Rare Disease Review Western

Student run medical research journal that aims to educate the general public on groundbreaking research surrounding rare diseases and their societal impact

[Rare Disease Review Western @WesternRare]

It was great to meet so many wonderful people working together to address the needs of the #RareDisease community!

Thank you for the shout out @C4RCanada

[Care4Rare Canada @C4RCanada]

We had the pleasure of meeting Oviya, Victoria, and Lina from @WesternRare at the @raredisorders conference earlier this month.

They're a group of @WesternU students educating the public on RD discoveries through podcasts, events, and social media. 🦓

Keep up the great work! 😍

[Rare Disease Review Western @WesternRare]

Season 2 Episode 7 of the Rare Diseases podcast is out now! Join us in discussing the creation of the ACMCRN from the president and founder of the organization, Lori Verton! YouTube: https://t.co/GgAUdr6V7d or Spotify: https://t.co/4pdOx78Smw

[Rare Disease Review Western @WesternRare]

Season 2 Episode 6 of the Rare Diseases podcast is out now! Join us in discussing the sociocultural aspects of the rare disease community with Dima Kassem, an anthropology PhD candidate from Western University! YouTube: https://t.co/GgAUdr7sWL or Spotify: https://t.co/4pdOx79qc4

[Rare Disease Review Western @WesternRare]

Season 2 Episode 5 of the Rare Diseases podcast is out now! Join us in discussing a story of overcoming hardship in rare disease with Sarita Edwards from the E.WE Foundation! YouTube: https://t.co/GgAUdr7sWL or Spotify: https://t.co/4pdOx79qc4

[Rare Disease Review Western @WesternRare]

Season 2 Episode 4 of the Rare Diseases podcast is out now! Join us in discussing the impact of student advocacy in rare disease with Magnus Stenlund from CORDSA! YouTube: https://t.co/GgAUdr7sWL or Spotify: https://t.co/4pdOx79qc4

[Rare Disease Review Western @WesternRare]

Season 2 Episode 3 of the Rare Diseases podcast is out now! Join us in discussing rare disease patient experiences in the healthcare system with Hyejin Park from Ipsos Canada! YouTube: https://t.co/GgAUdr6V7d or Spotify: search "Rare Diseases Podcast" https://t.co/pfmatbSXH9

[Rare Disease Review Western @WesternRare]

The second episode of Season 2 of the Rare Diseases podcast is finally here! Join us in discussing being a rare disease patient advocate with Alice Williams from Toronto, Ontario! YouTube: https://t.co/iUvBtd9MlY or Spotify: search "Rare Diseases Podcast" https://t.co/pfmatbSXH9

[Rare Disease Review Western @WesternRare]

The second season of the Rare Diseases Podcast is finally here! Join us in celebrating Rare Disease Day with Daniel Kinchlea, a young rare disease patient from London, Ontario! Listen to the podcast YouTube (https://t.co/YlR6HYN03f) and Spotify (https://t.co/NCq1X8M6WK)

[Rare Disease Day @rarediseaseday]

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

[CORD @raredisorders]

Join us for CORD annual Fall Conference in Calgary on November 29-30. Virtual attendance option available.

Draft Agenda Released 👉 https://t.co/0ipFXjcn6H

For More Info & Registration 👉https://t.co/0ersX1jsnw

[CORD @raredisorders]

🚨Petition closes on Aug 31! Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP @ChrisLewisEssex

Link to petition: https://t.co/oec0yHruJi

[CORD @raredisorders]

👏Kudos to @GovCanHealth for investing in rare diseases, but we need this money to flow out as quickly as possible and in the right areas.

Read CORD’s pre-budget submission to learn more 👉 https://t.co/ruvt6kMJRA #Canada4Rare #CdnPoli #CdnHealth

[CORD @raredisorders]

🚨Attn Canadians w #rarediseases: CORD needs your help to ensure the National Strategy for Drugs for Rare Diseases is successful. Please sign this petition from MP @ChrisLewisEssex

Petition closes on Aug 31!

https://t.co/oec0yHruJi

[CORD @raredisorders]

👏THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 1000 signatures! Let's keep the momentum going!

🇨🇦PLS SIGN HERE 👉 https://t.co/FkL5lAJPiz

[Rare Disease Review Western @WesternRare]

CORD, many advocates, rare disease patients and stakeholders have been working to bring Canadian #RareDisease patients and families the support that they deserve. Please consider signing the petition so we can implement a National Strategy for Drugs for Rare Disease in Canada

[CORD @raredisorders]

WOW! THANK YOU to everyone who has signed the petition to help ensure the National Strategy for Drugs for Rare Diseases is successful. We have reached over 500 signatures in just over a week! LET’S DOUBLE

THIS BY NEXT WEEK. PLS SIGN HERE 👉 https://t.co/oec0yHruJi

[RARE innovators @RAREinnovators]

Big day for rare disease patients across🇨🇦 @GovCanHealth funding will help rare disease patients gain better & faster access to meds👉 repping RAREi @AlexionPharma ’s Kathleen Whelan w @jyduclos @Durhane @raredisorders @McGillu #Canada4Rare #RareDisease

https://t.co/CxqH2K9ufH

[Rare Disease Review Western @WesternRare]

Introducing @DrMatthewGrol as one of our guest speakers at the RDR conference this Saturday!

[Rare Disease Review Western @WesternRare]

The RDR conference sign-up closes today at 11:55pm! Attend for exciting guest speakers and a chance to win a CF gift card!
sign up here: https://t.co/W71K8gG8h3

[Rare Disease Review Western @WesternRare]

Our Second Annual #RareDisease conference is right around the corner. We have phenomenal speakers and presentations from our student journal. Register using the following link https://t.co/W71K8gG8h3

[Rare Disease Review Western @WesternRare]

@raredisorders Buildings across the city of #LdnOnt will also be lit up @7pm including @CityofLdnOnt City Hall & the J.A. Taylor Building! Come out in support of the rare disease community!

[Rare Disease Review Western @WesternRare]

Today in honour of #RareDiseaseDay2023, buildings across the city of #LdnOnt will be lit up @7pm including @CityofLdnOnt City Hall & J.A. Taylor Building! Come out in support of the rare disease community!