Funding research in to, and supporting families and children affected by, #DIPG. We CAN, MUST and WILL do better. For our children. Reg. Charity No. 1193368
Yesterday morning at 9am, the bravest person we know, our daughter Eva, finally rested. 12 months and 8 days of fighting - far stronger than anyone I know.
I can’t begin to see how we can ever move forwards. You are always with us, in our hearts and minds, and we love you ❤️ 💔
This week we sent out giftboxes to Rudra, a 3-year old boy diagnosed with DIPG in March this year. This morning, we had a message from his family, which with their permission we can share with you.
"Thank you so much from the bottom of our hearts for all the amazing gifts you sent for Rudra. When he saw all the boxes, his eyes lit up with pure happiness and excitement. Watching him open each and every toy with such joy was a very emotional moment for us as parents. After everything he has been through, seeing that beautiful smile on his face meant the world to us.
Your kindness, love, and generosity brought so much happiness into our home. We will never forget this special moment. Thank you again for making Rudra so happy and giving him memories full of joy 🙏❤️"
When donating to Eva's Foundation, if you ever wonder what our purpose is, then I hope this helps to explain why we do what we do. Eva's wish was to help other children like her, and every single time you donate, all of the money we raise goes towards the families we support.
Memories are everything, and you help us to create them.
So, from us to you, THANK YOU. Thank you for supporting us, thank you for helping to create Eva's legacy, and thank you for ensuring Rudra and his family, like so many others we support, have the opportunity to make precious and lasting memories in such difficult times.
5 years of total and absolute heartbreak and devastation.
Eva – we miss you every second of every day, more than can ever be put into words.
As the world carries on, as your brothers and sister grow, as your friends become young adults, we are stuck, knowing you are forever our 10 year old princess.
They say time is a healer, but all it does is bring different heartbreak – others reach milestones that you never can, and there is no healing in that, even the fun memories are consumed by hatred for what took you from us.
I hope that somehow you know how loved you are and how missed you are, and I hope that you know you exist in our hearts forever.
I love you, we love you.
xxx
💜 🎗️
Last week, this incredible group of people raised £7,500 for The Unbeatable Eva Foundation as they took part in their Christmas Jumper day for 2025.
I was contacted by the guys at @Portman_Group after the NACFB Commercial Lender awards. They wanted to support our work as a charity by raising money to help us to fund the gifts we send out to children with DIPG.
Never in a million years did I expect them to raise such an incredible amount of money.
In the past few weeks we have sent out gifts to so many children and families, so to know that amazing businesses and people like this are out there to help this cause is something we feel so grateful for.
So thank you again to everyone at Portman Finance Group and to those who made this happen.
💜🎗️
https://t.co/CHgOwRY1xh
Yesterday, we sent out 9 boxes of gifts to a young girl and her younger sister. This little girl was diagnosed with DIPG in September - she is only 5 years old.
The reality of DIPG is that this is almost certainly going to be this families last Christmas where they are complete. A hole will always exist, and I can tell you from experience that it’s a hole that can never be filled.
Being able to contribute to them making memories together means so much to us as a family, and is everything that Eva wanted us to do, BUT, it is also heartbreaking knowing that we only get to do this because of the devastation DIPG causes.
Thank you to everyone who donates to The Unbeatable Eva Foundation, and to everyone who follows us and shares what we do. Without your support, this kind of thing doesn’t happen.
Last Thursday evening, I was invited to attend the @NACFB Commercial Lender Awards, and to address the near 900 people in attendance, and tell them all about my daughter Eva, and her legacy - The Unbeatable Eva Foundation.
For those who aren't aware, Eva was diagnosed with a brain tumour in 2020 called DIPG (Diffuse Intrinsic Pontine Glioma). This type of tumour is the most deadly form which affects children, and Eva inspired us each day as she took her journey with DIPG, until she passed away on 8th January 2021. Eva had 12 months and 8 days after her diagnosis, but the average survival time is less than 10 months.
DIPG is terminal. Period. There is no cure, no effective treatment, no possibility of an operation - it's a death sentence upon diagnosis, and the phrase parents hear that day is to "go home and make memories".
Eva didn't know DIPG would ultimately steal away her future - at 9 years old, it isn't something you tell a child. Instead, when she "got better", her goal was to support other children with the same 'spot in the brain' as she had. She wanted to send gifts, treat them to special trips away, and help them to make prescious and lasting memories with their families.
On Thursday night, with the support of the NACFB, their fantastic events team, and a room full of incredibly generous people across an amazing industry, we raised almost £9,000, taking the total raised since the beginning of this partnership in April to almost £20,000.
I cannot thank enough every single person who contributed, and who continues to support what we are doing, and for those who have been in touch since to support further, thank you so much - if any companies are looking to engage with charities for CSR and to give back, please do drop me a message.
Can I ask everyone who follows us to please do us a simple favour. Please click the link below, enter your details (no need to sign up to any marketing etc...), and submit.
Through December, Benefact Group are giving away £120,000 to charities, and all you need to do is nominate for The Unbeatable Eva Foundation to be in with a chance of winning £1,000.
It takes less than 60 seconds, costs nothing, and helps us to continue supporting children with DIPG.
Even better, once you have done it, please 'like' this post, and comment on it, so that it keeps visible and X’s algorithm does it's thing.
💜
https://t.co/nkopxZDULz
Earlier this week we received some words from the mother of a young girl to whom we recently sent gifts. With her permission we are sharing what she sent to us, as it really does help to show the importance of what we try to do for families.
From Emis:
I’m so sorry for the delay in sending this thank you – life has been so busy, as I’m sure you can imagine. But we didn’t want to go another day without letting you know just how much your parcel meant to Diana and to us.
The box was beyond generous and so full of love. Diana was absolutely over the moon opening it – she said it felt like her birthday all over again. Her absolute favourite was the iPad, which had been on her wishlist for such a long time. To finally have one of her own made her so unbelievably happy, and we’ll never forget the joy on her face in that moment. We didn’t see her that happy in such a long time and it melted our hearts.
What touched us even more was that you thought of my two other children too. That kindness meant the world – it made them feel so special and included. My eldest especially loves her hoodie and wears it with pride, which really shows how deeply your thoughtfulness reached all of us.
What you do for children like Diana is such a beautiful thing, and it shows the depth of kindness and love in your hearts. I know your precious Eva would be so proud of you both – you are such wonderful parents, turning your own heartbreak into something that brings light and joy to others. So proud of you guys and keep up the hard work!
From the bottom of our hearts, thank you so much. We are forever grateful for the happiness you’ve given Diana and our whole family in the middle of such a hard time, after such a long time you put a big smile on our faces. We can’t thank you guys enough 💛
The reason we support children and their families in the way we do is not for their gratitude, but it is to do something meaningful in Eva’s memory. Eva wanted to provide gifts to other children like her, and so it is her legacy and her wish that we fulfil. This feedback really knocked us for six, because it shows that memories are so important to families, and even something quite small in the grand scheme of their journeys, can make such a huge difference.
So, thank you to everyone who supports us – this feedback is just as much for you as it is us, as you allow us to do what we do.
💜🎗️
15 today, but forever 10 💔
It doesn’t get easier.
Time isn’t a healer.
We walk past Smiggle and say ‘Eva would love to be in there’ but the reality is we don’t know what you would love now.
We still think your favourite colour is purple. 💜
We still think you love unicorns and butterflies and bunny rabbits.
What would you want to do for your birthday?
We are going out for tea tonight – Pizza Express – would you still like that?
Mummy has made you a cake.
I don’t talk about you enough. I can’t. But that’s not fair because I should. Sorry.
We miss you so much – more than I can put into words.
Happy Birthday to our princess.
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⭐️ Ok so there are only 24 hours left for this. If you nominate us, you give us the best chance possible of winning £5,000 as a donation from benefactgroup who, as part of their Movement For Good campaign, donate all available profits to charity.
⏰ It takes about 30 seconds.
🛜 Follow the link below.
💰 It costs you absolutely nothing.
✅ Please nominate and spread the message so that everyone you know does so too!
https://t.co/qCEo7mpEzO
Come on guys - this takes less than 60 seconds and gives us the best chance of winning a £5,000 donation from @benefactgroup’s #MovementForGood campaign.
It costs nothing for you to nominate us and every penny raised goes to children with DIPG.
Follow the link and complete the form 💜
https://t.co/dWHa50MKd9
Please spare 60 seconds to support us. Link below - nominating The Unbeatable Eva Foundation means we could win a donation of £5,000.
Any questions, please reach out, but just follow out the form by searching for us, either by name, or using our charity registration number which is 1193368
Please nominate, share, send it to your friends and family, work colleagues, anyone who will listen 🙏
💜🎗️
https://t.co/dWHa50MKd9
Please spare 60 seconds to support us. Link below - nominating The Unbeatable Eva Foundation means we could win a donation of £5,000.
Any questions, please reach out, but just follow out the form by searching for us, either by name, or using our charity registration number which is 1193368
Please nominate, share, send it to your friends and family, work colleagues, anyone who will listen 🙏
💜🎗️
https://t.co/dWHa50MKd9