The United Kingdom and Ireland Cystic Fibrosis Pharmacy Group. Pharmacists and Pharmacy Technicians dedicated to the care of all people with cystic fibrosis.
Listen from 54:04 to hear Hannah, a parent of a child with CF, Amber, a student with CF, and our Director of Medical Affairs Dr Keith Brownlee talk about the difficulties many are having sourcing Creon on @bbc5live
➡️ https://t.co/larSIMmTXN
#cysticfibrosis#cfnews#creon
Happy World Pharmacists Day - especially to all of the wonderful pharmacists dedicated to providing the best possible care to people with CF
(And ideally to making them smile sometimes)
Christian is a #pharmacist. He can do a #genetic test for children with cystic fibrosis. That test means he can prescribe antibiotics with confidence.
It's another example of how #genomics is changing the way #pharmacists work.
🧬👉https://t.co/mwJpR9nQOi
#WorldPharmacistsDay
NEW publication!📢📢 Delighted that the first empirical study from my doctorate has been published in the Psychology & Health journal today (first 50 online copies free) @HealthPsyStaffs@NUH_CFUnit@DrJenTaylor246 @tandfpsychology #ProfDoc#Healthpsych 👉 https://t.co/Jzfda3yaIw
CFTR modulators for ‘non-approved’ variants - a compassionate use programme in France…a huge need for a similar programme in the UK @NHSEngland@ukcfpg@cftrust
If anyone from the @ukcfpg group is struggling to access the NHS Networks message board on the previous website, please see the link to the new website on @NHSnetworks twitter feed. If you scroll down the page on their new website, it offers a link to the old website.
NEW EPISODE - Cystic Fibrosis
A joyful story this week when we chat to Louise Jenkins - who has cystic fibrosis - about growing up and trying to lead a normal life with this serious and unforgiving condition and the transformative effects of recent innovations in drug therapy.
Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF@ebChildHealth@CFAware@ThoraxBMJ@cftrust