#WHFEvents Westminster Health Forum on rare diseases great presentation by Prof Santosh Kings College London addressing mental health problems in rare diseases
Today is World #AlströmSyndrome Day!
Celebrate the Birthday of Carl Henry Alström who first discovered the Syndrome.
Why not donate to one of the rarest conditions in the world, and help support families with this complex condition.
https://t.co/9paUhtEWbV
New £12M research centre will improve the efficiency of rare disease trials to unlock more tests and treatments, great team effort by @Tim_Barrett2 Martin Higgs @kearns_pam @unibirm_MDS @unibirmingham https://t.co/TjoWB1Ydxt
LifeArc CEO Stephane Maikovsky announces launch of Rare Disease Translational Research Centres, including consortium Uni Birmingham, Belfast and Newcastle to speed up delivery of clinical trials @lifearc1 @unibirm_MDS @IcgsUob@GeneticAll_UK
@RDRUKHub Great presentation by Victoria Homer and Alex Wimbush on projects in the MRC Innovative Trial Designs in Rare Diseases node at Rare Disease Research U.K. first conference @IcgsUob @unibirm_MDS
How do we improve outcomes for children & young people from Black and ethnic minority backgrounds? Session led by @barnardos with their young ambassadors and @NHS_RHO. #KFTimeForAction
On #IWD we celebrate our Institute Director @kearns_pam. Her extensive research into children’s #cancer research & fundraising activities have been praised by @LPTrustUK@CRCTU @unibirm_MDS https://t.co/QiZO5fNaIL
#REMEDi4ALL
Helpful talk from Catriona Crombie of LifeArc about upcoming research funding opportunities for translational research, and repurposing toolkit-@lifearc1 - available via their website
AS Global Conference Films and Graphics are out NOW!
We hope you all enjoyed the AS Global Conference in January as much as we did. Don't worry if you missed any of the sessions, as you can now find them all on the website.
#AlstromSyndrome
https://t.co/oMa7Sntg3O
Meet the rare disease path speakers at #iDR24! 🗣️
Tim will discuss his experience searching for a repurposing candidate through to the closing stages of a clinical trial, without support from pharma.
Find out more:
https://t.co/G2aDX7KTj2
Join experts at #iDR24 discussing the present and future of #DrugRepurposing, including:
👉Getting repurposed drugs to patients
👉The challenge of translation
👉The LoDoCo case
👉Challenges & opportunities
Learn more & book tickets here:
https://t.co/9Q2E4yXwxs