hey everyone
its just over two weeks away, and we still have some distance before the goal.
as soon as it starts it's gonna burn through extremely quickly from just the appointments themselves,
not even including all the testing/transport around them
https://t.co/JOzeEHBAC6
Hi everyone
I've for the first time been referred to a doctor who understands and can manage my condition
the first very expensive appointment is coming up in just a few months sonce they triaged me up the list, and the followup appointments soon after
https://t.co/cI7np8HGXI
even just the bed repair is $250, $300 for specialists, and $220 for my carers
it would take months to pay for this even if we put all of our income into it after rent and meds and wound supplies
longer than they are willing to let me fall behind and keep getting service
we've been needing more help, falling behind on specialist, carer, and equipment maintenance bills
if I can't pay these off soon im going to start being cut off from these services that i rely on to stay alive
please, any help at all would mean a lot
https://t.co/E1Y1kt5G0G
hey uh hi apparently milos been stuck dealing with all this for almost a year alone now?
some of the people Milo knows now feel familiar to me so i think there is some kind of memory bleeding, but i dont think I've been here properly since we were in hospital in January
stuff *really really* hurts but im starting to think that might be normal based on others responses, going to try to get some basics in for food intake so im hoping that will help
I just really hope Zoe has been helping Milo at least deal with some of it
please, anything helps, helps get closer to this, we really need this bed, to reduce further decline for me, and to assist my carers
the OT is keeping an eye on the reissue database but the last one she tried to secure through there disappeared on us so we couldn't get it
(bsky)
if anyone could help, even a tiny amount, it would be really helpful, get us closer to being able to justify it because rn its going to be half of our fortnightly pay before rent or meds or bills or food
https://t.co/E1Y1kt5G0G
if anyone could help, even a tiny amount, it would be really helpful, get us closer to being able to justify it because rn its going to be half of our fortnightly pay before rent or meds or bills or food
https://t.co/E1Y1kt5G0G
please, anything helps, helps get closer to this, we really need this bed, to reduce further decline for me, and to assist my carers
the OT is keeping an eye on the reissue database but the last one she tried to secure through there disappeared on us so we couldn't get it
(bsky)
[TW: story about severe ME/CFS]
Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and Iโm still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)