Alyssa Zeldenrust

Chicago artist, Crohn's disease and ostomy advocate

[Neilanjan Nandi, MD, FACG, AGAF, FCCF, FACP @FITWITMD]

You know I Love a Girl with GUTS ! So good seeing this amazing group here @DDWMeeting !

[Megan Alloway @alloway_megan]

Some of our Young Ostomy Alliance team raising awareness!
💙
#ColorectalCancerAwareness #ColorectalCancerAwarenessMonth #youngostomyalliance #ostomy
@UOAA @CCAlliance @FightCRC @CancerInsider @WOCNSociety @Siilostomy @HollisterInc @TrioOstomyCare

[Alyssa Zeldenrust @UnstuffedAlyssa]

This organization is amazing!

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

A very impactful year for us at @southasianIBD @ibdesis 🎉🙏🏽♥️

[Jeanine Gleba @UOAA_Advocate]

Ostomy voices were heard on the Hill with the DDNC Digestive Disease on 3/3 in Washington, DC. We discussed the importance of passing the #SafeStepAct and non-medical switching of #ostomy supplies and the need for Medicare coverage of fistula supplies @WOCNSociety @WOCNCB @UOAA

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

✈️ to Switzerland🇨🇭to rep @southasianIBD & design patient-centric research. #Clinicaltrials still have a way to go to mitigate challenges to 🌍 patients 🙏🏽

Truth is we can’t be for patients w/o patients. If you haven’t worked patients into protocol design, time to start today 🤝🏽

[Madhura Balasubramaniam @rebelliousgut]

So delighted - let's go team @southasianIBD / @ibdesis 💥💥💥

Can't wait to keep this going in 2025 & beyond!!

[Megan Alloway @alloway_megan]

Our next Young Ostomy Alliance- IG Live ⬇️ #ostomy #ostomyawareness #ostomylife #chronicillness #ibdawareness #youngostomyalliance @HollisterInc @Coloplast_US @Convatec @UOAA @TrioOstomyCare @stomagienics @WOCNSociety @Siilostomy @ostomydiaries

[Alyssa Zeldenrust @UnstuffedAlyssa]

I’m part of an amazing group for young ostomates and we’re having another IG Live this Saturday! I’ll be talking about self confidence with two friends. #ostomy

[Girls With Guts @IBDgirls]

Research is showing that diet can be both a risk factor & a therapeutic option for individuals living with IBD.

@NTforIBD breaks down these diets, offers recipes, and more. Discussing dietary options with one’s medical team is a good start.

#IBDAwarenessWeek

[Megan Alloway @alloway_megan]

Young Ostomy Alliance’s next IG live event ⬇️ Going outdoors with Mark & Alyssa!
#youngostomyalliance #ostomy #ostomyawareness
@Coloplast_US @Convatec @HollisterInc @WOCNSociety @UOAA @stomagienics @TrioOstomyCare @Siilostomy @Coloplast_CA @ColostomyUK

[Alyssa Zeldenrust @UnstuffedAlyssa]

@ibdnaik @MondayNightIBD Hahaha definitely looking forward to seeing you tomorrow!

[Alyssa Zeldenrust @UnstuffedAlyssa]

I use paint by numbers as a way to reduce stress. I’ve got too many medical appointments and it’s a great way to unwind. Usually I do landscapes haha 😂 But I was feeling spooky.

[Tina Aswani-Omprakash, MPH @ownyourcrohns]

Thrilled to have been featured in @TIME alongside powerhouse #IBD advocates @GutlessGlamour @kimberlymhooks @nataliesparacio @Robertfrank615 🥳

Read here: https://t.co/nTrjHnvUTA

Here’s to continuing to shatter the #stigma across the #crohns & #ulcerativecolitis community 💥

[Alyssa Zeldenrust @UnstuffedAlyssa]

@brklynbouncer Thank you so much! 💖

[Alyssa Zeldenrust @UnstuffedAlyssa]

Asking for a friend- what’s ostomy reversal surgery like?

He’d really like to someone about it.

[Alyssa Zeldenrust @UnstuffedAlyssa]

@southasianIBD @NMH_SHanauerMD @IBDConference @MRegueiroMD @MLongMD @FITWITMD @DCharabaty @sabpeds @IBDimmunology @ownyourcrohns @dunleavy_katie @GI_PharmD Doctors also fail patients through neglect and complete reliance on inadequate teams. And a doc using Twitter as a diagnostic tool speaks to the complex issues IBD patients have to face in their care.

[Alyssa Zeldenrust @UnstuffedAlyssa]

To my Jewish friends: you are not alone.

If anyone wants this design, I’ll email you with a high res image file free of charge.

#hamsa

[Alyssa Zeldenrust @UnstuffedAlyssa]

@southasianIBD @CCO_Education @FITWITMD @sabpeds @P_DeepakIBDMD @ibdseb @drsumitbhatia @drvishal82 @ibdtweets @DrSamirAShah1 @jalpa_devi @IBDimmunology Will do! My GI is Indian but maybe he’ll share around. He’ll probably just be happy to get an email about me that doesn’t involve an urgent crisis or mental breakdown hahaha 🤣

[SAIA @saia_gi]

SAIA recognises that cultural competence is key in delivering high-quality healthcare for #SouthAsianIBD patients🙏🏾
In collaboration w/ @cco_education we have created an impt resource for HCPs to integrate cultural awareness in their practice🙌🏾
Visit: https://t.co/8w3rkrteDh