Rory Tierney

Searching for a solution, hoping for a cure, enjoying the fun of Pradar Willi Syndrome one day at a time. When will we win the War on Hunger? All cures welcome.

[NewstalkFM @NewstalkFM]

The world’s first Prader-Willi syndrome respite centre opened in Laois over the weekend.
https://t.co/jkKyYeYSF9

[Rory Tierney @TigerSurgeon]

#AgainstTheHead England italy twice?? Would rather watch Ireland France twice @rterugby Any chance of seeing the Finn-show v Wales?

[Rory Tierney @TigerSurgeon]

3 new posts from #thelodgerandus to remember our Diagnosis day 10 years ago today. #praderwillisyndrome #thefutureisbright #pws

https://t.co/V0IV79cEv8

https://t.co/BLvZVp8YTg

https://t.co/wVKCLoq2vd

[Prader-Willi Ireland @PWSAI]

. @alpine2010 and her daughter Fianna McHugh speak about #praderwillisyndrome #pws on @IrelandAMVMTV

[Prader-Willi Ireland @PWSAI]

You can listen to @emwa83 and @popsbren speaking about #praderwillisyndrome #pws with @cmckpresents on @NewstalkFM here.

https://t.co/YdMX6tlKEV

[Prader-Willi Ireland @PWSAI]

Check out @annosmile1 speaking with @SeanMoncrieff about #praderwillisyndrome #pws
https://t.co/WDd2E70IEI

[Prader-Willi Ireland @PWSAI]

James O'Brien speaking to the group about the Advocacy group set up in Australia for people with #praderwillisyndrome at @ipwso #ipwsoconference2022

[Prader-Willi Ireland @PWSAI]

Richard Tallon speaks to the SUAS group on his experiences with advocacy groups

#ipwsoconference2022
#praderwillisyndrome
#pws
@ipwso

[IPWSO @ipwso]

Thank you to @rodericogorman for closing the first day of the Parents #PraderWilliSyndrome conference today as part of #IPWSO2022. @PWSAI

[IPWSO @ipwso]

In the build up to #IPWSO2022 conference, IPWSO CEO @MHughesIrl talks about her family’s experiences with #PraderWilliSyndrome.

[Prader-Willi Ireland @PWSAI]

@ipwso @novonordisk @Radius_Health @fpwr @PWSAUSA @friendsofipwso @Saniona_AB @OT4Bfrance @epmip Looking forward to a fantastic #pws @ipwso conference in #Limerick #Ireland this week! #IPWSO2022
The weather looks likely to be kind too!

[Ireland AM @IrelandAMVMTV]

Coming up tomorrow 🫶🏻

💄We chat to one beauty lover who spent a whole year weaning herself off fake tan

👧🏻We speak to a very special young girl who has Prader-Willi syndrome as she hopes to stamp out the stigmas

🌹We've all the gossip from the Love Island Villa

#IrelandAM

[Prader-Willi Ireland @PWSAI]

Amazing!! Thanks so much for all the support @UlyssesNeuro 🧡🧡

[Prader-Willi Ireland @PWSAI]

Are you a member of a Multidisciplinary Team supporting a person with Prader-Willi Syndrome? You’re invited to attend the @ipwso Conference Interdisciplinary Day on Saturday 9th July in @UL, open to all professionals who support children & adults with PWS https://t.co/ZmBJnatGj5

[Prader-Willi Ireland @PWSAI]

Early bird rate for the @ipwso International Conference ends on April 7th. You can register online now! https://t.co/FbG7ECY7pe

[Rory Tierney @TigerSurgeon]

Great to meet @AnneRabbitte today to discuss #pws at the official opening of @Resilience_ie Lemongrove. Fantastic work done by the team there in setting up excellent #PraderWilliSyndrome appropriate residential facilities. The future is bright. @PWSAI

[Rory Tierney @TigerSurgeon]

@IWCare Currently experiencing brown discoloured water in Rosscahill Galway which is not clearing when tap is left running. Picture in PM

[Rory Tierney @TigerSurgeon]

Myself and @emwa83 giving this a shot.
Sponsor us here https://t.co/DDtGyvm88p #GoFundMe

[Rory Tierney @TigerSurgeon]

It's been a very long time.... there's an update on The Lodger and Us

https://t.co/2c5vFxarRR