Creating healing memories of your child even after their death can provide important experiences, memories and rituals to lean on during painful times, such as anniversaries or birthdays. Here are 5 ways to create memories of your precious child.
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Thank you to everyone who donated in memory of a precious baby in July! Giving an in-memory gift is a powerful way to make an impact on families in the Trisomy 18 community and honor your child’s legacy.
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Today, we would like to honor all of the babies with August birthdays or remembrance dates. We invite you to share your baby's name and their special date in the comments below.
Every moment with your child is a treasure but caring for a child with Trisomy 18 brings its challenges. There are so many decisions to make. Understanding your child’s diagnosis can go a long way to helping you navigate your role as a caregiver.
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What do parents of children with Trisomy 18 wish people knew about the condition? Our new blog post shares YOUR thoughts on the topic.
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Thank you to the Kimmel family for hosting the 12th Annual Ayla's 18 for Trisomy 18 today! The event honors their daughter Ayla, who passed away at two months old due to Trisomy 18. The Kimmels have raised over $124,000 to support our community!
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Explore our comprehensive resources for parents on everything from understanding how Trisomy 18 is diagnosed to what to do when you’re expecting a child who has been diagnosed with Trisomy 18 to navigating grief and planning memorials or remembrances.
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It can be hard to know what to say when a terrible tragedy like losing a child happens to someone you know and care about. Here are 6 things you should never say to a grieving parent–and 3 things you should.
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Sharing your journey with Trisomy 18 and your child’s story can provide an opportunity to help you process your experiences and heal the pain of this experience. https://t.co/gZsUoYFKYf
Finding out that your child has Trisomy 18 is incredibly difficult and overwhelming. You may feel a range of emotions. Here are some ways to help ensure you have the tools and resources you need to go through this gut-wrenching process.
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To all the Trisomy 18 fathers with an aching heart, we see you. Even if you don't feel like it, Father's Day belongs to you too. And we are here to walk this journey of grief with you, yesterday, today and every day.
Trisomy 18 also affects the extended family members and the healthcare professionals who help care for them. We offer a private group for family members and healthcare professionals to learn how to support parents. https://t.co/cOijl0iYax