David Taylor

ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him

[David Taylor @VPResearch_ALS]

@BobbyCray3 @iamalsorg @ChrisCoons Dear Bobby, please send me a DM and I'll see if there are any connections I can make in Saskatchewan.

[David Taylor @VPResearch_ALS]

@EUpALS @EvyReviers Thoughts with you and your family Evy. I’m so sorry to hear this. ❤️

[Dr Ahmad Al-Khleifat @AhmadAlKhleifat]

Help shape MND/ALS research! 🧠 LifeArc’s new survey focuses on tech to improve daily life with MND. Last time, @lifearc1 received 200 responses—thank you! 🙏

📢 If you have MND/ALS, care for someone, or are at risk, your input is crucial. @lifearc1

[David Taylor @VPResearch_ALS]

@bsw5020 Call it out. This has been done with NME. Is there any group who has created more division through misinformation?

[ALS/MND Alliance @ALSMNDAlliance]

🪣 The Ice Bucket Challenge was a giant leap forward for understanding ALS/MND. To mark the 10th anniversary of the challenge, we've created a special video. Thank you to @biogen for supporting this video.🙏 https://t.co/d23LkWPjZ7

#EveryAugustUntilCure #ALSMNDWithoutBorders

[ALS Canada @ALSCanada]

Celebrate the 10th anniversary of the #ALSIceBucketChallenge and take the plunge with ALS Canada! 🧊🎉
Ten years ago today, Aug. 6, to Dec. 31, 2014, over 260k Canadians took part in the Ice Bucket Challenge, raising awareness and $17.2 million for #ALS. Take on the challenge again and tag ALS Canada - or donate today and invest in Canadian ALS research and support Canadians living with ALS: https://t.co/aX18MyRhjq.

[David Taylor @VPResearch_ALS]

@als_now @Humbl4now @onein300 @KRob8753 @FierceBiotech @FDA @lisamurkowski @RepSchakowsky @ShereeWLWT @WSJopinion @statnews @biospace @NINDSdirector @BrainstormCell @HouseDemocrats @HouseGOP @SenateDems @SenateGOP Participating in another trial usually indicates someone believes it could have some value but still lacks convincing evidence of efficacy.

[David Taylor @VPResearch_ALS]

@Humbl4now @als_now @onein300 @KRob8753 @FierceBiotech @FDA @lisamurkowski @RepSchakowsky @ShereeWLWT @WSJopinion @statnews @biospace @NINDSdirector @BrainstormCell @HouseDemocrats @HouseGOP @SenateDems @SenateGOP I think if there ever was even a hint of solid, convincing evidence, many would accept that. But without a convincing large effect, the system is also not setup for LPs to a large percentage of ALS & why ASOs for "sporadic" ALS will also likely be held to the same requirement.

[David Taylor @VPResearch_ALS]

@Sanghai_MedChem @Jeanc9orf72 https://t.co/yq1YCQ8Lks

[David Taylor @VPResearch_ALS]

https://t.co/Vtd5jJCkkJ

[David Taylor @VPResearch_ALS]

Possibly a hot take but can we now officially stop funding & presenting work on poly-GA, GP, GR toxicity, at least in the absence of anti-sense strand DPRs?

[David Taylor @VPResearch_ALS]

@als_now @LorriCav @alsassociation Those companies are making $ off of ALS so they give back more to charitable purpose. It's on organizations to make sure they don't let it influence how they do their work, including pushing back on those companies & being willing to drop those $ if out of line. I hope most do.

[David Taylor @VPResearch_ALS]

@als_now @LorriCav @alsassociation There are many of us in orgs. that actively push back on an influence or bias towards industry who support activities with $. Most of us don't want that either. Your guesses as to how these things are handled just hinder progress.

[David Taylor @VPResearch_ALS]

This programme is awesome. If you are eligible (not just UK!), please consider it.

[MND Research @mndresearch]

#ScienceCommunication can help you see the impact of your research. 🔬

Join us as a Symposium Communications Ambassador and hone your skills in communicating complex research through:

📱Social media
⌨️ Blogs
📹 Interviews

Apply: https://t.co/CK3uDRL2DA

#alsmndsymp #ecrchat

[David Taylor @VPResearch_ALS]

@als_now @LorriCav @alsassociation Not sure I understand the question. Clene has sponsored some things. BrainStorm has sponsored some things. Honestly most scientists & clinicians who go to conferences couldn't tell you who sponsored what so the likelihood meeting support influences decisions is pretty low.

[David Taylor @VPResearch_ALS]

@alsadvocacy This one is particularly complicated in the use of groundbreaking & pivotal bc they also infused in a person living with ALS. Bottom line, is it worth exploring more? Sure. Have we seen these types of things in G93A mice & n of 1 open label treatment? Yes, many times.

[MND Research @mndresearch]

“It’s easy to go and sit in the lab, and get good at science, but unless you can communicate that science there’s no point having done it.”

#MNDEnCouRageUK aims to give #MND #ALS early career researchers the skills to communicate their research to the people it matters most – people affected by the disease.

Read more: https://t.co/HM1fYbAWmC

[MND Research @mndresearch]

Are you an early career #MND #ALS researcher? Attending #alsmndsymp? Want to develop your science communication skills?

Apply to be a Symposium Communications Ambassador and help us share the latest research from the largest conference dedicated to ALS/MND!

More info: https://t.co/P4vIPNRqqs

[David Taylor @VPResearch_ALS]

@JackHumphrey_ @TargetALS_fdn @SinaiBrain @UCLIoN @UKDRI @RickiePatani @HaselPhilip Awesome Jack!