USTMA Alliance and Consortium

The mission the USTMA Consortium is to improve outcomes in through observational studies, clinical trials of novel therapies and translational research.

[USTMA Alliance and Consortium @USTMAConsortium]

Earlier this month I had the honor of presenting our data from the FAST4TMA program during the 2023 American Society of Hematology conference. Thank you to everyone who makes this possible.

[VUGA Media Group @vugamediagroup]

The groundbreaking initiative, called FAST4TMA, will be launched for patients across the U.S. on June 24, 2023.
GROVEPORT, OHIO, UNITED STATES, June 23, 2023/EINPresswire.com/ -- The United States Thrombotic Microangiopathies Alliance (USTMA)

https://t.co/o4H6GsGt2y

[USTMA Alliance and Consortium @USTMAConsortium]

https://t.co/w40IxXPVgh
Incredible new program! Free rapid ADAMTS13 testing, both inpatients and outpatients, for FREE!

[Shruti Chaturvedi @BloodClotDoc]

Time to focus on survivorship in #TTP.

🧠 Silent cerebral infarcts (MRI ischemia but no overt stroke) are common and associated with major cognitive impairment.

🎯 targeting vascular risk factors and ADAMTS13 may help

@USTMAConsortium @ReeWynn @TTPFoundation

[Anuja Java, MD (she/her) @anuja_java]

@USTMAConsortium patient meeting coming soon!!!

Don’t miss this opportunity to meet the experts & connect with others.

Register now!!

https://t.co/6jO95yj2Df

[Anuja Java, MD (she/her) @anuja_java]

Heartening experience talking to a whole group of patients and caregivers about #complement & #genetics in #aHUS

“Medical education at its best begins with the patient, continues with the patient, and ends with the patient.” 
@aHUSAllianceAct @AtypicalHUS

[Shruti Chaturvedi @BloodClotDoc]

Such a pleasure and privilege to meet with a fantastic group of #rare patients and #caregivers.

@USTMAConsortium @HopkinsHeme

[USTMA Alliance and Consortium @USTMAConsortium]

Check out the amazing segment on US Thrombotic Microangiopathy Consortium's groundbreaking work on https://t.co/92eRSVThAw. Learn about the latest TMA research and treatment options that make a difference. Don't wait any longer, visit https://t.co/vvKhsqXJof now!

[USTMA Alliance and Consortium @USTMAConsortium]

development and MAHA. #Advancements #TedDanson #TMA #USTMA #MedicalResearch #Collaboration #Healthcare #ImprovingOutcomes

[USTMA Alliance and Consortium @USTMAConsortium]

📣 Don't miss the upcoming episode of Advancements with Ted Danson on Sat, Apr 15 at 8pm ET! Learn about thrombotic microangiopathy (TMA) and the latest research efforts to improve outcomes for patients. Hear from experts at USTMA and gain valuable insights into microthrombi

[USTMA Alliance and Consortium @USTMAConsortium]

So mark your calendars for April 15th and tune in to Bloomberg TV to learn more about the amazing work being done by USTMA. You won't want to miss it! https://t.co/sMuvaAeIPU
#USTMA #thromboticmicroangiopathy #advancementswithteddanson #bloombergtv

[USTMA Alliance and Consortium @USTMAConsortium]

I wanted to let you know about an exciting event coming up on April 15th - the United States Thrombotic Microangiopathy Alliance and Consortium (USTMA) will be featured on the Advancements with Ted Danson show on Bloomberg TV!

[Richard Burwick, MD, MPH @RichardBurwick]

After listening to the #NephMadness PodCrawl, I have decided to pick Secondary TMA to pull the upset over Primary TMA

This was an easy choice. The committee included Preeclampsia, HELLP, and Pregnancy-associated aHUS in this group. Do not eliminate pregnancy TMA in 1st round!

[Shruti Chaturvedi @BloodClotDoc]

Immune thrombotic thrombocytopenic purpura: Spotlight on long-term outcomes and survivorship

https://t.co/uggXDoCRR0

@USTMAConsortium @TTPFoundation

[USTMA Alliance and Consortium @USTMAConsortium]

Let's raise awareness and support research efforts to find better treatments and cures. #RareDiseaseDay #TMA #ShowYourRare

[USTMA Alliance and Consortium @USTMAConsortium]

Happy Rare Disease Day! Let's take a moment to recognize the millions of individuals around the world who are affected by rare diseases, including thrombotic microangiopathy (TMA). Despite its rarity, TMA can have a devastating impact on those affected by it.

[Shruti Chaturvedi @BloodClotDoc]

Strategies to optimize long term #iTTP outcomes highlighted in our new review. https://t.co/LtHjaQkzol

#TTP #survivorship #RareDisease @TTPFoundation @USTMAConsortium @TTP_Network @SSukumarMD

[USTMA Alliance and Consortium @USTMAConsortium]

https://t.co/SUQw6DPmAW
This study was approved by the Johns Hopkins University institutional review board (IRB00289331).

[USTMA Alliance and Consortium @USTMAConsortium]

Are you a woman who has had TTP? Researchers are interested in your experiences with care after TTP, especially regarding pregnancy (or deciding whether you want to or should get pregnant).
Please take a few minutes to share your perspective with this in this research survey.

[USTMA Alliance and Consortium @USTMAConsortium]

@DebraJepson Amazing!

[USTMA Alliance and Consortium @USTMAConsortium]

This month is meant to bring awareness to the impact of Rare Disease. Thrombotic Microangiopathies, such as TTP or aHUS, are not only rare but have lasting impact. Please share with us how you will acknowledge this month!