TSC Alliance

The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex

[Rare Disease Clinical Trial Network, Ireland @rare_trial]

The RDCTN team & our partners at Rare Disease Research Catalyst Consortium (RDCat), are proud to join #TSCGlobalVirtualRelay for Tuberous Sclerosis Complex (TSC) awareness! Follow the digital baton across all 7 continents! #TSCGlobalDay #ConnectingTheWorld4TSC #LighttheWay

[TSC Alliance @tscalliance]

#wearblue for #TSCGlobalAwarenessDay! Together, we unite for everyone impacted by tuberous sclerosis complex (TSC). Learn more and get involved: https://t.co/zNKpWZ4nHh

#TSCAlliance #RareDisease

[TSC Alliance @tscalliance]

TSC RESEARCH IN THE NEWS!

Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC)

https://t.co/gSkPleqKa4

[ECHO Epilepsy Ontario @ECHOEpilepsy]

Join Session 1: Introduction to TSC
🔎Review the clinical diagnostic criteria for Tuberous Sclerosis Complex, including key dermatological findings.
🧬Explore the genetic basis of TSC and implications for care.

📅 Apr 29 | 12–1 PM
🔗 Register: https://t.co/aVrXuP0WFM

[TSC Alliance @tscalliance]

New to a TSC diagnosis? You are not alone. Join us tonight at 8 pm ET for TSC 101 for newly diagnosed individuals or families, to gain a clear understanding of TSC and learn how to build a coordinated network of care for your journey.
Register: https://t.co/FtOuLuq2d1

[Ben Kuhn @tacowagon84]

TSC Alliance Walk In Chicago
Team Ezra!
Cure TSC
@tscalliance

[TSC Alliance @tscalliance]

2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs!

LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral.

Access the program description, information on how to submit an LOI, and more: https://t.co/pz4GV0uOuF

[Senator Mark Kelly @SenMarkKelly]

Jerry, sorry no. Terry, no wait, that’s not right... Jim! Jim O’Heir and the @tscalliance stopped by the office to talk about tuberous sclerosis complex and the fight to improve care and research for families living with it.

We’ve got to keep supporting the medical research that helps turn breakthroughs into real treatments.

[TSC Alliance @tscalliance]

2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs!

LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral.

Access the program description, information on how to submit an LOI, and more: https://t.co/FrVPEv2jf4

[TSC Alliance @tscalliance]

Join us for the 2026 TSC World Conference, from July 30-August 1 at the Gaylord Rockies in Aurora, CO! 🏔️

Register and learn more at https://t.co/Xf4xwiGTQO.

[TSC Alliance @tscalliance]

The TSC Alliance wishes you a happy and safe new year!

#2026 #tscalliance

[Tracy Dixon-Salazar @TracyDixonSalaz]

#AES2025 #WhereIsSavannahRaine @LGS_Foundation #LennoxGastautSyndrome
@CanineAssistant @curedravet @tscalliance @PERCepilepsy

[TSC Alliance @tscalliance]

Join us at AES 2025!

The TSC Alliance is excited to attend AES 2025 in Atlanta, GA this year. Come find us at our booth (#639) at the Georgia World Congress Center from December 5-9.

**Not sponsored or endorsed by AES.

[TSC Alliance @tscalliance]

The TSC Alliance wishes you a happy and safe Thanksgiving holiday!

[TSC Alliance @tscalliance]

Eleventh Annual Infantile Spasms Awareness Week Scheduled for December 1-7.

Learn more: https://t.co/dJkMzl5Ycy
#ISAW

[TSC Alliance @tscalliance]

SUDEP Action Day is Oct 15. This year’s theme, “Hope Begins with a Conversation”, reminds us that talking openly about SUDEP risks & prevention can save lives. Every conversation builds safety, understanding & hope.
Learn more & join us: https://t.co/ANveRgSGJn

[TSC Alliance @tscalliance]

SUDEP Action Day on Oct. 15 is a crucial time to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP).

Join us and our partners in continuing this important conversation.

Learn more: https://t.co/AXZ4suonKI

#SUDEPActionDay2025 #BreakDownBarriers

[TSC Alliance @tscalliance]

2025 TSC Biosample Seed Grants Available!

The TSC Alliance announces a funding opportunity for 2025 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository.
Apply here: https://t.co/h4AgpARVKn

[TSC Alliance @tscalliance]

Safety is a top priority when managing your epilepsy. Building your healthcare team can help reduce your risk for SUDEP.

Visit the @AmEpilepsySoc website to find specialty care and discuss how to reduce risks for SUDEP: https://t.co/0NsaTlcfoN

[TSC Alliance @tscalliance]

2025 TSC Biosample Seed Grants Available!

The TSC Alliance announces a funding opportunity for 2025 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository.
Apply here: https://t.co/iogUUymg0t