A Chronic Illness Community for YOU!

Patient created + Patient led. Creating a space for Vasculitis + Chronic Illness warriors to come together.

[Vasculitis - In memory of John Mills MBE 💙💚 @vascuk]

#NewProfilePic

[A Chronic Illness Community for YOU! @TeamVasculitis]

We're you misdiagnosed before your #vasculitis diagnosis?

#vam2024 #vasculitisawareness

[A Chronic Illness Community for YOU! @TeamVasculitis]

Fellow #vasculitis warriors! May is #vasculitisawareness month!!!

#vam2024

[A Chronic Illness Community for YOU! @TeamVasculitis]

@ABC A perfect case for BETTER QUALITY meat. Grass fed beef, free range chicken etc.

[A Chronic Illness Community for YOU! @TeamVasculitis]

You deserve to be heard by your medical team. If they are not taking you or your symptoms seriously...

Fire them

#raredisease #autoimmune #rheum #vasculitis #chronicillness

[A Chronic Illness Community for YOU! @TeamVasculitis]

Have you tried @costplusdrugs ???

We have and we LOVE it!

Example:
Azathioprine 200mg/day for 3mo
Through insurance = $75 patient price
Through #CostPlusDrugs = $69.20 with shipping

#chronicillness #RareDisease
#Autoimmune #vasculitis

[A Chronic Illness Community for YOU! @TeamVasculitis]

Whatever you do, DON'T....

Give up.

Ever.

Keep going.

Your life matters.

Persist.🩷

#chronicillness #ChronicPain #raredisease #vasculitis

[A Chronic Illness Community for YOU! @TeamVasculitis]

It's #internationalbehcetsawarenessday

Read more here: https://t.co/Nv1Ko6qaOB or listen to the podcast episode! Link in bio or streaming anywhere you listen!

#behcets #behcetsdisease #vam2023 #vasculitis

[A Chronic Illness Community for YOU! @TeamVasculitis]

Today is #EosinophilicDiseasesDay

One of the forms of Vasculitis is one of these diseases. To learn more listen to podcast episode 194 or click the link and read about it! Including insight from patients! https://t.co/Z9GPWvVy9G

#worldeosawareness #vasculitis

[A Chronic Illness Community for YOU! @TeamVasculitis]

@Jane_L_Edwards Love back to you, always dear one. ❤️

[A Chronic Illness Community for YOU! @TeamVasculitis]

@NatRevRheumatol This is by FAR the best one I have read. I share it often with my community. It is much appreciated that it is the first that doesn't use fear and the need to end any ability to have children as the first thing it says patients need.

#vasculitis #vasculitisawarenessday

[A Chronic Illness Community for YOU! @TeamVasculitis]

@ZoiAn2 @vascuk All of them 😉

I personally have #granulomatosiswithpolyangiitis which one do you have? #vasculitis #vasculitisawarenessday

[A Chronic Illness Community for YOU! @TeamVasculitis]

It is #VasculitisAwarenessDay

Remember... you may feel alone but there are THOUSANDS of us and you can find support here or on the Team Vasculitis Instagram page.

#VAM2023 #Vasculitis

[A Chronic Illness Community for YOU! @TeamVasculitis]

Rare Diseases are misdiagnosed 40%+ of the time.

Then #raredisease warriors are labeled "drug seekers" when they keep asking for help because they're getting the wrong treatment.

We need to do better.

#rarediseasetruth #chronicillness

[A Chronic Illness Community for YOU! @TeamVasculitis]

Have you ever dealt with your Doctors dismissing symptoms + struggles because you have a #raredisease?

Suddenly you're not a whole person anymore. It's just about your disease. Share your #rarediseasetruth

[A Chronic Illness Community for YOU! @TeamVasculitis]

@polygon_health Weight lifting 💯

[A Chronic Illness Community for YOU! @TeamVasculitis]

There are 30 million #raredisease patients in the US. 95% of those do not have a single FDA approved medication for their disease. That's 28,500,000 people at minimum.

Stop using this as a "reason" to not use a medication. It's more complicated than that. #ableist

[A Chronic Illness Community for YOU! @TeamVasculitis]

It's #RareDisease Awareness month! #showyourstripes and share your rare disease!

[A Chronic Illness Community for YOU! @TeamVasculitis]

It's been almost a YEAR since the official launch of Team Vasculitis. I am SO grateful to the community and excited about what we're creating!!!

#chronicillness #patientadvocate #vasculitis