A patient with cavin-4 IgG-positive immune-mediated rippling muscle disease achieved complete clinical and serological remission following B-cell-targeted therapy with rituximab. https://t.co/uenk5a6Wt2
33,000 people in the U.S. live with ALS today and the number is growing.
Behind every data point is a person, a family, a future being rewritten.
That's why we're All In for research that moves faster than this disease.
Go #ALLIN for #ALSResearch: https://t.co/J3omouU7TV
From JAMA: Amyotrophic lateral sclerosis (#ALS) is an adult-onset neurodegenerative disorder characterized by progressive muscle weakness due to degeneration of upper motor neurons in the brain and lower motor neurons in the brainstem and spinal cord.
https://t.co/VvFlo5RKbX
We are thrilled to help fund this international challenge prize to incentivize the use of AI for ALS drug discovery. This prize is bringing together one of the largest collections of patient data and providing access to teams of innovators to help solve ALS. #Together
Specifically in trial participants with low pNFH levels, the addition of a low dose of the molecule interleukin-2 to riluzole treatment showed significant benefit. Review the findings here: https://t.co/iavZ7kLeQn
#ALS#AmyotrophicLateralSclerosis#ALSTreatment#ALSResearch
@JAMANeuro I find this association interesting and concerning given how many patients are taking this for other indications, and within neurology there is questions of this possibly being beneficial against neurodegenerative conditions. Diabetics would already be at risk for CRAO however.
Might we finally have a disease-specific ➕ modifying treatment in GBS ⁉️ When compared to supportive care only, a new agent ANX005 showed faster recovery across functional domains 🙌 #AANAM
How far we have come @AANmember ✅
A 19-year-old right-handed woman presented with progressive peripheral neuropathy characterized by intermittent numbness, tingling, and weakness in her extremities over a period of 5 weeks. Learn more: https://t.co/2wCqPr3Noy
#NeurologyRF#NeuroTwitter
Congress must pass legislation to fund the government by Oct. 1 to prevent a shutdown. Federally funded research into ALS is critical to develop new treatments and finding a cure.
Specifically for the 2025 budget, we are asking for:
✅ $80 million for the Department of Defense ALS Research Program
✅ $160 million for the National Institutes of Health
✅ $100 million for the ACT for ALS
✅ $15 million for the National ALS Registry and Biorepository
Your Members of Congress need to hear from you TODAY about the importance of funding ALS research: https://t.co/Uth8fniOpG
#ALSAdvocacy #FundALSResearch
Residents & Fellows - bookmark this page to find the resources that @AANEMorg creates just for you & find access to great learning tools! PM&R & N Training Program Directors - include this link in your communications with your residents and fellows!
https://t.co/vzlcvb4NJO
This study provides Class III evidence that treatment of ocular myasthenia gravis with corticosteroids or nonsteroidal immunosuppressants reduces the risk of generalization. https://t.co/Q9twFhAIgy
#NeuroTwitter
Exciting morning on Capitol Hill with #ALS advocates! We dropped off Ice Buckets for the 10th Anniversary of the Ice Bucket Challenge! 🧊💪 We challenge all members of Congress & their offices to join us in raising awareness & funding for ALS research!
#IceBucket10#ALSAdvocacy