Top Tweets for #Raredisorders
New podcast episode! Krissy Dilger talks with Drs. Grace Gombolay and Varun Kannan about their multidisciplinary clinic, biomarker research, and clinical trials. Listen now at https://t.co/wLzmHi3Nb9
#Neuroimmune #Podcast #RareDisorders #CommunitySupport #SRNA
.@ChildrensPhila’s Dr. Yi Xing et. al developed a low-cost long-read RNA sequencing platform that revealed disease-causing variants in 88 children with a range of #RareDisorders —including a patient whose condition went undiagnosed for a decade. Read more: https://t.co/suGQW1UPPC
The evolving methodology of basket- analog trial enabling phenotypebased approaches to accelerate treatment in DEEs.
https://t.co/StOOZvmGYl
#epilepsy #ILAE #epilepsia #baskettrial #masterprotocol #raredisorders @KetteValente
Reza Shojaei (@mrezashojaei) on Making a Measurable Difference in Patients’ Lives
@PlasmaProteins
https://t.co/SKOExoOybf
#BleedingDisorders #Health #Hematology #Hemostasis #HemostasisToday #ImmuneDeficiencies #Medicine #PDMPs #PlasmaDonation #PPTA #RareDisorders #TransfusionMedicine #MedEd #MedX
Kleine-Levin Syndrome
Ever heard of people sleeping 20+ hours a day… for days or even weeks?
The wild part? It disappears for months or years, then comes back like a mysterious sequel.
Guess the fairy-tale name of this sleep disorder!
#KleineLevinSyndrome #RareDisorders
Thrilled to share our latest #research #publication on #CDKL5 deficiency and #stemcell #diseasemodeling. This critical work took a tremendous team effort over the years! #autism #intellectualdisability #epilepsy #raredisorders #neurogenetics
https://t.co/zyKECYdb0W
Big Win Thanks to @RareDiseases: 1 Single Law Removes Barriers for Rare Disease Patients in Alaska
https://t.co/qZfkwhhlTC
#AccessibleCare #Health #Hematology #HemostasisToday #Medicine #NORD #RareDiseases #RareDisorders #SAIMCoalition #SB133 #TherapyBarriers #MedEd #MedX
Hopefully they can access the proper medical treatment #raredisorders #medical #genetics #doctorexplains
Unlock the mystery of Leontiasis Ossea 🦁, the intriguing "lion face syndrome" with facial and cranial bone overgrowth. Remember, it's a symptom of underlying conditions, not a standalone disease! #medicalmystery #raredisorders
Please share this with others who may be eligible — every story matters. #RareDisorders #Rarediseases @RareDiseasesIE @rarerarely @a_j_mcknight @RAiNAllIreland @HelenMcAneney @Melissa_Kinch_ @orladoyle_econ @NI_RDP @22Q11_Ireland @CARLEENWALGAL @raisingrareness @SBH_PAG
Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. We want to understand your experience to create positive change.
Share your voice!
🎥 Watch short video https://t.co/MiN6gKMOpt
👉Take part in the SURVEY https://t.co/Esg9subaDa
Honoured to present our research on rare disorder genetics at #LorneGenome2025! Grateful for the opportunity to share insights on VPS52 variants in brain development & connect with experts in genomics. Excited for future collaborations! #Genetics #RareDisorders #BrainResearch
📢 We're Hiring – Engagement & Communications Officer! 🌟
To apply and find out more click here: https://t.co/dIY8do5imm
Join us in making a difference!
#Hiring #CommunicationsOfficer #CharityJobs #RareDisorders
New Brunswick has signed a $32-million agreement with the federal government to improve access to four drugs for rare diseases -- three for rare cancers and one for a rare kidney disease. https://t.co/case4xw8Co via @globeandmail @raredisorders #RareDisorders
Revive Therapeutics Provides Update on Research Study Evaluating Bucillamine for Nerve Agent Exposure
https://t.co/ksEi1hhv07
$RVV $RVVTF #Bucillamine #InfectiousDiseases #MedicalCountermeasures #RareDisorders #NerveAgent #DRDC #DefenceRDC #FDA #HealthCanada
He diagnosed his rare disease using Google. Now he hopes artificial intelligence can do the same for others. @CHEO using #AI to help diagnose #RareDisorders, by @phildrost https://t.co/9r6aBQbDFy via @cbcwhitecoat @NightShiftMD
🌍✨ International Day of Persons with Disabilities ✨🌍
IDPWD is a day to celebrate the achievements and contributions of persons with disabilities as well as increase public awareness, understanding and acceptance.
#IDPD #InclusionMatters #DisabilityAwareness #RareDisorders
Ottawa boy with rare disease gets tickets to Taylor Swift show thanks to generosity of others https://t.co/mDzEEz3etB via @cbcnews #RareDisorders #SPG4
🌎 Opening Remarks by MEP Billy Kelleher
Early detection can transform lives. We need to ensure Member States have the right information to take informed decisions on which treatable #raredisorders should be included in their newborn screening panels.
#NewbornScreening #Screen4Rare
Revive Therapeutics Provides Update on Research Study Evaluating Bucillamine for Nerve Agent Exposure
https://t.co/HYLrE1iYO1
$RVV $RVVTF #Bucillamine #InfectiousDiseases #MedicalCountermeasures #RareDisorders #NerveAgent #DRDC #DefenceRDC #FDA #HealthCanada
Last Seen Hashtags on Sotwe
kigurumi video
Seen from United States
candid
Seen from Germany
anxiouspandaa filter:videos
Seen from Argentina
femboyfeet
Seen from United States
minichat(((()))) video
Seen from Brazil
กระทุ่มแบนนัดเย็ด
Seen from Thailand
prillywarior
Seen from Singapore
エキスパートトピ
Seen from Japan
balıkesirgay
Seen from Turkey
MGAI ()*
Seen from Mexico
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.3M followers
Barack Obama
@barackobama
118.8M followers
Cristiano Ronaldo
@cristiano
114.5M followers
Donald J. Trump
@realdonaldtrump
111.9M followers
Narendra Modi
@narendramodi
107M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.3M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
84M followers
Lady Gaga
@ladygaga
75.5M followers
Virat Kohli
@imvkohli
73.4M followers
Kim Kardashian
@kimkardashian
70.8M followers
YouTube
@youtube
68.7M followers
Neymar Jr
@neymarjr
66.4M followers
Bill Gates
@billgates
65.2M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.2M followers
CNN
@cnn
61.7M followers
X
@x
60.7M followers