Thriving thanks to two lifesaving transplants! Patient Advocate for organ donation and PKD. Sharing my grateful journey of bouncing back and giving back.
Monthly transplant labs & med day! Here’s a time-lapse video of me filling my pill containers for the next 2 weeks. Taking our meds is a very important necessity for the success of our transplants. I’ve been doing this for almost 18 years thanks to the gift of life! #donatelife
2024 Amy Silverstein Transplant Advocacy Award recipient @ValenKeefer shares what this recognition meant to her - and the power of patient voices.
Apply for the 2026 award👉 https://t.co/Uw5kGLO9jG
@AlexandreLoupy Whenever I’m with Dr. M or see a pic of us together like this one, I just think there are so many extraordinary miracles on miracles that have made it all possible. 🌈🙌💫
I hope to be able to meet you in person someday soon!💚
@jfriedo@AST_info@ATCMeeting This sure did warm my heart. Thank you very much!! So incredible to reconnect with you! Grateful you were a part of my care team and thankful for your continued support! Hope our paths will cross again soon.
Thrilled to introduce our NEW PODCAST✨UNPACKING THE GIFT OF LIFE✨hosted by yours truly & my friend Cristen who also has PKD & is a transplant recipient.
Podcast sponsored by Otsuka Pharmaceutical Development & Commercialization, Inc. & is not intended to provide medical advice
Honored to be asked by @US_FDA@CTTI_Trials to speak at their mitigating #clinicaltrial disruptions event! A privilege to represent #PKD & #transplant community & share my #researchstudy experience & the importance of safe & accessible studies to not halt advancements in medicine
🖐️Celebrating 5 extra years of living life to the fullest thanks to my liver donor & donor family! I continue to strive to make them proud of their decision to say yes to organ donation by living a life full of passion, positivity, and purpose. Holding my donor family close at ♥️
Combined we’ve been gifted 63 extra years of life thanks to 3 living & 2 deceased donors, who’ve made our beautiful lives possible. We’ve taken our 2nd chances & are living the best quality of life we can. Grateful for our donors, donor families, & special friendships #donatelife
All facets of the #giftoflife & #organdonation shared for the world to see & feel! Holly’s strength & kindness exemplify the beauty that can emerge from sorrow & the hope & life that can blossom from loss. As a #transplantrecipient I feel it all deeply-the loss, gratitude, & hope
1st family selfies! Meet Juniper Elizabeth-a #LynxPointSiamese adopted on June 25th. Our late cat taught me how amazing animals are for our overall well-being. “Grief is just love with no place to go.” Excited we’ve reached the point to open our hearts & home to this little girl.
Honored to speak @ the opening of @OneLambda’s new lab! Grateful to witness this new era in transplant diagnostics. Thanks @thermofisher for including the patient voice because only then can the full scope of barriers to access be understood & diagnostic & medical care improved.
Reunited w/my kidney transplant surgeon, who is also a heart transplant recipient!Transplantation is awe-inspiring.
Alive today because of this amazing man & here we are 20 yrs later (with that same kidney) @ATCMeeting both thriving thanks to the gift of life.
#ATC2023SanDiego
Brunch w/my liver transplant surgeon’s wife! Special way to kick off day 1 @ATCMeeting Surreal to take my meds in front of the wife of the man who helped save my life-Dr. Chapman. Grateful to be alive, @ #ATC2023SanDiego & surrounded by so many people who care about transplant!🙌
With both of my transplant surgeons @ATCMeeting last year. Excited to be here again! So special to be surrounded by many influential individuals in the transplant community. Honored to speak on why patient voices matter in the roadmap of innovation & policy. #ATC2023SanDiego
@UCSFHospitals#Transplant Center is hosting a virtual screening of my docuseries next week, with a live Q&A, & YOU’RE INVITED!
👏
Learn more & register for
part 1: Apr 25, 2023 5pm PT
https://t.co/aaMh45wmyU
•
Register for part 2: Apr 27, 2023 12pm PT
https://t.co/odRwURVjr2
Happy #BlueGreenDay YOU’RE INVITED to a special live virtual screening of my transplant docuseries-Letters of Hope-hosted by @UCSFHospitals Transplant Center! Part 1: Apr 25th 5pm PT
Register: https://t.co/aaMh45wmyU Part 2: Apr 27th 12pm PT Register: https://t.co/odRwURVjr2 💙💚
Happily accepted a 2nd proclamation! 1st @PlacerCA & now Auburn City declares April as #DonateLifeMonth Great to share at their meeting how life-saving & life-changing organ donation is. And fun to see the courthouse lit in blue & green to help raise awareness of organ donation.
Front page news! Partnered w/@PlacerCA courthouse to light up blue&green in April for #DonateLifeMonth Our partnership shows the power of our voice & the beauty that unfolds when communities support one another. Love that this is becoming an annual tradition.
#BlueGreenSpiritWeek
Honored to accept Placer County’s #proclamation declaring April as #DonateLifeMonth Loved sharing my journey as a 2-time #transplantrecipient at their board meeting. Thank you @PlacerCA for helping me educate others about the importance of being an organ donor! 💙💚
#DonateLife
Proud of my mom for opening up & sharing for the 1st time on camera the guilt she’s had her whole life from passing PKD on to me. My parents, husband & I discuss the guilt we’ve felt from the parent, caregiver, & patient perspective in this video series👉 https://t.co/QOMgc4IHUO