TuberousSclerosisCan

TSC Canada ST: Voluntary Non-Profit Charity Raises Awareness Of & Promotes Mutual Support, Research & Education For Tuberous Sclerosis Complex.

[ONTSpecialNeeds @ONTSpecialNeeds]

All the supplies you need that are free!

[𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos]

Understand that #epilepsy is more than just physical. It’s an emotional and social battle too. 💜

[TuberousSclerosisCan @TSCanadaST]

For families preparing to send kids back to school, and trying to get kids with various needs to wear masks, and wash hands, here is a video put together by @OttCatholicSB showing ABA strategies to help with these challenging topics!! https://t.co/Cd8nnqtmwu

[Dr. Jennifer Flinn @MrsJFlinn]

Today is TSC Global Awareness Day! This genetic disease impacts major organ systems, causing epilepsy, ASD, developmental issues, kidney disease, lung disease etc. To learn more, go to our website https://t.co/oQG6Q5J6Ue and Facebook page https://t.co/AmHdZRUMgy @TSCanadaST

[FamilieSCN2A @FamilieSCN2A]

Today, May 15 is Tuberous Sclerosis Complex (TSC) Global Awareness Day! Learn more about this disorder here https://t.co/KLSjJfkveI or add their Facebook link

#TSCglobalday #TSCglobalday #Unite4TSC #TSCstrong

[Kari Luther Rosbeck @KariRosbeck]

It’s #tscglobalday! Wear your blue and #unite4TSC. #TSCstrong

[TSC Alliance @tscalliance]

Today is TSC Global Awareness Day. The Tuberous Sclerosis Alliance is proud to partner with other organizations around the world and the TSC community to raise awareness of tuberous sclerosis complex. Together, we will change the course of this disease. #Unite4TSC #TSCglobalday

[EpLink @EpLinkON]

Today is #TuberousSclerosisComplex (TSC) global awareness day. TSC is a genetic disorder associated with a severe form of #epilepsy called infantile spasms. See the infographic below to learn how to recognize infantile spasms. @TSCanadaST @tsalliance

[TuberousSclerosisCan @TSCanadaST]

In case you missed it, here is an excellent webinar about TSC and Covid 19 https://t.co/bPhGPbcEop

[TSC Alliance @tscalliance]

In coordination with our Professional Advisory Board, the Tuberous Sclerosis Alliance has developed a FAQ guide on Coronavirus (COVID-19) for families and individuals affected by tuberous sclerosis complex (TSC).

You can find the FAQ here: https://t.co/h3A2modB1z

[CORD @raredisorders]

#CORD #RDD2020Canada Conference Slides Posted
https://t.co/Tpn8gyegzw
Thank you to all the participants and sponsors for joining us in Ottawa! #Canada4Rare

[CORD @raredisorders]

Awesome turnout in the rain at Parliament Hill today! #fightforourlives #canada4rare

[CORD @raredisorders]

Come join us today at Parliament Hill at 12:00 pm! #fightforourlives Meet: Centennial Flame, located in front of Center Block, House of Commons on Parliament Hill (111 Wellington Street, Ottawa) #Canada4Rare

[CORD @raredisorders]

For our supporters who are unable to be with us on Parliament Hill, tune into Facebook LIVE here: https://t.co/aOcYrRchZw #StopPMPRB #cdnhealth #cdnpoli #FIGHTforourLIVES

[Katrina Evanochko @katrinae13]

My lovely mom shared at #RDD2020Canada on peer mentoring for youth and parents transitioning from pediatric care to adult. She shared the video below.

https://t.co/P5mIWGG6YE

[TuberousSclerosisCan @TSCanadaST]

Our own TSC Canada Board of Directors Chair presents during the CORD conference!! Amazing job Cathy!!

[CORD @raredisorders]

CORD and @TSCanadaST board member Cathy Evanochko presenting on Peer Monitoring:Transition from Adolescent to adult care #canada4rare #RDD2020Canada

[TuberousSclerosisCan @TSCanadaST]

https://t.co/gnDRQxgkQk… Ottawa rally on Parliament Hill for rare diseases! Tuesday, March 10th #fightforourlives

[TSC Talks-The Podcast @talks_tsc]

Great clip from author Ruth D. Fisher, PhD. For the complete episode go to https://t.co/zPXn1piY36 @GardensNicky @tsctalks_jill @CBTmag @TheCannabisPod @cannasciencepod @CannUpdatePod @CannabisNews

[TuberousSclerosisCan @TSCanadaST]

Ottawa Rally Parliament hill tomorrow (Tuesday, March 10th)11:45-12:30 at the centennial flame to protest the new regulatory process for new drugs for rare diseases. Called “Fight for our lives”. We need to fight for drugs to come to Canada. Clinical trials down 60% last year.

[TSC Alliance @tscalliance]

Join us in 2 weeks for a TAND Webinar on Problem Behaviors presented by Dr. Slocum Freeman starting at 12 PM Eastern, 11 AM Central, 10 AM Mountain, 9 AM Pacific!

You can join via computer: https://t.co/sWPz5ySP96

Or join by phone: [phone]
Access Code: 870-802-477