Timothy Barrett

Professor of paediatrics, University of Birmingham

[Timothy Barrett @Tim_Barrett2]

#WHFEvents Westminster Health Forum on rare diseases great presentation by Prof Santosh Kings College London addressing mental health problems in rare diseases

[Timothy Barrett @Tim_Barrett2]

Rare Disease Research U.K. brings together rare disease researchers- https://t.co/RsqGdnejVH.U.K. And first newsletter

[Timothy Barrett @Tim_Barrett2]

Imagine getting life-saving drugs to sick people without relying on big pharma? We may have found a way https://t.co/B0P7Nx9yUe

[Alström Syndrome UK @AS_UK]

Today is World #AlströmSyndrome Day!

Celebrate the Birthday of Carl Henry Alström who first discovered the Syndrome.
Why not donate to one of the rarest conditions in the world, and help support families with this complex condition.

https://t.co/9paUhtEWbV

[Timothy Barrett @Tim_Barrett2]

Thankyou @jennyprigg and all rare disease team at UoB and our partner hospitals @BWC_NHS @uhbtrust @BHPComms and patient support groups @AS_UK @WolframSyndUK @bbs__uk this award will be a step change for West Midlands rare disease translational research

[Cancer and Genomic Sciences @IcgsUob]

New £12M research centre will improve the efficiency of rare disease trials to unlock more tests and treatments, great team effort by @Tim_Barrett2 Martin Higgs @kearns_pam @unibirm_MDS @unibirmingham https://t.co/TjoWB1Ydxt

[Timothy Barrett @Tim_Barrett2]

LifeArc CEO Stephane Maikovsky announces launch of Rare Disease Translational Research Centres, including consortium Uni Birmingham, Belfast and Newcastle to speed up delivery of clinical trials @lifearc1 @unibirm_MDS @IcgsUob @GeneticAll_UK

[Josie Clarkson @JosieClarkson8]

Just heard @Dr_LaurenQuinn present at #DUKPC on @elsadiabetes, a project #screening children for #Type1Diabetes which is co-funded by @JDRFUK and @DUK_research 🤝💙

Learn more and sign up: https://t.co/SEOJu7dmai

[Timothy Barrett @Tim_Barrett2]

Really helpful aide memoir when talking with children with diabetes from diverse populations - thanks May! @mayng888 #DUKPC

[Timothy Barrett @Tim_Barrett2]

#DUKPC great talk by Dr Jess Wheeler highlighting inequalities in diabetes outcomes for children of different heritage

[Timothy Barrett @Tim_Barrett2]

@RDRUKHub Great presentation by Victoria Homer and Alex Wimbush on projects in the MRC Innovative Trial Designs in Rare Diseases node at Rare Disease Research U.K. first conference @IcgsUob @unibirm_MDS

[NIHR BioResource @NIHRBioResource]

How do we improve outcomes for children & young people from Black and ethnic minority backgrounds? Session led by ⁦⁦@barnardos⁩ with their young ambassadors and ⁦@NHS_RHO. #KFTimeForAction

[Cancer and Genomic Sciences @IcgsUob]

On #IWD we celebrate our Institute Director @kearns_pam. Her extensive research into children’s #cancer research & fundraising activities have been praised by @LPTrustUK @CRCTU @unibirm_MDS https://t.co/QiZO5fNaIL

[Timothy Barrett @Tim_Barrett2]

#REMEDi4ALL
Helpful talk from Catriona Crombie of LifeArc about upcoming research funding opportunities for translational research, and repurposing toolkit-@lifearc1 - available via their website

[Timothy Barrett @Tim_Barrett2]

#REMEDi4ALL
Drug repurposing conference building an international multidisciplinary community

[Alström Syndrome UK @AS_UK]

AS Global Conference Films and Graphics are out NOW!

We hope you all enjoyed the AS Global Conference in January as much as we did. Don't worry if you missed any of the sessions, as you can now find them all on the website.

#AlstromSyndrome

https://t.co/oMa7Sntg3O

[Mediaplanet UKIE @MediaplanetUK]

Our #RareDiseases24 campaign is here 🧫🔬
Grab your copy in today's @guardian and online at https://t.co/SOSmVZFv4o featuring Nick Meade with @GeneticAll_UK

#RareDiseaseDay #geneticresearch #healthcare

[Timothy Barrett @Tim_Barrett2]

#RareDiseaseDay #unibirm_MDS @WolframSyndUK @BHPComms #IcgsUob @BWC_NHS Birmingham making a real-world impact on rare diseases, with a multi-facility infrastructure for research to help find new treatments for PLWRC https://t.co/7Ffqm3RINh

[Beacon for Rare Diseases @RareBeacon]

Meet the rare disease path speakers at #iDR24! 🗣️

Tim will discuss his experience searching for a repurposing candidate through to the closing stages of a clinical trial, without support from pharma.

Find out more:

https://t.co/G2aDX7KTj2

[REMEDi4ALL @REMEDi4ALL]

Join experts at #iDR24 discussing the present and future of #DrugRepurposing, including:
👉Getting repurposed drugs to patients
👉The challenge of translation
👉The LoDoCo case
👉Challenges & opportunities
Learn more & book tickets here:
https://t.co/9Q2E4yXwxs

[Exeter Rare Disease @RDExeter]

A great opportunity to engage in the discussion about the use of WGS for newborn screening in the @NHSgms