UK CFPG

The United Kingdom and Ireland Cystic Fibrosis Pharmacy Group. Pharmacists and Pharmacy Technicians dedicated to the care of all people with cystic fibrosis.

[Cystic Fibrosis Trust @cftrust]

Listen from 54:04 to hear Hannah, a parent of a child with CF, Amber, a student with CF, and our Director of Medical Affairs Dr Keith Brownlee talk about the difficulties many are having sourcing Creon on @bbc5live

➡️ https://t.co/larSIMmTXN

#cysticfibrosis #cfnews #creon

[Nicola Shaw @NicolaShaw07]

So pleased to present the results of part 2 of the AtOM CF Study at @ECFSConference #ECFS2024 thanks to all the patients who took part from @CFLeeds and @cf_newcastle @NIHRresearch @MedicinesDavid @DrIanKellar @nikki_rou

[UK CFPG @ukcfpg]

Good to see representatives from @ukcfpg at the @cftrust MDT share and learn conference in Leeds today

[Patrick Wilson 💙 @patrickiwilson]

Yes! Excellent @ukcfpg @UKCPAResp @CHS_Pharmacist @BryonyMiller1 @natashahudson_1 @NUHPharmacy

[Clare Horton-Smith @CHS_Pharmacist]

Thanks @cftrust for a great workshop on CF & ageing (and a yummy lunch!)
Coming home with lots of new research ideas💡@NUH_CFUnit @NUHPharmacy @ukcfpg
#RespIsBest

[Patrick Wilson 💙 @patrickiwilson]

We will be commenting @ukcfpg as registered stakeholders, but encourage all group members to read and comment on the guidance

[UK CFPG @ukcfpg]

Happy World Pharmacists Day - especially to all of the wonderful pharmacists dedicated to providing the best possible care to people with CF

(And ideally to making them smile sometimes)

[NHS South East Genomic Medicine Service @SEgenomics]

Christian is a #pharmacist. He can do a #genetic test for children with cystic fibrosis. That test means he can prescribe antibiotics with confidence.

It's another example of how #genomics is changing the way #pharmacists work.

🧬👉https://t.co/mwJpR9nQOi

#WorldPharmacistsDay

[UK CFPG @ukcfpg]

Great to see Rianna flying the flag for pharmacy technicians delivering research on CF

[NUH Pharmacy @NUHPharmacy]

Here is Rhianna and Caroline presenting their work on medicines optimisation in @NUH_Respiratory at @APTUK1

#RespIsBest

[Dr Sophie Dawson @sophie_doph]

NEW publication!📢📢 Delighted that the first empirical study from my doctorate has been published in the Psychology & Health journal today (first 50 online copies free) @HealthPsyStaffs @NUH_CFUnit @DrJenTaylor246 @tandfpsychology #ProfDoc #Healthpsych 👉 https://t.co/Jzfda3yaIw

[Sian Bentley @SianABentley]

CFTR modulators for ‘non-approved’ variants - a compassionate use programme in France…a huge need for a similar programme in the UK @NHSEngland @ukcfpg @cftrust

[Question CF @questionCF]

A refresh of the top 10 research priorities in cystic fibrosis | Thorax https://t.co/uAXK6O4wvP

[Mari Lea-Davies @MariLeaDavies1]

If anyone from the @ukcfpg group is struggling to access the NHS Networks message board on the previous website, please see the link to the new website on @NHSnetworks twitter feed. If you scroll down the page on their new website, it offers a link to the old website.

[AuralApothecary @AuralApothecary]

NEW EPISODE - Cystic Fibrosis

A joyful story this week when we chat to Louise Jenkins - who has cystic fibrosis - about growing up and trying to lead a normal life with this serious and unforgiving condition and the transformative effects of recent innovations in drug therapy.

[UK CFPG @ukcfpg]

Two of our own and best authoring this

[The Pharmaceutical Journal @PJOnline_News]

Cystic fibrosis: management and monitoring of respiratory manifestations #pharmacyCPD

https://t.co/Sk1TlCxrXF

[Dr Sophie Dawson @sophie_doph]

New job alert! Fantastic opportunity to join @NUH_CFUnit as Local @cfhealthhub Behaviour Change Lead in cystic fibrosis @NUH_CFUnit 👉 https://t.co/R6Od1EClr5 Please DM me for more info!😃 @acpcf @divhealthpsych @ukcfpg @bda_cf @NUHTherapies @ResearchNuh @NUH_Respiratory @cftrust

[Patrick Wilson 💙 @patrickiwilson]

Might be of interest @ukcfpg @ecfpg @UKCPAResp

[Patrick Wilson 💙 @patrickiwilson]

Might be of interest @ukcfpg @UKCPAResp

[CFHealthHub @cfhealthhub]

Great to see this poster up at #BTSWinter2022: results of a national #CFHealthHub survey to understand the experiences of adults with #cysticfibrosis of obtaining repeat supplies of nebulised medicines. Well done @APaedPharmacist @sophie_doph @leaping_badger et al! @ukcfpg @acpcf

[Alan Smyth @AlanRSmyth]

Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust