TRCnet

Trent Regional Cleft Network supporting & treating those with cleft lip+/-palate in S.Yorkshire, Nottinghamshire,Derbyshire,Lincolshire and Leicestershire 2005

[Jason Neil-Dwyer @Jneildwy]

Trent Cleft Team doing their Toilet Roll Challenge to raise much needed funds for @CLAPACOMMUNITY @TrentCleftLP
We nominate you @CleftTeamWales @NewcastleCleft . What you got?
https://t.co/aKEd36p7Lu

[TRCnet @TrentCleftLP]

Trent Cleft Team doing their Toilet Roll Challenge to raise much needed funds for @CLAPACOMMUNITY

We nominate you @CleftTeamWales @NewcastleCleft

What you got?

https://t.co/EZJdUWMnpq

[TRCnet @TrentCleftLP]

Trent Cleft Team doing their Toilet Roll Challenge to raise much needed funds for @CLAPACOMMUNITY

We nominate you @CleftTeamWales @NewcastleCleft

What you got?

https://t.co/EZJdUWMnpq

[Jason Neil-Dwyer @Jneildwy]

@KWongRiffMD @anneklassen Great visual abstract summary of original Cleft-Q work #CFSGBI2019 https://t.co/kvwydNbi3y

[Jason Neil-Dwyer @Jneildwy]

Interesting data from ⁦@CleftCollective⁩ on Intelligability In Context at 3 years old with cleft palate 24% have difficulty being being understood by strangers. Similar to incidence VPI? #cfsgbi2019

[Dr Nicola Marie Stock @NicolaMarie]

Lovely animation by Suhaym Mubeen and the GOSH team to help patients understand the alveolar bone graft process: https://t.co/LOJsmGxRQl @CFSGBI #CFSGBI2019

[Jason Neil-Dwyer @Jneildwy]

@claire_cunniffe Gives an update on CLAPA at #CFSGBI2019 in year of CLAPA's 40th birthday. 40 years of making a difference to patients and families. #Awesome

[Jason Neil-Dwyer @Jneildwy]

Got a research question that could utilise the Cleft Collective Cohort Data - see more about accessing data https://t.co/TEyIWmrvDK #cfsgbi2019 @CleftCollective

[Sharynne McLeod @SharynneMcLeod]

The Intelligibility in Context Scale is free, available in over 60 languages and has been validated in English, German, Vietnamese, Cantonese, Jamaican, Fijian, Slovenian etc. https://t.co/X8CppD5m3r #CFSGBI2019

[Dr Nicola Marie Stock @NicolaMarie]

Excited to be working with @kennyardouin @CLAPACOMMUNITY on the CLAPA Adult Services Project. Looking forward to sharing detailed results in the near future with cleft teams @CFSGBI #CFSGBI2019

[Kenny Ardouin @kennyardouin]

Great first day at #CFSGBI2019 yesterday, lots of interesting research projects happening and it was a pleasure to be able to report back on the @CLAPACOMMUNITY Adult Research Project we’ve been working in with @NicolaMarie. Looking forward to learning more today! 🤓🙋🏼‍♂️👨🏼‍🎓

[Dr Nicola Marie Stock @NicolaMarie]

I'm an advocate of patient-first language "person with a cleft" rather than "cleft patient" @CFSGBI #CFSGBI2019

[Jason Neil-Dwyer @Jneildwy]

Great keynote of hugely impressive work changing the field completely #CFSGBI2019 by Mr Martin Snead founder of the award winning National Stickler Syndrome Diagnostic Service in Cambridge -Clinical and molecular genetics of Stickler syndrome https://t.co/IAoDGhCpxE

[Dr Nicola Marie Stock @NicolaMarie]

Fascinating keynote from Martin Snead @CFSGBI
on the importance of early diagnosis of Stickler's Syndrome #cfsgbi2019

[Jason Neil-Dwyer @Jneildwy]

Martin Snead summarises clinical flags to consider diagnosis of Sticklers Syndrome and when to refer for @CFSGBI. Really useful, great keynote. #CFSGBI2019

[Jason Neil-Dwyer @Jneildwy]

Dr Wang shows normative nasal emission and nasalance in non-cleft adenoidal regression using nasal emission system. An interesting tool that needs further examination. #CFSGBI2019 https://t.co/XRGGQ5cwfq #CFSGBI2019

[Jason Neil-Dwyer @Jneildwy]

@TomasBONeill that was the kind of candour about training that is needed to move the conversation on. Well done. 👍🏼 Super results 3.5% fistula rate, a great future indicator for your patients. Supports concept of geography of destiny 😄#CFSGBI2019 https://t.co/wX0zRBpcnz

[Prof Yvonne Wren FRCSLT @yvonnewren]

Another presentation by the @cleftcollective team about the genetics of face shape #cfsgbi2019 @stergiakouli #bigdata

[Jason Neil-Dwyer @Jneildwy]

When discussing facial phenotype this is an important concept -50 variables indentify facial difference ? #CFSGBI2019 The Code for Facial Identity in the Primate Brain https://t.co/4xudxvhoI2

[Prof Yvonne Wren FRCSLT @yvonnewren]

Sarah Lewis from @CleftCollective talking now on prenatal alcohol exposure and facial morphology #cfsgbi2019