Tog4ShortLivesPolicy

Tweeting about UK policy and politics affecting children and young people who are expected to have short lives and all those who support, love and care for them

[Together for Short Lives @Tog4ShortLives]

In just two weeks, the APPG for Children Who Need Palliative Care will host a reception to mark Children’s Hospice Week.

This is a vital opportunity for MPs to hear directly from parents and hospices.

👉 Invite your MP today: https://t.co/SHEztYeFnP

[Tog4ShortLivesPolicy @Tog4Policy]

Our CEO, Nick Carroll, spoke to @LBC about the growing funding pressures on children’s hospices. Demand and costs are rising, but statutory funding still falls short. Recent investment is welcome, but long‑term, sustainable funding is essential.

[Together for Short Lives @Tog4ShortLives]

Thank you to everyone who’s already shared their experiences in our survey. Your voices are vital in helping shape our advocacy.

If you haven’t yet, there’s still time to take part.

📢 Parents and carers: please share your experiences here 👉 https://t.co/S5qpPHcO2W

[Together for Short Lives @Tog4ShortLives]

🚨 Help make the 10-Year Health Plan a reality for seriously ill children

On 18 November, the APPG for Children Who Need Palliative Care is holding a drop-in event and roundtable meeting.

👉 We need your help to get MPs there. Invite your MP here: https://t.co/SHEztYeFnP

[Tog4ShortLivesPolicy @Tog4Policy]

Right now, families of disabled children are being let down by a broken education system. That’s why we’re backing the @DCPcampaign.

With SEND reforms on the horizon, we have a once-in-a-generation chance to get it right.

✍️ Write to your MP: https://t.co/67I7BORSSd

[Together for Short Lives @Tog4ShortLives]

For children like Archie, children’s hospices are a lifeline.

But 89% in England say they’ll spend more than they bring in this year – just to stay open.

Without more Government funding, essential services could be lost.

Read our new report: https://t.co/TngookxJMC

[Together for Short Lives @Tog4ShortLives]

To give all children, including those who are seriously ill, the opportunity to succeed, ministers must act now to fill the funding gaps they face. Read our full reaction to today’s #spendingreview here 👉🏼 https://t.co/0b9qwbQeUW

[Together for Short Lives @Tog4ShortLives]

We’ve discovered something shocking 📢 Our new report reveals that seriously ill children's access to palliative care varies drastically depending on where they live. The UK's governments must act now. Read our full report 👉 https://t.co/RIQ6uXtonh

[Together for Short Lives @Tog4ShortLives]

⏳ Less than 2 weeks to go – will your MP stand up for seriously ill children?

Too many families are being let down by a postcode lottery in children’s palliative care. MPs must act.

Invite your MP to our crucial reception and push for change: https://t.co/g4DLQFB1lV

[Contact @contactfamilies]

Do you live in England WITHOUT an EHC plan in place for your child?

We want to find out more about your experiences of getting support for your child or young person’s special educational needs & disabilities (SEND) in England.

Complete the survey here: https://t.co/7sAe1JBzjA 🔗💚

[Together for Short Lives @Tog4ShortLives]

One month to go! Will your MP stand up for seriously ill children?

Too many families struggle to get the palliative care they need because of where they live. This postcode lottery must end.

Invite your MP to our crucial reception and push for change: https://t.co/SHEztYeFnP

[Together for Short Lives @Tog4ShortLives]

Thank you @Meg_HillierMP for highlighting the impact of assisted dying on seriously ill young people and their families on @BBCr4today this morning - a vital issue that we're asking MPs to address.

Listen back on BBC Sounds, from 1:32:56:
https://t.co/RxTbOHqtfJ

[Together for Short Lives @Tog4ShortLives]

���� 99,000 seriously ill children in the UK need better access to palliative care. Their support shouldn’t be a postcode lottery!

Ask your MP to attend the APPG for Children Who Need Palliative Care reception on 25 March 2025 and help push for change.

https://t.co/g4DLQFAtwn

[Together for Short Lives @Tog4ShortLives]

Our new findings reveal the hike in employer National Insurance Contributions (ENICs) will add £4.9m annually to children’s hospices’ costs. A staggering burden on services already facing rising costs and declining statutory funding.

[Together for Short Lives @Tog4ShortLives]

🚨 We’ve responded to the NHS 10-Year Plan consultation!

Thousands of families caring for seriously ill children can’t access the care they need. We’re calling for urgent action to close the funding gaps & ensure services are available for everyone.

https://t.co/bytnjyANIl

[Together for Short Lives @Tog4ShortLives]

We now urge MPs to improve the Terminally Ill Adults (End of Life) Bill for seriously ill children, young people and their families as it progresses to its Committee Stage following today’s vote in the House of Commons. Read our statement 👉🏼 https://t.co/JHJ3s92rM6

[Together for Short Lives @Tog4ShortLives]

This Friday, MPs will debate @kimleadbeater's Bill to legalise assisted dying. Write to your MP today to help ensure they consider the implications this Bill could have for seriously ill children and young people.

https://t.co/IAg1veMiHY

[Together for Short Lives @Tog4ShortLives]

🙌🏼 A campaign win, but more to do: yesterday, we were at Westminster pressing ministers to maintain the £25m Children’s Hospice Grant in England. Today, Health and Social Care Secretary @wesstreeting said he will make an announcement before Christmas, but that it will continue.

[Together for Short Lives @Tog4ShortLives]

📢 Great to be at Westminster today for an APPG for Children Who Need Palliative Care event. We called on ministers to act urgently to protect and maintain the £25m Children's Hospice Grant - and to commit to a review of children's palliative care funding in the NHS 10-year plan.

[Together for Short Lives @Tog4ShortLives]

Today @RachelReevesMP announced a series of measures which have potential to improve the lives of seriously ill children & their families. This must be the springboard for urgent action to sustainably fund #childrenspalliativecare. #Budget2024 reaction: https://t.co/xXhgEqxslR