TSC Alliance @TSCalliance - Twitter Profile

tscalliance retweeted

Dr. Prabhudev M Hiremath MD 🧠

@Neuroptimist23

13 days ago

For #TuberousSclerosis @ORDIndia @tscalliance #Raredisorders

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TSC Alliance @tscalliance

about 2 months ago

More amazing coverage of the film The Last Sunrise and how Anna Todd is using her story and experience to raise awareness of TSC! https://t.co/52JzSpa7eq

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tscalliance retweeted

Neurelis, Inc.

@NeurelisInc

2 months ago

Join PAME on September 17th for an important webinar discussion on #Seizure Clusters: Definitions, Consequences, Interventions. Find more info and register here: https://t.co/E8N0UCmZSD #SUDEPAwareness

NeurelisInc's tweet photo. Join PAME on September 17th for an important webinar discussion on #Seizure Clusters: Definitions, Consequences, Interventions. Find more info and register here: https://t.co/E8N0UCmZSD #SUDEPAwareness https://t.co/jWDqd7YJWq

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tscalliance retweeted

TheLAMFoundation @LAMFoundation

3 months ago

It was great to see our rare disease friends at the TSC World Conference in Aurora, CO earlier this month. Thank you for allowing us to advance research on behalf of our communities. @tscalliance

LAMFoundation's tweet photo. It was great to see our rare disease friends at the TSC World Conference in Aurora, CO earlier this month. Thank you for allowing us to advance research on behalf of our communities.

@tscalliance https://t.co/MGylCabh8J

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Who to follow

Dravet Syndrome Foundation

@curedravet

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

Tracy Dixon-Salazar

@TracyDixonSalaz

Neuroscientist who found the drug that gave her daughter years. Now writing the book nobody gave her. CEO @lgsfoundation

stxbp1

@curestxbp1

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.

tscalliance retweeted

GRIN Therapeutics, Inc. @GRIN_tx

4 months ago

We’re proud to sponsor the @tscalliance 2026 TSC World Conference and are grateful to stand with the global #TSC community. #TSCWC26

GRIN_tx's tweet photo. We’re proud to sponsor the @tscalliance 2026 TSC World Conference and are grateful to stand with the global #TSC community. #TSCWC26 https://t.co/z3tdAccpsu

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TSC Alliance @tscalliance

4 months ago

We have a special World Conference welcome message for you from actor and epilepsy advocate Greg Grunberg!—watch now! #tscwc26

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TSC Alliance @tscalliance

4 months ago

The application for the Al Marshall “Commitment to the Future” Fellows Scholarship is now open! Learn more about scholarship eligibility and how to apply here: https://t.co/wGXW9huq5k The scholarship application closes on August 24, 2026 at 11:59 pm ET.

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TSC Alliance @tscalliance

4 months ago

The TSC Alliance wishes everyone a happy and safe American Independence Day!

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tscalliance retweeted

Rare Disease Clinical Trial Network, Ireland @rare_trial

6 months ago

The RDCTN team & our partners at Rare Disease Research Catalyst Consortium (RDCat), are proud to join #TSCGlobalVirtualRelay for Tuberous Sclerosis Complex (TSC) awareness! Follow the digital baton across all 7 continents! #TSCGlobalDay #ConnectingTheWorld4TSC #LighttheWay

rare_trial's tweet photo. The RDCTN team & our partners at Rare Disease Research Catalyst Consortium (RDCat), are proud to join #TSCGlobalVirtualRelay for Tuberous Sclerosis Complex (TSC) awareness! Follow the digital baton across all 7 continents! #TSCGlobalDay #ConnectingTheWorld4TSC #LighttheWay https://t.co/f44nGPCyyl

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TSC Alliance @tscalliance

6 months ago

#wearblue for #TSCGlobalAwarenessDay! Together, we unite for everyone impacted by tuberous sclerosis complex (TSC). Learn more and get involved: https://t.co/zNKpWZ4nHh #TSCAlliance #RareDisease

tscalliance's tweet photo. #wearblue for #TSCGlobalAwarenessDay! Together, we unite for everyone impacted by tuberous sclerosis complex (TSC). Learn more and get involved: https://t.co/zNKpWZ4nHh

#TSCAlliance #RareDisease https://t.co/ju5RlvU9BS

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TSC Alliance @tscalliance

6 months ago

TSC RESEARCH IN THE NEWS! Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC) https://t.co/gSkPleqKa4

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tscalliance retweeted

ECHO Epilepsy Ontario @ECHOEpilepsy

7 months ago

Join Session 1: Introduction to TSC 🔎Review the clinical diagnostic criteria for Tuberous Sclerosis Complex, including key dermatological findings. 🧬Explore the genetic basis of TSC and implications for care. 📅 Apr 29 | 12–1 PM 🔗 Register: https://t.co/aVrXuP0WFM

ECHOEpilepsy's tweet photo. Join Session 1: Introduction to TSC
🔎Review the clinical diagnostic criteria for Tuberous Sclerosis Complex, including key dermatological findings.
🧬Explore the genetic basis of TSC and implications for care.

📅 Apr 29 | 12–1 PM
🔗 Register: https://t.co/aVrXuP0WFM https://t.co/TF5EvgDgSs

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TSC Alliance @tscalliance

7 months ago

New to a TSC diagnosis? You are not alone. Join us tonight at 8 pm ET for TSC 101 for newly diagnosed individuals or families, to gain a clear understanding of TSC and learn how to build a coordinated network of care for your journey. Register: https://t.co/FtOuLuq2d1

tscalliance's tweet photo. New to a TSC diagnosis? You are not alone. Join us tonight at 8 pm ET for TSC 101 for newly diagnosed individuals or families, to gain a clear understanding of TSC and learn how to build a coordinated network of care for your journey.
Register: https://t.co/FtOuLuq2d1 https://t.co/3R40lzKk7C

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tscalliance retweeted

Ben Kuhn @tacowagon84

7 months ago

TSC Alliance Walk In Chicago Team Ezra! Cure TSC @tscalliance

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TSC Alliance @tscalliance

8 months ago

2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs! LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral. Access the program description, information on how to submit an LOI, and more: https://t.co/pz4GV0uOuF

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tscalliance retweeted

Senator Mark Kelly

@SenMarkKelly

8 months ago

Jerry, sorry no. Terry, no wait, that’s not right... Jim! Jim O’Heir and the @tscalliance stopped by the office to talk about tuberous sclerosis complex and the fight to improve care and research for families living with it. We’ve got to keep supporting the medical research that helps turn breakthroughs into real treatments.

SenMarkKelly's tweet photo. Jerry, sorry no. Terry, no wait, that’s not right... Jim! Jim O’Heir and the @tscalliance stopped by the office to talk about tuberous sclerosis complex and the fight to improve care and research for families living with it.

We’ve got to keep supporting the medical research that helps turn breakthroughs into real treatments.

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TSC Alliance @tscalliance

8 months ago

2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs! LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral. Access the program description, information on how to submit an LOI, and more: https://t.co/FrVPEv2jf4

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TSC Alliance @tscalliance

8 months ago

Join us for the 2026 TSC World Conference, from July 30-August 1 at the Gaylord Rockies in Aurora, CO! 🏔️ Register and learn more at https://t.co/Xf4xwiGTQO.