Veronica P

[DEBRA UK @CharityDEBRA]

🔬 Research news! 🔬

We are pleased to be extending our partnership with @NHSEngland to analyse and study healthcare data from patients living with all types of epidermolysis bullosa (EB).

Read more 👇
https://t.co/Ch8JKusBo5

[Mrs Sayer @Megan81723753]

Thank you to everyone @Astley_Primary for making my time ACE, I have come away with so many happy memories and made some forever friends. Thank you for all the lovely gifts you have all been so kind. #weareace #wearebears #happymemories #foreverfriends

[DEBRA UK @CharityDEBRA]

"Having a holiday is so important for us, it is good for our family’s well being and making happy family memories." Veronica, Daisy’s mum

Please donate to help EB families make memories at our DEBRA Holiday Homes: https://t.co/KcmxLpnsya

#DEBRAMemoryMakers #EpidermolysisBullosa

[Veronica P @VeronicaAKARoni]

Wordle 279 5/6

🟨⬜⬜🟨⬜
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🟨🟨⬜🟨🟨
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🟩🟩🟩🟩🟩

[Veronica P @VeronicaAKARoni]

@jo_hardaker Happy New Year!

[Veronica P @VeronicaAKARoni]

💜💚

[DEBRA UK @CharityDEBRA]

Today is #NationalSiblingsDay. We’d like to celebrate and thank all the amazing brothers and sisters of those living with EB, who support their siblings and have to adapt to the daily challenges that come with EB. Like Star and Ray.

[Veronica P @VeronicaAKARoni]

@dressedtokill7 Happy Birthday! 🥳

[DEBRA UK @CharityDEBRA]

🎈Fancy winning a 49” LED TV & other great prizes? If you have already designed your own balloon for the DEBRA UK virtual balloon race, then you’re in with a chance. If not, you can customise your own balloon for just £5 helping us to #FightEB
https://t.co/KCN3sGK7Cj

[Veronica P @VeronicaAKARoni]

@doran_caitlin It was good x

[Daisy Pearson @Daisy14Pearson]

We made the snow dog! @Vpearson2020

[DEBRA UK @CharityDEBRA]

Did you miss our Big Christmas Quiz? Why not have some festive fun over the Christmas break and play at home with your household. Thank you to everyone who took part and raised awareness of EB.

Watch and play the Quiz again: https://t.co/p7gkMavghT #DEBRAUKBIGQUIZ @domholland

[Veronica P @VeronicaAKARoni]

Thank you for a fantastic quiz @domholland we enjoyed it. We still tell everyone about our wonderful day we spent with you and your family @TomHolland1996 Thank you for all your support with DEBRA, hopefully one day there will be a cure for eb. #DEBRAUKBIGQUIZ @BrothersTrustUK

[DEBRA UK @CharityDEBRA]

Thank you to everyone who joined us for the #DEBRAUKBIGQUIZ tonight hosted by the brilliant @domholland. It was a fantastic night and we hope you all had fun. If you would like to find out more about DEBRA and to donate you can do so at https://t.co/1uDY1IVjK6. #FightEB

[Veronica P @VeronicaAKARoni]

Thank you Dom, enjoying the quiz, we hope one day there will be a cure for eb 💚💜

[DEBRA UK @CharityDEBRA]

If you're listening to Dom on our Christmas quiz talk so passionately about Oliver, who has a severe form of EB, you can read more here: https://t.co/Z6HbnqIdk4 Or on The Brothers Trust website: https://t.co/TBSveCMuAa

[DEBRA UK @CharityDEBRA]

Today is #WorldKindnessDay. In these challenging times, kindness has an even more vital role to play for us all. Research has highlighted the benefits of kindness, from boosting your mood to lowering stress and living longer.

[DEBRA UK @CharityDEBRA]

Thank you to everyone who joined us in raising awareness of EB for #EBAwarenessWeek 2020. Together we have reached over 1 million people across social media and are starting to build a wider understanding of EB 🎉

[Veronica P @VeronicaAKARoni]

💜💚

[DEBRA UK @CharityDEBRA]

"EB to me is losing my son to the worst condition you have never heard of"

Karen & Simon Talbot lost their son, Dylan to EB at just 3 months old. https://t.co/fycLheh9vy

#EBAwarenessWeek2020 #EBAW2020 #EBawareness #EpidermolysisBullosa #raisingawareness #skincondition

[Veronica P @VeronicaAKARoni]

💚💜

[DEBRA UK @CharityDEBRA]

"EB to me is a son I couldn't hug, screams I can't forget & a daughter growing up without an older brother"

Yesterday we shared Karen's #EBtome - losing her son, Dylan at 3 months old. Today, Dylan's dad, Simon shares his. https://t.co/fycLheh9vy #EBAwarenessWeek2020
Please RT🦋

[DEBRA International @InterDEBRA]

🦋It's the start of #EBAwarenessWeek!🦋For the next week, we'll not only be sharing what #DEBRA groups around the world are doing to raise awareness of EB but posting important facts about #EB that you can share with others!

[Veronica P @VeronicaAKARoni]

Yay!!! A brilliant winner!

[BGT @BGT]

LAUGH, CRY and fall in love with piano playing funnyman @joncourtenay #BGT #BGTFinal

[Veronica P @VeronicaAKARoni]

@chrissi01429147 @GWandShows @TheMontyDon They look fantastic!