The CHAMP study

Researchers and clinicians development of an intervention to improve the assessment and communication of chronic pain in U.K. paediatric rheumatology

[The CHAMP study @The_CHAMP_study]

Participants needed! Are you aged 5-19?  Have you had/do you have chronic pain? Please get in touch to take part in our study exploring the impact of pain conversations with healthcare professionals!

Interested? More information can be found here: https://t.co/wPB7YEEhC6

[Lianne Kearsley-Fleet @KearsleyFleet]

🏥Do you know what tools healthcare teams use to assess your arthritis? Find them helpful or relevant?

🗣️Your opinion matters!

💻Register your interest for a <1-hour interview: https://t.co/60e2U7w5Rv

Tagging: @JIA_NRAS @JARProject @VersusArthritis @SNAC_JIA @ArthursPlaceUK

[Lianne Kearsley-Fleet @KearsleyFleet]

📣 Are you >18 years old and have ever been diagnosed with Juvenile Idiopathic Arthritis?

👉 We would really like to hear from you about how your disease activity is assessed by your healthcare teams!

💻 Register your interest for a <1-hour interview: https://t.co/60e2U7w5Rv

[Lianne Kearsley-Fleet @KearsleyFleet]

🏥What tools do you use to measure disease activity in adults with JIA?

❓Do you find them helpful or relevant?

🗣️Your opinion matters!

💻Register your interest (1-hour online interview): https://t.co/iLjeTFRUPe

Tagging: @eular_org @EMEUNET @PReSEMERGE @BANNARGroup

[Lianne Kearsley-Fleet @KearsleyFleet]

📣Are you a clinician that sees adolescents or adults with Juvenile Idiopathic Arthritis?

👉We would really like to hear from you about measuring disease activity in these patients!

💻Register your interest (1-hour online interview): https://t.co/iLjeTFRUPe

[Dr Rebecca Lee @rebecca_lee07]

Just over 1 week to apply for our funded health psychology PhD studentship focused on paediatric pain! Keep those applications coming please 😁🎓This opportunity is not to be missed!

[The CHAMP study @The_CHAMP_study]

Help us to build on the existing CHAMP programme of research by coming to do a PhD with us! This is such a great opportunity to focus on paediatric pain research for 4 years with a fantastic team🎉🥳
@CfE_UoM @FBMH_UoM

[Dr Rebecca Lee @rebecca_lee07]

📢Come and study for a PhD (fully funded) with us!😁

We have a very exciting project which will investigate the contextual factors influencing the communication of pain between children, young people, parents and healthcare professionals…

Read more: https://t.co/EObfH1eSLo

[The CHAMP study @The_CHAMP_study]

Another study published from The CHAMP programme of research! It would be great to hear patients, parents and healthcare professionals thoughts on our findings about biases in communication…

[Dr Rebecca Lee @rebecca_lee07]

🚨My favourite paper (I say that about them all) from my FoundationFellowship is now published in The Journal of Pain! This is an ethnography (fly on the wall) of how healthcare professionals talk to one another about children with pain during MDT meetings:https://t.co/IP52nyw0Zc

[Centre for Epidemiology Versus Arthritis @CfE_UoM]

📢Exciting news!

@NuffieldFound and @VersusArthritis are funding a new #research that will explore the impact of juvenile rheumatic and #MSK diseases on adolescents’ education, vocation & employment.

Led by Prof Suzanne Verstappen & team

More 👉https://t.co/9chkZAyD9U

[The CHAMP study @The_CHAMP_study]

Read about our new paper from The CHAMP study, in which we provide recommendations for healthcare professionals on how to have better conversations about pain with children and young people @rebecca_lee07 @LisCordingley @sjkp121 @DrJMcD @CfE_UoM

[MCHP @ManHealthPsych]

Talking about #pain in #pediatric settings. What do children and young people want? New paper from ⁦@rebecca_lee07⁩ ⁦@sjkp121⁩ ⁦@DaniMountain3⁩ ⁦@LisCordingley⁩ ⁦@DrJMcD⁩ https://t.co/IQT1OK10qx

[Dr Danielle Mountain @DaniMountain3]

Here's my little piece of the #PainPuzzle 🧩

💬 Improving understanding of young peoples' and healthcare professionals' beliefs about #ChronicPain to improve young peoples' outcomes and pain management

#PrioritizePain #NPAW2022 #ItDoesntHaveToHurt

[Dr Rebecca Lee @rebecca_lee07]

It’s National Pain Awareness Week!
My piece of the pain puzzle is investigating how paediatric pain is communicated about…AND trying to make it better 🤩😊What’s your piece of the pain puzzle?
#ItDoesntHaveToHurt #PainPuzzle #PrioritizePain #NPAW #ChildPain
@KidsInPain

[Dr. Jennifer Stinson @DrJenStinson]

Are you a young person with #chronicpain in Canada? Participate in a new research study evaluating the Power Over Pain Portal designed to help young people manage their pain! Sign up here: https://t.co/3Vs8XIloCq @iOuchLab

[The CHAMP study @The_CHAMP_study]

Our PI @rebecca_lee07 is starting her journey to Halifax in Canada today for a two week research visit with @DrCChambers! Lots of exciting meetings planned with @KidsInPain @AllenFinley @DrJenStinson and @DrMCampbellYeo. And lots of time spent discussing CHAMP😍So exciting!!!✈️🥳

[The CHAMP study @The_CHAMP_study]

Read about one of the CHAMP studies just published…We identified key themes about how children and young people want pain to be communicated about and developed new recommendations based on their experiences🤩@CfE_UoM @LisCordingley @DrJMcD @sjkp121 @TonyaPalermo @DaniMountain3

[Dr Rebecca Lee @rebecca_lee07]

Have a sneak peek of our new paper about children’s and young people’s experiences of pain communication! https://t.co/rXRrMyTBrq Children/young people expect to be asked about pain and talk about a range of barriers and facilitators to pain conversations @CfE_UoM @LisCordingley

[The CHAMP study @The_CHAMP_study]

@sjkp121 @rebecca_lee07 @ManHealthPsych Thanks so much for delivering this Sarah! Much appreciated 😘 And wish I could be there!

[Dr Rebecca Lee @rebecca_lee07]

Thank you so much for meeting with me today Lynne! It was great to hear more about the work you do and I look forward to discussing the parallels in our efforts more in the future 😊

[Dr Rebecca Lee @rebecca_lee07]

As the photo shows, I was pleased as punch to be able to hog 40 minutes on stage presenting some of @The_CHAMP_study findings at #DHPConf…and there are still so many important findings about pain communication that I couldn’t squeeze in! @CfE_UoM @ManHealthPsych @LisCordingley

[MCHP @ManHealthPsych]

‘If they don’t ask, I won’t bring it up’. ⁦@rebecca_lee07⁩ talks about children’s experience of talking about pain in paediatric rheumatology clinics ⁦@LisCordingley⁩ ⁦@sjkp121⁩ ⁦@The_CHAMP_study⁩ ⁦@VersusArthritis⁩ #dhpconf

[MCHP @ManHealthPsych]

Health professionals’ communication about pain in paediatric rheumatology clinics. Lots of assumptions about family and child beliefs. ⁦@rebecca_lee07⁩ ⁦@LisCordingley⁩ ⁦@sjkp121⁩ ⁦@The_CHAMP_study⁩ ⁦@VersusArthritis⁩