Jennifer Griego, a young adult with #cysticfibrosis, grew up being known as the sick kid and feared she wouldn't live long enough to do the things she wanted in life. She shares how she overcame this fear and decided not to let CF define her. https://t.co/tgbLWc4sYk
It’s almost Valentine’s ♥️ Day and that means we at The Will B Foundation are grateful 🙏🏻 to have a Virtual Partner Yoga Event to raise awareness and research dollars for Cystic Fibrosis!
Join us on Feb 14 for #LoveYourLungs Partner Yoga event ♥️🙏🏻🧘🏼♀️🧘🏽
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.@VertexPharma announces availability of a #cysticfibrosis medicine in New Zealand. Learn more and read the full press release here: https://t.co/LH6jfCwZzU
Thank you, @RepJoeKennedy, for meeting with our advocates today to discuss the importance of adequate, affordable health coverage and patient protections for people living with #preex like #cysticfibrosis. #CFadvocacy#DefendPreex
Saturday is Love Your Lungs Partner Yoga Event. Sign up now — all proceeds benefitting those fighting Cystic Fibrosis.
#ThereWillBaCure
https://t.co/RhV8rOv06Y
I'm leading Love Your Lungs Partner Yoga Event benefiting those with Cystic Fibrosis especially @teamwillb1#therewillbeacure SIGN UP OPEN NOW! https://t.co/bAmXu7ysws
I'm leading Love Your Lungs Partner Yoga Event benefiting those with Cystic Fibrosis especially @teamwillb1#therewillbeacure SIGN UP OPEN NOW! https://t.co/bAmXu7ysws
“You show up and you care. Build a relationship. Get to know the person you are taking care of. It makes difficult conversations much easier.” - Sue Sullivan #NACFC
The CF community got the news that Trikafta is now approved in the US. Because this medication is aimed to treat 90% of the CF community, there are many people who aren't eligible for a novel therapy like this.
Are you able to benefit from Trikafta? https://t.co/r9LIqPXi9W
Thank you to everyone in attendance last night at Cocktails to Cure CF. It was amazing to see about 500 people supporting #CysticFibrosis, last night wow! 😘😘 We thank you!! Funds are still coming in, but $140,000 has been tallied today and still counting! 👏🏻👏🏻#thereWillbaCure
If you or a loved one has recently been diagnosed with #cysticfibrosis, you may have many questions. We have resources that can help. https://t.co/maXzsoqUaI
Many aspects of life with #cysticfibrosis can cause anxiety. Learn more about the symptoms of anxiety, how to ask for help, and the different ways to treat anxiety disorders. #WorldMentalHealthDay https://t.co/OzUhWw3AkV