The mission the USTMA Consortium is to improve outcomes in through observational studies, clinical trials of novel therapies and translational research.
Earlier this month I had the honor of presenting our data from the FAST4TMA program during the 2023 American Society of Hematology conference. Thank you to everyone who makes this possible.
The groundbreaking initiative, called FAST4TMA, will be launched for patients across the U.S. on June 24, 2023.
GROVEPORT, OHIO, UNITED STATES, June 23, 2023/EINPresswire.com/ -- The United States Thrombotic Microangiopathies Alliance (USTMA)
https://t.co/o4H6GsGt2y
Time to focus on survivorship in #TTP.
🧠 Silent cerebral infarcts (MRI ischemia but no overt stroke) are common and associated with major cognitive impairment.
🎯 targeting vascular risk factors and ADAMTS13 may help
@USTMAConsortium@ReeWynn@TTPFoundation
@USTMAConsortium patient meeting coming soon!!!
Don’t miss this opportunity to meet the experts & connect with others.
Register now!!
https://t.co/6jO95yj2Df
Heartening experience talking to a whole group of patients and caregivers about #complement & #genetics in #aHUS
“Medical education at its best begins with the patient, continues with the patient, and ends with the patient.”
@aHUSAllianceAct@AtypicalHUS
Check out the amazing segment on US Thrombotic Microangiopathy Consortium's groundbreaking work on https://t.co/92eRSVThAw. Learn about the latest TMA research and treatment options that make a difference. Don't wait any longer, visit https://t.co/vvKhsqXJof now!
📣 Don't miss the upcoming episode of Advancements with Ted Danson on Sat, Apr 15 at 8pm ET! Learn about thrombotic microangiopathy (TMA) and the latest research efforts to improve outcomes for patients. Hear from experts at USTMA and gain valuable insights into microthrombi
I wanted to let you know about an exciting event coming up on April 15th - the United States Thrombotic Microangiopathy Alliance and Consortium (USTMA) will be featured on the Advancements with Ted Danson show on Bloomberg TV!
After listening to the #NephMadness PodCrawl, I have decided to pick Secondary TMA to pull the upset over Primary TMA
This was an easy choice. The committee included Preeclampsia, HELLP, and Pregnancy-associated aHUS in this group. Do not eliminate pregnancy TMA in 1st round!
Happy Rare Disease Day! Let's take a moment to recognize the millions of individuals around the world who are affected by rare diseases, including thrombotic microangiopathy (TMA). Despite its rarity, TMA can have a devastating impact on those affected by it.
Are you a woman who has had TTP? Researchers are interested in your experiences with care after TTP, especially regarding pregnancy (or deciding whether you want to or should get pregnant).
Please take a few minutes to share your perspective with this in this research survey.
This month is meant to bring awareness to the impact of Rare Disease. Thrombotic Microangiopathies, such as TTP or aHUS, are not only rare but have lasting impact. Please share with us how you will acknowledge this month!