TNGBnetwork! @Telethonitalia