WILL Power

Chronicling our journey with Sanfilippo Syndrome, a rare, terminal genetic disorder. Help us spread awareness about this and other rare disorders! #WILLPower

[WILL Power @WILLPowerMPS]

It's Crunch Time for Team WILL Power! - https://t.co/Ffi9b5UqEb

[WILL Power @WILLPowerMPS]

Support Team WILL Power at The Woodlands Marathon! - https://t.co/A5Ad59XsYQ

[WILL Power @WILLPowerMPS]

It's Crunch Time for Team WILL Power! - https://t.co/V2lwz6rN90

[WILL Power @WILLPowerMPS]

Support Team WILL Power at The Woodlands Marathon! - https://t.co/JQLZlCbhvq

[WILL Power @WILLPowerMPS]

Support Team WILL Power at The Woodlands Marathon! - https://t.co/Vfh4exUWQq

[WILL Power @WILLPowerMPS]

It's Crunch Time for Team WILL Power! - https://t.co/0VJAxi2VGi

[WILL Power @WILLPowerMPS]

Run, Cheer & Donate for WILL Power at The Woodlands Marathon! - https://t.co/XaJDp4YwD7

[WILL Power @WILLPowerMPS]

Just posted a photo https://t.co/3feB0v83Lc

[WILL Power @WILLPowerMPS]

Just posted a video https://t.co/tMaTcoGPLy

[WILL Power @WILLPowerMPS]

Just posted a photo https://t.co/5C3etOdGXc

[WILL Power @WILLPowerMPS]

Just posted a photo https://t.co/IwjaES5Qy9

[WILL Power @WILLPowerMPS]

Just posted a photo https://t.co/fIZyFsuGmJ

[WILL Power @WILLPowerMPS]

Support WILL Power in The Woodlands Marathon Charity Challenge! - https://t.co/qgsCOlWV2I

[WILL Power @WILLPowerMPS]

Run, Cheer & Donate for WILL Power at The Woodlands Marathon! - https://t.co/a8lfM4SDmy

[WILL Power @WILLPowerMPS]

This big guy sure is happy for a few more weeks of extended summer vacation, which means more time to sleep in! 😴 💤 💤 💤

#WILLPower
#SunmerMeansSleepingIn
#SleepyBoy
#MakingMemories https://t.co/GRCJJAZCFA

[WILL Power @WILLPowerMPS]

WILL Power - Summer 2020 Update! - https://t.co/2Hpm8FPAse

[WILL Power @WILLPowerMPS]

So, we have some news...

We are humbled and happy to announce that Will has been accepted to UCLA!

Well, specifically, he has been accepted to Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical… https://t.co/mTwZ1Etkdk

[WILL Power @WILLPowerMPS]

Received some soil pods and tomato seeds from our school district, so each kiddo did some planting for their science lesson today!

#WILLPower
#CureSanfilippo
#MakingMemories https://t.co/KFnEZQvhyH

[WILL Power @WILLPowerMPS]

Someone’s pandemic hair was getting a bit too crazy so our boy got one of his patented summer buzzes from Daddy. I’m sure he feels lighter and cooler already!

#WILLPower
#MakingMemories
#CureSanfilippo https://t.co/JgVx8YSSmx

[WILL Power @WILLPowerMPS]

Boat days are the best days!

#WILLPower
#CureSanfilippo
#MakingMemories https://t.co/yhWm9nJkfD