IWMF

Info, support, research grants, and more for lymphoplasmacytic lymphoma/Waldenstrom’s patients, caregivers and specialists.
[email protected] | 941.927.4963

[IWMF @WMIWMF]

🏆 Congratulations to IWMF Board Chair Paul Kitchen, recipient of the Peter Bing Humanitarian Award. This past weekend at IWWM-13, Paul was recognized for his wavering commitment to the WM community - listen to his inspiring speech.

#IWMF #Waldenstrom #WMFamily #IWWM-13

[IWMF @WMIWMF]

We live WM, so we drive discovery.

Drive the Discovery starts today! Through October 5, every gift will be matched up to $3,000 per gift, thanks to $300,000 in matching funds.

Drive Discovery Now - https://t.co/ZvqbBZfLG5

#DriveTheDiscovery #Waldenstrom #WMResearch

[IWMF @WMIWMF]

This World Lymphoma Awareness Day, IWMF honors everyone affected by lymphoma—and celebrates the WM community with the launch of our new podcast, Waldenstrom Unplugged: Words Matter.

🎙️ Listen to the very first episode here: https://t.co/mICyAHMHoD

#IWMF #WaldenstromPodcast

[IWMF @WMIWMF]

🎙️ Coming Soon: An IWMF Podcast!

We’re thrilled to announce the upcoming launch of Waldenstrom Unplugged: Words Matter on September 15—World Lymphoma Awareness Day!

📬 Sign up to receive IWMF news and updates: https://t.co/ySyq5fab3d

#WaldenstromMacroglobulinemia #IWMFPodcast

[IWMF @WMIWMF]

A one-year job with Dr. Steven Treon became a career in WM research for Dr. Zachary Hunter. His work contributed to the discovery of MYD88 and CXCR4 mutations—found in ~95% and ~40% of people with WM, respectively.

Watch: https://t.co/ly6K2qscng

#Waldenstrom #WM #IWMF

[IWMF @WMIWMF]

For the first time ever, patients, caregivers, and WM experts will come together for a Patient Highlights Session—bringing you the most important breakthroughs from the IWWM-13 meeting in Palm Springs in October.

Learn more & sign up: https://t.co/HBTARDlagb

#IWWM-13 #IWMF

[IWMF @WMIWMF]

You've been diagnosed with cancer... but what stage is it? Waldenstrom macroglobulinemia (WM) isn't staged the way many other cancers are.

🎥 Watch More on WM Complications with Dr. Stephen Ansell of @MayoCancerCare https://t.co/iHpt85BxDf

#WaldenstromMacroglobulinemia #IWMF

[IWMF @WMIWMF]

Welcome to your fortnightly digital guide to Waldenstrom macroglobulinemia (WM.)

📰 Get access to the latest issue: https://t.co/czQGcRLoPx

🔗 Join IWMF to receive the WM Digest direct to your inbox: https://t.co/tEhbvZGoRj

#WMNews #WaldenstromMacroglobulinemia #IWMF

[IWMF @WMIWMF]

Now available to the entire Waldenstrom community: a recording of the IWMF North Carolina Support Group's presentation featuring WM specialist Dr. Christopher Dittus, Lymphoma Program Clinical Director @UNCDeptMedicine

Watch the recording: https://t.co/OgEO8usUSg

#IWMF

[IWMF @WMIWMF]

In case you need a little hope today, read more about Anita, a Waldenstrom macroglobulinemia patient who made a new life at age 72!

Read her inspiring update here: https://t.co/b78lK74Aan

@AbbVie

#WaldenstromMacroglobulinemia #WMCommunity #Imbruvica #StoryofHope #IWMF

[IWMF @WMIWMF]

New long-term data from the phase 2b CLOVER WaM trial showed promising results for iopofosine I-131 (CLR 131) in relapsed/refractory Waldenstrom macroglobulinemia.

Read more: https://t.co/mrDzDq1Njc

@CellectarBio

#WaldenstromMacroglobulinemia #IopofosineI131

[IWMF @WMIWMF]

Today is WM World Awareness Day. Join the IWMF for all the latest updates in research, education, and support for those affected by Waldenstrom!

https://t.co/w2FjrMK20W

We are stronger together.

#Waldenstrommacroglobulinemia #strongertogether #IWMF #WMWorldAwarenessDay2026

[IWMF @WMIWMF]

Dr. Anne-Marie Becking and Dr. Josephine Vos reveal the groundbreaking findings from the WM-VOICE Study.

Wednesday, April 15
12:00 – 1:00 PM EDT
Live on Zoom

Don't miss the results and Q&A session.
Register: https://t.co/N9DqgnZH3l

#WMVoiceStudy #IWMF #WMWorldAwareness

[IWMF @WMIWMF]

Can virtual integrative medicine improve cancer outcomes? It did in this clinical study.
The IWMF Integrative Wellness Program offers these same evidence-based approaches for the WM community - virtually. https://t.co/VVgzYnE2Cq

#IntegrativeMedicine #VirtualWellness #IWMF

[IWMF @WMIWMF]

Have questions about Waldenstrom macroglobulinemia? This is your opportunity to hear directly from some of the world’s leading WM experts.

Submit your questions via this link or the QR code: https://t.co/2ErhHFJvLg

#WM #Waldenstrom #IWMF #AsktheDoctors #ConnectinColumbus

[IWMF @WMIWMF]

This year, the European Educational Forum explores how timing shapes every stage of living with WM. Connect with experts and peers on April 24, 2026 in Athens, Greece.

📅 Register here: https://t.co/kMl8lOmU1D

#WM #Waldenstroms #RareDisease #BloodCancer #PatientEducation

[IWMF @WMIWMF]

Exciting news! Dr. Steven Treon has been named the first Robert F. Tannenhauser Chair for Waldenström’s Research. Established through an anonymous gift, this investment will help power the next generation of discoveries. A cure for WM is within reach.

#Waldenstrom #IWMF

[IWMF @WMIWMF]

"Alone, we can do so little; together, we can do so much." – Helen Keller
Community is about connection, shared purpose, and collective strength.

Find all that and more at IWMF’s annual Educational Forum in Columbus, OH from May 1-3.

Register now: https://t.co/ELUF7hPs6n

[IWMF @WMIWMF]

Australia WMozzies leadership gathered to ensure the continued, dedicated support and advocacy for the Australian WM patient community.

Are you a WM patient or caregiver living in Australia?
Connect with WMozzies: https://t.co/BndnuLCcnt

#WaldenstromsMacroglobulinemia

[IWMF @WMIWMF]

What does having a rare disease mean to you or your loved ones?

Show your stripes - add your comment below.

Visit NORD, one of our patient advocacy partners, at https://t.co/NpzV3idQ7U to find out more about living with a rare disease. @RareDiseases