TS 2000

The TS 2000 Study is following a cohort of children and young people with TS to chart and better understand the ‘natural history’ of the disorder.

[TS 2000 @TS2000_]

🎗️ Today is TSC Awareness Day!
We’re proud to stand with the Tuberous Sclerosis Complex community, recognising the strength, resilience, and voices behind every story. 💙🧬
#TSCawareness #TuberousSclerosis #TS2000Study

[TS 2000 @TS2000_]

November is #EpilepsyAwarenessMonth 💜 Did you know up to 90% of people with TSC experience epilepsy? Swipe to learn about epilepsy, seizures, and how TSC can cause them. Let's raise awareness together! Visit https://t.co/dio4SMRuRU to support our research. #Epilepsy #TSC

[TS 2000 @TS2000_]

@GeneticAll_UK @UKTSA Thank you for sharing! 🙌 We’re still looking for more participants for this exciting study. If you're interested in joining or want to learn more about how the app can support young adults with TSC, visit our website or email us at [email protected].

[TS 2000 @TS2000_]

We’re excited to announce that TS 2000 is now on Instagram! 🎉 Follow us @ts2000study for updates, research insights, and more. Here’s a sneak peek of some of the posts you can find on our page! 👇 #TSC #TS2000 #Research #FollowUs #TuberousSclerosisComplex

[TS 2000 @TS2000_]

It’s been a while since our last update! We’re still actively recruiting participants for the TS2000 study. If you’d like to take part, visit our website or contact us at [email protected].

[TS 2000 @TS2000_]

The TS 2000 Team are still recruiting for our smartphone app study, looking to track the feelings and symptoms of young adults with TSC! 📱📢

This will help us find new ways to manage and treat TSC!🌟

To take part, follow the link on our website: https://t.co/0JYJiGCpR2

[Tuberous Sclerosis Association @UKTSA]

TSC researchers have an exciting new study to see if a smartphone app is effective for people with TSC aged 16 - 35 to track feelings and symptoms.

By taking part, you'll help create innovative ways to manage emotional and physical aspects of TSC.

https://t.co/cpdJ2JsHS2

[TS 2000 @TS2000_]

Here at the TS 2000 Team, we are interested in working with young adults with TSC to see whether our app is effective in capturing and tracking the difficulties they may face. Visit our website to get involved!☄️📲

News | TS 2000 (https://t.co/dio4SMRuRU)

[TS 2000 @TS2000_]

Exciting updates from the TS 2000 Team! Read all about it in our Summer Newsletter 2024 on our website: https://t.co/Y95xBJ3UJP 📰

Want to get involved in TSC research? We are still recruiting for our smartphone feasibility study: 📲💫https://t.co/iDfz6pnl2L

[TS 2000 @TS2000_]

Just over a month ago our PhD researcher Kate attended the @UKTSA's Big Day 2024! At this amazing event, bringing together the TSC community, Kate got to present our current work on how smartphones could potentially help young adults with TSC track their everyday life! 💫❇️

[TS 2000 @TS2000_]

Want to join our feasibility study in assessing the use of smartphones in young adults with Tuberous Sclerosis Complex?📲📶

Find the link to take part via our website: Take Part | TS 2000 (https://t.co/dio4SMS2Hs)

[Tuberous Sclerosis Association @UKTSA]

TSC researchers have an exciting new study to see if a smartphone app is effective for people with TSC aged 16 - 35 to track feelings and symptoms.

By taking part, you'll help create innovative ways to manage emotional and physical aspects of TSC.

https://t.co/cpdJ2JsHS2

[TS 2000 @TS2000_]

We are recruiting for the next phase of our study!🔎

Are you a young adult with TSC who uses a smartphone? We want to hear from you! Take a look at our study advert below to see what our research is about and you can register your interest here - https://t.co/iDfz6pnl2L

[TS 2000 @TS2000_]

At the big day this year, Kate who is leading phase 4 of the TS 2000 Study will be discussing how useful smartphone apps could be for supporting young adults with TSC. She will also be talking about our new feasibility study.📱🧠Be sure to check it out! https://t.co/iDfz6pnl2L

[Tuberous Sclerosis Association @UKTSA]

You've got until tomorrow at 7pm to get your tickets for Big Day 2024! 💚🤩 We've got a fantastic day planned, including talks from TSC researchers like Kate!

We've also got a creche this year for our younger attendees.

https://t.co/yusLH2xDdR

[TS 2000 @TS2000_]

Today the 15th of May marks the Global Awareness day of TSC!💚🌍Today the TSC community are coming together to raise awareness of TSC and advocate for it's support and treatment. Join us in sharing your experiences and knowledge of TSC! #TSCglobalday #United4TSC

[TS 2000 @TS2000_]

Big news from the TS 2000 Team!📢We are recruiting for the next phase of our study! 🥳

Want to take part in our smartphone study? Take a look at our advert to get all the information you need and then you can register your interest by clicking this link:
https://t.co/0DF40w2D4G

[TS 2000 @TS2000_]

Today the TS 2000 Team are showing their support for #WorldPurpleDay 2024. Around 8 out of 10 people with TSC also have epilepsy and it is one of the first signs in a TSC diagnosis. For more details on how best to support someone during a seizure visit https://t.co/3vLMFDmUPA.💜

[TS 2000 @TS2000_]

Check out the official website below to see what important events have been happening during Neurodiversity celebration week 2024!
#NeurodiversityCelebrationWeek

https://t.co/GOUL4wPO0Z

[TS 2000 @TS2000_]

This week marks Neurodiversity Celebration Week 2024!🎉

We are proud to support this initiative, raising awareness of and celebrating our unique differences, including those 1 in 2 people with TSC that have neurodiversities.✨

#NeurodiversityCelebrationWeek

[TS 2000 @TS2000_]

The theme of this year's #RareDiseaseDay2024 is 'stats', to highlight that despite these diseases being rare, they still have a significant impact on many individuals. Here is a great video from the
@UKTSA sharing important stats about TSC. 💚🧠✨

[Tuberous Sclerosis Association @UKTSA]

Ella's back again for #RareDiseaseDay! This time, telling us all about the key stats behind TSC #TuberousSclerosisComplex

[TS 2000 @TS2000_]

Today marks #RareDiseaseDay in which we are raising awareness of the 300 million poeple worldwide living with a rare disease. Share your story to help us advocate for equitable access to diagnosis, treatment and care for those with rare diseases! #TuberousSclerosisComplex 💚💜