I was born with an extremely shitty hand, but into the best of circumstances.
I grew up in a household of two daughters and a son. My elder brother, Cobbler 🕊️, passed away at six months old, so I never got the chance to meet him.
My earliest memories are of pain. By five, I had begun noticing that I remembered very little of my childhood except the days when the pain was unbearable. My parents never really explained what was happening. Music did. My dad bought me a Walkman, and I’d lie in hospital wards with my headphones on, listening to Daddy Lumba.
Even then, I decided that sickle cell would be my purpose, never my excuse.
At 11, I was admitted with stomach pain and discharged with hip pain, pain I would only discover at 22 was caused by avascular necrosis. I didn’t actually find out I had sickle cell until I was 20, when I decided to test my blood while interning at a lab. My parents had kept it from me.
I missed entire school years, but I came back and carried on. Senior High School was even harder. One year, I had 23 admissions and still remained among the top students.
My parents gave me everything they could. My father always felt responsible, and my mother gave up her career to care for her son. So every day I sat in a classroom felt like another opportunity to prove that I could be more than two letters on a piece of paper: SC.
Why am I saying this now?
Because I see the attempts to use sickle cell as some stupid buzzword to get to me.
Yes, I have it. I always have. But I was also one of the best students in my graduating class. I found ways to protect myself when people thought I was an easy target. I had every reason to stay down, and I still found ways to lift myself up. You can try to troll but I’ll just list off things I achieved whilst functioning at 60% because if I could do it and you couldn’t who do we really have to shame?
These days, every extra day feels like an extra feather in my cap.
I had straws to clutch, and I still pulled myself up.
I did the hard thing and also if you have a similar story I just want you to know your story should always be your purpose and not your excuse.