Kaitlyn’s Chronic Adventures

Raising awareness for invisible and chronic illnesses by keeping it real

[Kaitlyn’s Chronic Adventures @TrustingMyGut18]

It appears that while I took a break from Twitter to focus on my health, I was hacked… hopefully I got everything fixed, but we shall see… anyways, I’m back!

[Kaitlyn Trevathan @ktrevathan46]

Did you know that July is Disability Pride Month? Let's celebrate and raise awareness together! Over one billion people worldwide live with disabilities, according to the U.S. Embassy.

[Continued in Thread]

[David Ziring @dziring]

@jmmh123 Patients with IBD are living in a constant state of anxiety, waiting for the next shoe to drop. That shoe should not be their prescribed medication.

[Natalie Hayden @nataliesparacio]

Mental health often takes a major hit when you're diagnosed and live with a chronic illness like IBD. Check out my one-on-one interview with esteemed IBDologist @GutZaz about the science behind the struggle. https://t.co/ieIp1c3U8v

[Kaitlyn’s Chronic Adventures @TrustingMyGut18]

So thankful for my amazing #servicedog who helps with both my #POTS and Cyclic Vomiting Syndrome. Check out this tik tok of him alerting and helping me through a POTS episode!

https://t.co/KpChkOCMdo

[Kaitlyn’s Chronic Adventures @TrustingMyGut18]

@nataliesparacio I have Crohn’s and was put on mesalamine and prednisone before biologics were ever an option🙃

[Kaitlyn’s Chronic Adventures @TrustingMyGut18]

“Hey how’s are you?”

It’s such a simple but complicated question, yet so hard to answer.

https://t.co/hXtnLPjVYA

[Dysautonomia Intl. @Dysautonomia]

October is #DysautonomiaAwarenessMonth! Dysautonomia is a group of disorders associated with a malfunction of the Autonomic Nervous System. Learn more at https://t.co/sPvAnCv5n9.

[Eric Feigl-Ding @DrEricDing]

Swabbing correctly for #COVID19? Most are not. @IamKGB tests—

1) VERY POS—back of throat, cheeks, roof of mouth & both nasopharyngeal w swab held in place for 10s.
2) NEG—outside portion of nostrils
3) NEG—anterior nares/nasal septum
4) FAINT POS—throat & cheeks
5) Repeated #1

[Dysautonomia Intl. @Dysautonomia]

Swedish researchers just published the first #POTS symptom score, based on the 12 most common symptoms reported by 1000s of patients in the Big POTS Study, a collaboration between Dysautonomia International, Vanderbilt & Univ of Calgary. This is progress!
https://t.co/bTD5Xlz5HQ

[Kaitlyn’s Chronic Adventures @TrustingMyGut18]

Check out my #servicedog performing his tasks for #POTS today! So thankful to have him

https://t.co/AfpCKw9wOw

[Crohn's & Colitis Foundation @CrohnsColitisFn]

Researchers are exploring the connection between the foods people eat, the microbiome in the gut, & IBD. Foundation-funded research is also focusing on children who reintroduce solid foods after reaching remission on an exclusively liquid diet. Learn more: https://t.co/GuBfnIxaRz