R.J

3 cats, 2 kids, 1 husband 💜. Chronically ill and Disabled. Small business owner. Trying to focus on the little wins 🏆

[R.J @ThatGirlRobynJ]

✨Family is who you choose, not what you're born into✨

[R.J @ThatGirlRobynJ]

I dont know if i can do this anymore

[R.J @ThatGirlRobynJ]

I have 5 medical appointments in the next 7 days, 2 of which are procedures. Fun fun fun 😅

[R.J @ThatGirlRobynJ]

Me to drs for nearly a year: I can't eat without being in agony I rarely keep food down im nauseous all the time
Drs: well youre overweight it can't be that bad
Me: loses 20kg in 10 weeks
Drs: cool make an appointment

- why is it i always have to fight for medical attention?

[R.J @ThatGirlRobynJ]

Imagine turning up to your appoinment to be told there and then that they won't let your kid in. 🙄 like maybe you should have told me that BEFORE I turned up.

[R.J @ThatGirlRobynJ]

That's just called abandoning your child 🙄

[R.J @ThatGirlRobynJ]

Imagine choosing to "bow out gracefully" from being a parent....

[R.J @ThatGirlRobynJ]

So, having my boundaries broken over and over and over again is somehow my own fault? Make that make sense please 🙏

[R.J @ThatGirlRobynJ]

I don't half like to make things difficult for myself

[R.J @ThatGirlRobynJ]

Being disabled and chronically ill is hard enough, add being a stay at home mum and it gets harder. Add in also being a small business owner and it's like I'm asking to fail.... and then!!!!

[R.J @ThatGirlRobynJ]

Also having someone move out, while trying to replace furniture and organise the garage storage, all at the same time and in the time frame of 3 days and it's no wonder I keep crying 🙃...

[R.J @ThatGirlRobynJ]

Nothing worse than watching your toddler vomit all night and there's nothing you can do other than hold her and rub her back 😓

[R.J @ThatGirlRobynJ]

Not even 9 a.m, and I am already done with today 😓😓

[R.J @ThatGirlRobynJ]

@ThatRosaryGirl I 100% agree with this, mines nearly 3 and we always bring our own colouring supplies, if you can't be in a public place and not have something playing in front of you there's an issue but others might have their valid reasons

[R.J @ThatGirlRobynJ]

Juuuuuust what I needed today 😓 spent half my day in a&e again.... love an ankle dislocation that ruins a ligament 🙄🙃

[Candace D. @DiaryofaSickGrl]

Having invisible illnesses is like living in an invisible hell. You’re suffering but no one can see it.

[R.J @ThatGirlRobynJ]

Literally don't have the energy for anything at the moment, my brain is in a constant state of fight or flight and I can't get myself together 😒 😪

[R.J @ThatGirlRobynJ]

Can't have a surgery be simple can I? Back on the on call list and on vigilant observation as we have fluid leakage. 🤞🏼fingers are crossed that its not ANOTHER infection....

[R.J @ThatGirlRobynJ]

Second surgery of the year this week. P sure this year is just gonna be me recovering from one surgery while the next gets sorted. 🙃

[R.J @ThatGirlRobynJ]

Went out around an overwhelming amount of people today and forgot all fidget toys and things that allow me to stim... I did it tho!

[R.J @ThatGirlRobynJ]

So far this year I've had 5 gp appointments, 3 blood tests, 5 hospital appointments and have 2 GP appointments, 7 hospital appointments and 1 surgery already booked. #TellMeYoureChronicallyIllWithoutTellingMeYoureChronicallyIll