Visual Snow UK

Raising awareness for Visual Snow Syndrome in the UK.

[Visual Snow UK @VisualSnow_UK]

For every retweet, Visual Snow UK will donate £1* to a Visual Snow charity.

#VisualSnowSyndrome is in desperate need of funding to continue research into this devastating debilitating condition.

[Visual Snow UK @VisualSnow_UK]

@comroman42 @MonashNeurosci Hi there!

The research preview only spoke about the specific Visual Snow symptom (the dots/static).

You can read the research yourself here: https://t.co/MeSAxanCPl (page 126)

[Visual Snow UK @VisualSnow_UK]

Researchers from Monash University have developed a method for quantifying the appearance of Visual Snow in each patient.

For example: the speed, spacing and size of each static pixel.

This is a necessary step in #VisualSnowSyndrome.

[Visual Snow UK @VisualSnow_UK]

🚨 CLARIFICATION 🚨

This excellent #VisualSnow research is the work of Cassandra Brooks, a PhD student at the University of Melbourne.

Although the study had support from the Monash team, it is substantively the work of Cassie Brookes at Melbourne.

Apologies to those involved!

[Visual Snow UK @VisualSnow_UK]

Researchers from Monash University have developed a method for quantifying the appearance of Visual Snow in each patient.

For example: the speed, spacing and size of each static pixel.

This is a necessary step in #VisualSnowSyndrome.

[Visual Snow UK @VisualSnow_UK]

@MonashNeurosci This quantification method could also give researchers a clue in the driving mechanism behind Visual Snow.

For example: patients with more spread out Visual Snow could have a greater detectable brain difference than those with finer Visual Snow.

[Visual Snow UK @VisualSnow_UK]

@MonashNeurosci Stratifying patients can be important in clinical trials.

Dependent on the trial, researchers want to make sure they're keeping variables as fixed as possible in control groups and patient groups - including the severity of the disease.

[Visual Snow UK @VisualSnow_UK]

@ad1desu Hi there! Latest estimates put between 2% - 5% of the population affected with Visual Snow Syndrome. The "rare" tag comes from a decade ago when we didn't know its wider prevalence and was judged off of clinical settings.

[Visual Snow UK @VisualSnow_UK]

@EyeOnVision However, the treatment trial needs more funding. This is where you can make the difference.

Donate now at https://t.co/G5J69PLTW9 so the treatment trial can conclude and publish results.

This could be the beginning of the end for Visual Snow Syndrome. Make a difference now.

[Visual Snow UK @VisualSnow_UK]

A new promising clinical treatment trial will be starting in Autumn 2022 at the University of Bern.

With the use of transcranial electrical stimulation, the research team intends to modulate the salience network to treat the symptoms of #VisualSnowSyndrome.

[Visual Snow UK @VisualSnow_UK]

@EyeOnVision This treatment trial is led by Prof. Dr. Med. Christoph Schankin and Dr. Antiona Klein, M.D.

Dr. Schankin was one of the doctors who kickstarted the research into Visual Snow Syndrome and he has been researching the condition for over 10 years.

He knows what he is doing.

[Visual Snow UK @VisualSnow_UK]

With a huge thanks to the @EyeOnVision Foundation, research can continue at Monash University.

Their research groups have been pioneers of Visual Snow research for years with the discovery of the ocular-motor signature.

This is a big step forward for #VisualSnowSyndrome.

[Visual Snow UK @VisualSnow_UK]

@snez_r Sorry to hear about your migraine. Whilst traumatic brain injuries can cause Visual Snow, for the majority of Visual Snow sufferers, it has no obvious cause with no detectable brain damage. However, it is typically benign and non-progressive.

[Visual Snow UK @VisualSnow_UK]

@_zarqaa There is no published evidence proving that Neuro-Optometric Vision Rehabilitation is an effective treatment for #VisualSnowSyndrome.

However, the Visual Snow Initiative have said they intend to publish the results in a medical journal soon.

[Visual Snow UK @VisualSnow_UK]

Unfortunately, there is no medically proven treatment for #VisualSnow.

Please be careful to who you give your money to in these tough economic times.

[Visual Snow UK @VisualSnow_UK]

@Ajxtreeme1 @proudincel Hi there, Visual Snow Syndrome is a scientifically recognised medical condition with its own diagnostic code and dozens of research papers verifying its status as a neurological disorder.