Timo Tolppa

Addressing research inequities & supporting patient engagement in clinical trials -🧑🏻‍⚕️💼 @AsiaCritical 🎓 @UBC 🙋🏻🎬 @GHFilm #pragmatictrials #criticalcare

[Timo Tolppa @TimoTolppa]

The first-ever patient and public involvement and engagement (#PPIE) summit in #Pakistan happening right now at Ziauddin University

Follow the session in this thread! 🧵

[The Global Health Network @info_TGHN]

How can uptake of research into policy be strengthened?

Join the next Mesh webinar on Advisory Groups for Research in 🇮🇳🇵🇰 & 🇻🇳. Experts will share how advisory groups have been valuable in improving research in their fields.

🗓️27 March
Register now: https://t.co/ECtDOOzAd2

[Timo Tolppa @TimoTolppa]

Huge thanks to @remap_cap for being a champion for patient and public involvement and engagement in #criticalcare

[remap-cap @remap_cap]

Keeping patients, their families and the public engaged is a strength of REMAP-CAP.

🇵🇰 The Pakistani Patient & Public Involvement & Engagement group's 2024 summit gained national news coverage and presented networking opportunities.

👉 https://t.co/9somk69lvW

#10YearsREMAPCAP

[Timo Tolppa @TimoTolppa]

Thanks to @ISARIC1 for highlighting our public engagement summit in Pakistan in this blog post as well as supporting our activities to bring the patient voice into clinical research

Read more here: https://t.co/FzDZdeSoGA

#PPIE #communityengagement

[Timo Tolppa @TimoTolppa]

A compelling opinion piece shared by my friend and colleague @bharathkumartv: https://t.co/KDrk6mP70C

"To make global health truly participatory, the world’s health institutions must adopt a radical approach to listening to everyday people"

[Timo Tolppa @TimoTolppa]

Today - Register here: https://t.co/BbrPFFsgLH

@drarishay and I will share our journey in public engagement in Pakistan with researchers in Brazil. Excited for this South-to-South collaboration and mutual learning with @bricnetbr @SBPPC2016 @Insper and others

[Timo Tolppa @TimoTolppa]

Great to end my day reading messages of hope from leading individuals working on health #equity - A field which can often seem like a long list of issues that haven't been solved

[anil oza @AnilOza16]

For @sciam's solutions to health equity package, we asked a handful of experts what is giving them hope for health equity

Here's what @paimadhu @seyeabimbola @RRHDr @BarneyGrahamMD @DrAlethaMaybank & Wafaa El-Sadr had to say

[Timo Tolppa @TimoTolppa]

Great to see UK regulators creating guidance to support the design of more inclusive trials! The challenge will be in the uptake, particularly by those who don't already consider diversity

Will contribute to this consultation with @drarishay & encourage others to do the same

[Trial Forge @Trial_Forge]

The UK's Health Research Authority (HRA) plus Medicines and Healthcare products Regulatory Agency (MHRA) have just launched a consultation on plans for Inclusion and Diversity Plans to be part of approvals submissions.

See https://t.co/XDk2zn0Z6B

Consultation closes 9/12/2024

[Timo Tolppa @TimoTolppa]

Just registered for this! Really excited to learn more, particularly about the patient and public engagement component of this exciting project

Might be of interest to @drarishay and colleagues in the @africacritical network

[Farah Lunat @F_lunat]

An absolute pinch me moment to have the main ROSHNI2 paper published in @TheLancet . This marks a shift in the years of conversations around 'hard to reach' communities.

[Timo Tolppa @TimoTolppa]

@eleanor_mitch @ictmc2024 @drarishay Thank you! That means a lot

[Timo Tolppa @TimoTolppa]

Last week I attended @ictmc2024 where @drarishay and I had the privilege of sharing our work with three posters and two oral presentations

Highlights from our work on pragmatic trials, consent redesign, public engagement and representativeness in trials in South Asia below 🧵

[Timo Tolppa @TimoTolppa]

Looks like a great event! Unfortunately I won't be in Europe, but would encourage others to attend

[HRB-TMRN @hrbtmrn]

✨Join us to celebrate a decade of #impact of #trialsmethodology research in Ireland via the @hrbtmrn.

🛣️Our journey began in 2014 & it's time to reflect on the past & look forward to exciting future innovations.

💻Register: https://t.co/8yV5xxlM1F

[Timo Tolppa @TimoTolppa]

All these pieces of work are hopefully contributing to a more efficient, ethical and socially responsible conduct of trials in South Asia

We hope to publish much of this work soon. Stay tuned and follow me and @drarishay if you'd like to keep up to date

[Timo Tolppa @TimoTolppa]

Empowering Patients - Revising Informed Consent Processes for Critical Care Trials in Pakistan

Our public group has worked with us to make informed consent for @MegaROXtrial and @remap_cap more culturally sensitive and relevant in the Pakistani context

[Timo Tolppa @TimoTolppa]

Attended the first ECHO learning platform for trialists organised by @CANTAPTALENT

A clear informative talk by @lmbuagbaw on pilot & feasibility studies. This interesting @PLOSONE article came up when discussing how such studies may prevent research waste - Worth a read

[Shaun Treweek @shauntreweek]

@ictmc2024's final keynote speaker @kamleshkhunti is guest editor with @ShobaDawson of a new Trials journal article collection called 'Improving equity, diversity, and inclusion in randomised trials'

https://t.co/uaepbzRRur

Submission deadline 30th June 2025.

#ICTMC2024