Valentina Strammiello

Strategy Lead + #HTA @eupatientsforum. I post about #health, #patientengagement, #RWE, #EU. Views are my own.

[EHC_Haemophilia @EHC_Haemophilia]

🦷 On 18 September, Prof @DougallDentist spoke at the European Dental Hygienists Federation (#EDHF) Annual Meeting in Rotterdam on behalf of EHC. Her message to dental hygienists: you can help spot possible undiagnosed #BleedingDisorders & encourage referral to a haematologist.

[Valentina Strammiello @ValeStrammi]

@gerardofortuna Great advertisement for Ryanair

[Valentina Strammiello @ValeStrammi]

@gerardofortuna Are these questions tips for dating or random encounters in the EU bubble?

[Valentina Strammiello @ValeStrammi]

A coordinated action is required to ensure that healthcare delivery doesn't harm. Figures showing its impact are alarming to say the least 🚨. How can we act as patient community?

#EPFCongress2025
@eupatientsforum

[European Patients' Forum @eupatientsforum]

Is healthcare delivery, public health, patient care, and the environment: a solvable equation? 🌍➕🩺

We’re dropping in on Workshop 2 with Anke-Peggy Holtorf, Gabriella Abruzzo, Susanna Palkonen, & Jurate Svarcaite to find out! #EPFCongress2025

[Valentina Strammiello @ValeStrammi]

To address strikes-related disruptions during #EPFCongress2025, we have decided to go live on YouTube https://t.co/HpbEU7kAW9
So, at least people not able to attend in person, can remotely follow some of the conversations.

[Valentina Strammiello @ValeStrammi]

Great opening of plenary 1 at #EPFCongress2025 from our @epfyouthgroup member Erato who reminded us also that young patients are already active advocates and not just tomorrow patient leaders. Their perspective must be heard and included to shape current healthcare systems

[European Patients' Forum @eupatientsforum]

"Young people show us where resilience is", says Erato Markantoni, EPF Youth Group Member, for the first of our “Youth in Focus” presentations ❤️ Young voices are shaping the future of #PatientEngagement 🌟#EPFCongress2025

[Valentina Strammiello @ValeStrammi]

Roughly one hour to go to the kick off of #EPFCongress2025. Despite all odds ( strikes, annoying seasonal flue and Mercury in retrograde) we are there

[European Patients' Forum @eupatientsforum]

A meaningful last-minute update!
@OliverVarhelyi, Commissioner for Health and Animal Welfare at @EU_Commission, will deliver a Keynote at #EPFCongress2025.

He speaks on Day 2, offering insights on Europe’s priorities for stronger and prepared health systems.

#PatientLeadership

[Valentina Strammiello @ValeStrammi]

@hadviger Good luck!

[European Patients' Forum @eupatientsforum]

🎓 STYPA stands for Skills Training for Young Patient Advocates, and it's back in 2025!

🤖 This year, the training will focus on #DigitalHealth and #AI in healthcare.

The deadline for applications is 16 March 2025 ➡️ https://t.co/AGqFGcVgyM

#STYPA2025 #PatientAdvocacy

[Valentina Strammiello @ValeStrammi]

#HTAR #patientinvolvement

[EUCAPA @eucapa4health]

Recently, we spoke with Chantal Belorgey and Charlotte Roffiaen from @Fr_Assos_Sante about the #HTA process in France and the importance to involve patient representatives.

Check out the full conversation ➡️ https://t.co/Dq3VPNPSX0 #CapacityBuilding #PatientInvolvement

[Valentina Strammiello @ValeStrammi]

At #DSL5 event celebrating 5 years of #DataSavesLives we celebrate also the achievements of @imi_h2o project that focuses on patient reported outcomes #PROs, an instrumental tool to channel the patient voice in healthcare decision-making

[Valentina Strammiello @ValeStrammi]

Happy to have @EDiHTA_EU represented at #DataSavesLives event, showing preliminary results from the project on what matters to patients in the evaluation of Digital Health Technologies

#DSL5

[Valentina Strammiello @ValeStrammi]

-0 days to go to the #DataSavesLives event celebrating 5 long years of collaborative work to promote the value of data sharing

#DSL5 #EHDS

[Valentina Strammiello @ValeStrammi]

@NathalieMoll @imi_paradigm @eupatientsforum @IHIEurope Thank you @NathalieMoll

[Valentina Strammiello @ValeStrammi]

Great to hear a mention to @imi_paradigm from Nathalie Moll at the @eupatientsforum high-level policy event, one of the @IHIEurope projects closer to my heart because it was the one planting the seeds for meaningful patient engagement in medicines R&D.

[Valentina Strammiello @ValeStrammi]

What a fantastic panel with MEPs @MetzTilly, @V_Andriukaitis, @Konecna_K, and @BosseStine. With them on board health policy at EU level could be priority number 1. That's my take away so far at the EPF high-level policy event.

#Vote4Patients

[Valentina Strammiello @ValeStrammi]

Nice to hear the memories from @V_Andriukaitis and Katerina Konecná of how the debate about #EUHTA started in 2017 and the ideas of mandatory participation and mandatory uptake of JCA.

[Valentina Strammiello @ValeStrammi]

Great line up of MEPs at @eupatientsforum high-level policy event. Great point from @Stine_Bosse showing her concern about #Health being delisted as a priority.

[Valentina Strammiello @ValeStrammi]

At the @eupatientsforum high-policy event MEP @V_Andriukaitis reminds the audience that #AMR is a global priority. More collaboration and common standards are needed.

#Vote4Patients

[Valentina Strammiello @ValeStrammi]

Great point from @Marko_Korenjak that transparency is key in the management of #CoI

[Valentina Strammiello @ValeStrammi]

Conflict of interest or its perception may represent a barrier to patient involvement. A robust #CoI policy is important to ensure trust building in HTA @mayacmat says in her remarks at the @eupatientsforum high-level policy event.
#Vote4Patients