Student run medical research journal that aims to educate the general public on groundbreaking research surrounding rare diseases and their societal impact
It was great to meet so many wonderful people working together to address the needs of the #RareDisease community!
Thank you for the shout out @C4RCanada
We had the pleasure of meeting Oviya, Victoria, and Lina from @WesternRare at the @raredisorders conference earlier this month.
They're a group of @WesternU students educating the public on RD discoveries through podcasts, events, and social media. 🦓
Keep up the great work! 😍
Season 2 Episode 7 of the Rare Diseases podcast is out now! Join us in discussing the creation of the ACMCRN from the president and founder of the organization, Lori Verton! YouTube: https://t.co/GgAUdr6V7d or Spotify: https://t.co/4pdOx78Smw
Season 2 Episode 6 of the Rare Diseases podcast is out now! Join us in discussing the sociocultural aspects of the rare disease community with Dima Kassem, an anthropology PhD candidate from Western University! YouTube: https://t.co/GgAUdr7sWL or Spotify: https://t.co/4pdOx79qc4
Season 2 Episode 5 of the Rare Diseases podcast is out now! Join us in discussing a story of overcoming hardship in rare disease with Sarita Edwards from the E.WE Foundation! YouTube: https://t.co/GgAUdr7sWL or Spotify: https://t.co/4pdOx79qc4
Season 2 Episode 4 of the Rare Diseases podcast is out now! Join us in discussing the impact of student advocacy in rare disease with Magnus Stenlund from CORDSA! YouTube: https://t.co/GgAUdr7sWL or Spotify: https://t.co/4pdOx79qc4
Season 2 Episode 3 of the Rare Diseases podcast is out now! Join us in discussing rare disease patient experiences in the healthcare system with Hyejin Park from Ipsos Canada! YouTube: https://t.co/GgAUdr6V7d or Spotify: search "Rare Diseases Podcast" https://t.co/pfmatbSXH9
The second episode of Season 2 of the Rare Diseases podcast is finally here! Join us in discussing being a rare disease patient advocate with Alice Williams from Toronto, Ontario! YouTube: https://t.co/iUvBtd9MlY or Spotify: search "Rare Diseases Podcast" https://t.co/pfmatbSXH9
The second season of the Rare Diseases Podcast is finally here! Join us in celebrating Rare Disease Day with Daniel Kinchlea, a young rare disease patient from London, Ontario! Listen to the podcast YouTube (https://t.co/YlR6HYN03f) and Spotify (https://t.co/NCq1X8M6WK)
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
Join us for CORD annual Fall Conference in Calgary on November 29-30. Virtual attendance option available.
Draft Agenda Released 👉 https://t.co/0ipFXjcn6H
For More Info & Registration 👉https://t.co/0ersX1jsnw
🚨Petition closes on Aug 31! Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP @ChrisLewisEssex
Link to petition: https://t.co/oec0yHruJi
👏Kudos to @GovCanHealth for investing in rare diseases, but we need this money to flow out as quickly as possible and in the right areas.
Read CORD’s pre-budget submission to learn more 👉 https://t.co/ruvt6kMJRA #Canada4Rare#CdnPoli#CdnHealth
🚨Attn Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP @ChrisLewisEssex
Petition closes on Aug 31!
https://t.co/oec0yHruJi
👏THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 1000 signatures! Let's keep the momentum going!
🇨🇦PLS SIGN HERE 👉 https://t.co/FkL5lAJPiz
CORD, many advocates, rare disease patients and stakeholders have been working to bring Canadian #RareDisease patients and families the support that they deserve. Please consider signing the petition so we can implement a National Strategy for Drugs for Rare Disease in Canada
WOW! THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 500 signatures in just over a week! LET’S DOUBLE
THIS BY NEXT WEEK. PLS SIGN HERE 👉 https://t.co/oec0yHruJi
The RDR conference sign-up closes today at 11:55pm! Attend for exciting guest speakers and a chance to win a CF gift card!
sign up here: https://t.co/W71K8gG8h3
Our Second Annual #RareDisease conference is right around the corner. We have phenomenal speakers and presentations from our student journal. Register using the following link https://t.co/W71K8gG8h3
@raredisorders Buildings across the city of #LdnOnt will also be lit up @7pm including @CityofLdnOnt City Hall & the J.A. Taylor Building! Come out in support of the rare disease community!
Today in honour of #RareDiseaseDay2023, buildings across the city of #LdnOnt will be lit up @7pm including @CityofLdnOnt City Hall & J.A. Taylor Building! Come out in support of the rare disease community!