VisualSnowAwareness

Visual snow is a condition whereby patients exhibit television-like static in their visual fields.
watch the video to learn more

[VisualSnowAwareness @VisualSnowAware]

Just 5 years ago, I got in contact with reporter @BenitaZahn through twitter. This platform ultimately paved a way to raise awareness through the resulting first ever televised news report about #VisualSnow #RareDiseaseDay https://t.co/wgCIq2OTKE

[VisualSnowAwareness @VisualSnowAware]

Just 5 years ago, I got in contact with reporter @BenitaZahn through twitter. This platform ultimately paved a way to raise awareness through the resulting first ever televised news report about #VisualSnow #RareDiseaseDay https://t.co/wgCIq2OTKE

[VisualSnowAwareness @VisualSnowAware]

Thank you @BenitaZahn

[VisualSnowAwareness @VisualSnowAware]

2013 was the first year #VisualSnow was reported on television #VisualSnowHistory #RareDiseaseDay

[VisualSnowAwareness @VisualSnowAware]

Just 5 years ago, I got in contact with reporter @BenitaZahn through twitter. This platform ultimately paved a way to raise awareness through the resulting first ever televised news report about #VisualSnow #RareDiseaseDay https://t.co/wgCIq2OTKE

[Matthew Robbins, MD @mrobbinsmd]

#Neurology residents: learn about #visualsnow & teach your attendings about people w/ this fascinating but often intractable disorder that’s been seen for years but only recently well characterized. Give our patients hope.
#MedEd @petergoadsby @cschanki @VisualSnowAware

[Mark Weatherall @weatherallmw]

Delighted to see a #VisualSnowConference taking place in SF. I’ve been seeing kids and adults with #visualsnow since 2013 and hoping to publish our data soon. More data = more understanding. More understanding = legitimacy & interest. @petergoadsby @VisualSnowAware @Visualsnow1

[VisualSnowAwareness @VisualSnowAware]

@smi2_Joey @BenitaZahn Following garnered attention, this has led to a cascade of published news articles. One example being the Guardian. #VisualSnow #RareDiseaseDay

​The mysterious eye condition of 'visual snow'​

https://t.co/kivQebzh8z

[Kimberly Ha @pharmaprodigy]

@MarindaRoseLRL I love how visual snow is so rare, there are only 3 tweets on Twitter right now that are even talking about this. Thanks for posting! #rarediseasesday

[LillyRose @LillyRoseLRL]

In honour of #RareDiseaseDay here's a picture of what mine looks like. I have Visual Snow Syndrome, a neuro disease

[VisualSnowAwareness @VisualSnowAware]

Take a moment to learn about Visual Snow. Maybe not so rare but widely unacknowledged in the medical field? #RareDiseaseDay #VisualSnow #Static https://t.co/zUTJ6b2Noz

[Visual Snow Initiative @VisualSnowInit]

What is #VisualSnow and what treatment approaches are available? https://t.co/7RfqqSAq3v #VisualSnow #EyeDiseases #Migraine #EyeFloaters #Blindness #RareDiseases

[Matthew Renze @MatthewRenze]

I'm honored to be speaking at the first-ever #VisualSnow Conference with Dr. Peter Goadsby, Dr. Susan Pelak, and Sierra Domb in San Francisco on May 5.

Everyone is welcome to attend. Please help me spread the word:
https://t.co/iJiuaZMApD

[Brett Winningham @NASCAR_BRETT]

Most will see pitch black.... I see not only black but also static / what looks like microscopic pixels #VisualSnow

[Brett Winningham @NASCAR_BRETT]

Tonight... instead of having the TV on to drown it out... I'm laying in bed staring at the ceiling and watching the static show going on. To connect and come to terms with my newly discovered uniqueness #VS

[The Cut @TheCut]

Imagine if everywhere you looked you saw static, as if the world were an untuned analogue TV. This is "visual snow" https://t.co/FSiqqa345Y

[The Cut @TheCut]

Imagine if everywhere you looked you saw static, as if the world were an untuned analogue TV. This is "visual snow" https://t.co/ZflYv8o9hI

[TheraSpecs @TheraSpecs]

@VisualSnowInfo @JaniceTindle @JanetLMancini However we have had a few customers say TheraSpecs have helped them, esp where light is a trigger/worsens VS or migraine attacks (2 of 2)