CDG UK

CDG UK is the national charity supporting patients and families affected by Congenital Disorders of Glycosylation. Registered Charity Number 1191342.

[CDG UK @UK_CDG]

Together forever #CDG

[CDG UK @UK_CDG]

#BuiltDifferent #SeeTheUnseen #TodayWeSeeCDGTogether #CDGAwarenessDay #RareDiseaseAwareness #CDGUK https://t.co/QiFcJ1ELq6

[CDG UK @UK_CDG]

#BuiltDifferent #SeeTheUnseen #TodayWeSeeCDGTogether #CDGAwarenessDay #RareDiseaseAwareness #CDGUK https://t.co/QiFcJ1ELq6

[CDG UK @UK_CDG]

Join us by sharing what CDG means to you and helping us raise awareness far beyond our community.

To learn more about CDG, support families, or find out how you can help, visit our website: https://t.co/QiFcJ1ELq6

Together, today we see CDG. 💚

#BuiltDifferent

[CDG UK @UK_CDG]

Today, we want to make *the unseen seen*.
We want families to feel recognised, understood and supported.
And we want the world to learn more about life with CDG.

Join us by sharing what CDG means to you and helping us raise awareness far beyond our community.

[CDG UK @UK_CDG]

💚Today on CDG Awareness Day, we are coming together to celebrate every person and family affected by CDG 💚

CDG is rare.
CDG is complex.
CDG is often unseen.

But every individual with CDG is *built different* — with their own strengths, challenges and personalities…

[James Nurse @DrJNurse]

🎙️ New JIMD Podcast!
Eva Morava & Irena Muffels are back to ask a massive question:
How do we treat all the CDGs?

Organoids, AI, basket trials & the three pillars shaping the therapeutic future of congenital disorders of glycosylation.
Listen now: https://t.co/8956CLTduT

#CDG

[CDG UK @UK_CDG]

🎈

[Richard Clark @glassboy68]

Three Peaks Challenge completed in 23 hours, 30 minutes, despite rain and gale force winds on all three stages. Really proud of these lads! You can still donate to @UK_CDG here... https://t.co/NEMqlfWOT0