Catherine

Mum to #alfredthepirate, home baker, keen traveller.

[Catherine @Thepiratemum]

@ChildhoodTT @BGT #Alfredthepirate will be cheering for #RavisDream all the way 💙💚

[Catherine @Thepiratemum]

We’re so proud of #AlfredthePirate for getting up to talk to his school about #NF1 and we are incredibly grateful to @HillAveAcademy for supporting @ChildhoodTT this week. #JeansforGenes #geneticconditions #benignisnotfine @BigBuedro

[Hill Avenue Academy @HillAveAcademy]

This week marks #jeansforGenes that raises awareness of challenges faced by those living with a genetic condition. We had an inspirational talk on #NF1 from Alfred, who has done some truly amazing charity work for #ChildhoodTumourTrust. We will all be wearing our denim on Friday!

[Catherine @Thepiratemum]

Morning @nationalrailenq @WestMidRailway @AvantiWestCoast Huge thanks to your ticket staff at #wolverhampton. My work pre booked the wrong return tickets for a London meeting (a week’s wait is a bit much) but your lovely staff sorted it. Not sure a machine could do that…

[Catherine @Thepiratemum]

When @GillianA met #AlfredthePirate 💙💚.

We were delighted to quickly meet her, to discuss #NF1 and the wonderful work of @ChildhoodTT and other #neurofibromatosis charities as well as the current treatment available.

#benignisnotfine #NFawareness @BigBuedro #TheSaltPath

[Catherine @Thepiratemum]

@GillianA I hear our paths might cross in Somerset this weekend and my little #NF1 warrior would love to meet the lady who is on the @ChildhoodTT website with him, if you have time for a photo 💙💚 @BigBuedro #endNF #AlfredthePirate

[Catherine @Thepiratemum]

And I wondered why the car park was empty in peak Christmas shopping period! The poor elderly ladies in front of us in the queue probably got the same £100 fine. #eurocarparks @Eurocarparks_CS should be ashamed. @sandwellcouncil take note.

[Catherine @Thepiratemum]

Disgraceful behaviour by @Eurocarparks_CS in @WestBromwichTC. Pay machine faulty, screen not working, so can’t see it’s not taken contactless payment…then receive fine and appeal rejected because I didn’t pay! Other shoppers said it’s a known cash cow so they don’t want to fix!

[Catherine @Thepiratemum]

Good luck for the final push @pedalsingh. Let’s hope there’s a warm welcome from @Wolves and @ChelseaFC when you reach the finish line!

@SoccerSaturday @BBCSport @AlexScott @BBCBreakfast @DementiaUK

[Manny Singh Kang @pedalsingh]

SIX MORE MILES
LIMPING
I need some ice @ChelseaFC

[Catherine @Thepiratemum]

@BBCNews Just watched your moving feature re: the families whose lives are devastated by #dementia. You might be interested in @pedalsingh challenge. Day 1 done. Just another 1.5 to go… #wolves2Chelsea @DementiaUK #fundraising #Awareness

[Manny Singh Kang @pedalsingh]

YESSSSSS DAY 1!!!! GET IN
OMG don't do this ever!
56.7 miles (92km)
117000 steps
17hrs 15mins
7415 Calories
@DementiaUK
https://t.co/mRhEEM2re4

[Catherine @Thepiratemum]

@Glos_Police @HighwaysSWEST @HighwaysWMIDS @NationalHways There’s a wheelie bin obstructing Lane 1 of #m5 between @glouc_services and j13. Traffic swerving to avoid. @BBCGlos

[Catherine @Thepiratemum]

@Wolves Meet #AlfredthePirate. He has #NF1 and #glaucoma so wears a pirate patch every day. He’s loving @Raul_Jimenez9 new pirate look! https://t.co/pT0rUe0ak5

[Catherine @Thepiratemum]

@ChildhoodTT @ADogsTrail 💚💙

[Hill Avenue Academy @HillAveAcademy]

Congratulations to one of our amazing students who raised £170 for the Childhood Tumour Trust, which supports children with Neurofibromatosis (NF1). Originally meaning to walk 5k, he walked 18km across the weekend,visiting 106 Snoopy statues! Well done Alfred! We are very proud!

[Catherine @Thepiratemum]

@WMPHistory Are you watching @BBC_ARoadshow? Maybe you’d fancy that helmet for your collection!

[Catherine @Thepiratemum]

Can anyone who lives in #Dover or has been travelling to @Port_of_Dover tell me if you can easily access port from the town or do you need to head back to motorway and join queues? We need to head into town earlier in day before evening ferry @POferriesupdate @DFDSUKUpdates

[Catherine @Thepiratemum]

@HighwaysWMIDS @GreatOrmondSt @warkspolice @CMPG @Traffic_M40 Thanks all. We made it just in time 💜.

[Catherine @Thepiratemum]

Any news on #m40 south by #warwickservices? Currently stuck between j14 and j13 and trying to get to @GreatOrmondSt. Thanks. @warkspolice @CMPG @Traffic_M40 @HighwaysWMIDS

[Catherine @Thepiratemum]

@HighwaysWMIDS @GreatOrmondSt @warkspolice @CMPG @Traffic_M40 We are by the services now so hoping we get through soon! 18 months we’ve waited for this appointment so can’t miss it now!!!!

[Catherine @Thepiratemum]

@neilsta84 @GreatOrmondSt @warkspolice @CMPG @Traffic_M40 @HighwaysWMIDS 😬😬😬😬 thank you

[Catherine @Thepiratemum]

@EddiesNF1Diary @HelpAtGeorge @ChildhoodTT @NervetumoursUK Thanks! That’s the one! I know #alfredthepirate would love one!

[Catherine @Thepiratemum]

@Georgeatasda love the #visibledifference t-shirt you’ve started to stock for young girls. Is there any possibility of a boys version please? I’d ❤️ one for my son with #NF1. @ChildhoodTT @asda @NervetumoursUK #alfredthepirate