V-PPRN

VPPRN is transforming how clinical research in vasculitis is conducted by directly engaging patients, investigators, care providers, and healthcare systems

[V-PPRN @vpprn]

We're sending virtual hugs and our deepest gratitude to all of our doctors today on #NationalDoctorsDay! Their dedication, sacrifice, and selflessness are felt more than ever. @VasculitisFound

[V-PPRN @vpprn]

Today it is more important than ever to recognize our doctors on #NationalDoctorsDay. If you know a medical professional who deserves recognition for making an early diagnosis of #vasculitis, nominate them for the @VasculitisFound 2020 V-RED award!
https://t.co/GluELsNs96

[V-PPRN @vpprn]

@VasculitisFound and @VPPRN received a tremendous number of questions from our community #vasculitis. We compiled the questions and asked our #VasculitisExperts for answers. https://t.co/3r2YTQi0nT
#HighRiskCOVID19

[V-PPRN @vpprn]

@VasculitisFound

[EULAR @eular_org]

EULAR Guidance for patients with rheumatic musculoskeletal diseases (RMDs) about COVID-19 outbreak. Protect yourself & others.
Read the full guidance:
https://t.co/nFp9Brmv3T

#EULAR #FightingRMDsTogether #eularPARE

[V-PPRN @vpprn]

During this time of #socialdistancing, we must not forget the power of connection and community! Weathering the storm together @vasculitisfound #HighRiskCovid19

[Health_eHeart Study @Health_eHeart]

Encouraging health food habits in school children now can potentially result in health benefits now and later in life. #freshfood #schoolfood #hearthealth

https://t.co/BEziDCIyVB

[V-PPRN @vpprn]

Do you use an app to help manage your #vasculitis? If so, what apps do you recommend and what features do you like best about them?https://t.co/oQ3RQFzL5m

[V-PPRN @vpprn]

#KnowVasculitis through the eyes these brave, hopeful young adults with #vasculitis
https://t.co/slHJemhFR5

[V-PPRN @vpprn]

More #Knowvasculitis shares from our Facebook community @VasculitisFound:

"When u have to hide in bed coz u can’t tolerate the noise of my babies playing 😭😭😭😭 — feeling defeated. #behcetsdisease #Knowvasculitis"

[V-PPRN @vpprn]

"My HSP vasculitis is so disfiguring causing scars all over my legs...AND that is why I don't wear shorts or skirts, even in hot weather." #KnowVasculitis

[V-PPRN @vpprn]

Some comments from the #vasculitis community on Facebook:
"I can barely walk because my legs and feet are so swollen. I haven't found a medication yet that has reduced the swelling. #KnowVasculitis"

[V-PPRN @vpprn]

What is ONE thing you wish people knew about vasculitis? Join the conversation today! #Knowvasculitis #vasculitis2018 @VasculitisFound

[V-PPRN @vpprn]

Join the conversation and spread awareness during our 24-hour twitter event on Tuesday, May 22 with @vpprn and @VasculitisFound ! #KnowVasculitis #vasculitis #makingtheinvisiblevisible #vasculitis2018

[V-PPRN @vpprn]

Congratulations! Your participation in research with the VPPRN results in a new patient-reported outcome (PRO) questionnaire for ANCA-associated vasculitis (AAV) that is a reliable and feasible tool able to distinguish between different disease states. https://t.co/LlYNa9b96j

[Vasculitis Foundation @VasculitisFound]

Let your voice spread awareness about the impact of vasculitis!

Visit the new Vasculitis Awareness Month 2018 web page: https://t.co/GwgImz3i4A

[V-PPRN @vpprn]

There is still time to participate in the Journey to Diagnosis study!
We need more patients living with ALL forms of vasculitis to participate! https://t.co/O4S3JqAivb #vasculitis2018 #vasculitisresearch

[V-PPRN @vpprn]

Early detection is so important for long term health and success of treatments. Be sure to watch the "Connect the Dots" video and share with family, friends, and health care providers! Vasculitis Awareness Month #vasculitis2018 https://t.co/0DdDC9RLau

[V-PPRN @vpprn]

Vasculitis Awareness Month #vasculitis2018 is here! The race to raise awareness is on throughout the month of May. Visit the Vasculitis Foundation website for your #vasculitis2018 toolkit: https://t.co/cMOBVqAK9O

[V-PPRN @vpprn]

May is Vasculitis Awareness Month #vasculitis2018. The Cleveland Clinic shares 7 things you should know about vasculitis: https://t.co/pTLREgQ0RF