White Sutton Syndrome Foundation

The White Sutton Syndrome Foundation™ is a global non-profit. Our mission is to serve, educate and fund research for those effected by White Sutton.

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

On #RareDiseaseDay, we’re closing in on $100K raised—and preparing to begin distributing funds to our researcher. Thank you for pushing this work forward!
https://t.co/HCIDfbmLlM
#RareDiseaseDay #POGZ

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

🚨 Episode 2 of POGZcast is live!

In Episode 2, we sat down with Dr. V. Reid Sutton and Dr. Jansen White — the very researchers whose names define #WhiteSuttonSyndrome!

🎧 Listen wherever you get podcasts or visit
👉 https://t.co/GlKLe07L6e

#POGZ #Autism #Research #WHSUS

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

White Sutton Day is a wrap! $12,774 was raised, and with matching funds applied, the total impact is over $25,000 for #WhiteSuttonSyndrome research. This puts us very close to $100,000 raised for #POGZ research! Thank you to everyone who helped! #grateful https://t.co/HCIDfbmLlM

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Final hours of #WHSUSDay 💙
We’re at $10,118 raised—thank you SO much to everyone who showed up. There’s still time to add to the impact and help push #POGZ research forward. Let’s finish strong.
https://t.co/HCIDfbmLlM #WhiteSuttonSyndrome #Autism

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Update: $6,835 raised = 46% of the match unlocked 🎯
There’s still time to keep it moving—every gift helps claim more matching funds for #WhiteSuttonSyndrome research. Jump in if you’ve been waiting.
https://t.co/HCIDfbmLlM #POGZ #Autism

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Honest #WHSUSDay update: today’s been quiet—and that’s okay. Momentum towards #POGZ research matters more than spikes. If you can’t donate, starting or sharing a fundraiser helps a LOT. One post can change the day. 💙 Find out how to get started at https://t.co/HCIDfbmLlM #Autism

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

#WHSUSDay Midday update: So much generosity! Keep it going - every gift fuels #POGZ research + helps unlock more of the $15K match. Let’s maintain this momentum! https://t.co/HCIDfbmLlM #WhiteSuttonSyndrome #Autism

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

#WHSUSDay is here! 🌟 Today we push research forward on #WhiteSuttonSyndrome. We’ve already hit $71,000, and your gift today unlocks part of a $15,000 donation match, doubling its power. Let’s go! 🧬❤️ https://t.co/HCIDfbmLlM

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

And so #WHSUSDay begins...can't wait to see what the #WhiteSuttonSyndrome community can do today. Don't forget: your donations today will be doubled, up to $15k. Let's make #POGZ research happen! https://t.co/BiNSKGTaeQ

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Tomorrow is White Sutton Day! 🎯 We’re at $71K+ and we have $15K in matching funds from Teddy's Stores and @BFARRFL ready to go — doubling your impact for research into POGZ and real treatments. Let’s do this. 🧬💪 https://t.co/HCIDfbmLlM
#WHSUSDay #WhiteSuttonSyndrome #POGZ

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

🎙️ The POGZcast is live!
From the #WhiteSuttonSyndrome Foundation & created for the White-Sutton syndrome community.

✨ Because individuals with White-Sutton syndrome exist—and their stories matter.

🎧 Listen wherever you get podcasts or visit
👉 https://t.co/GlKLe07L6e

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Huge news! 💚🏈
The @Packers — currently fighting their way through the NFC playoffs — just donated $15k to our 2026 #POGZ research campaign!

Thanks for believing in this and helping get closer to our goal. 💙

👉 https://t.co/HCIDfbmLlM
#POGZStudy #WhiteSuttonSyndrome #GoPackGo

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Because of you, we’re ending 2025 at $47,679 raised for 2026 research. 💙

TY for every fundraiser, share, and donation!

Rest up, enjoy Christmas… then get ready: White Sutton Day (Jan 6) is our next big push.

https://t.co/HCIDfbmLlM
#WhiteSuttonSyndrome #POGZStudy #WHSUSDay

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

Dear #WhiteSuttonSyndrome community,
I don’t even know where to begin except with this: thank you. Our first push to fund #POGZ research officially launched yesterday in a huge way. Head over to our Facebook page to read the full letter from our President: https://t.co/AbpAABrhB2

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

🚨 #GivingTuesday is almost over, but we're not done yet!

Every dollar right now until we hit $5k for the day = DOUBLED for POGZ research!

Let’s finish strong, claim the full match, and push this science forward.
👉 https://t.co/BiNSKGTaeQ

#POGZStudy #WhiteSuttonSyndrome

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

The images you've seen today are individuals with #WhiteSuttonSyndrome who will be directly impacted by advances in #POGZ research. We're making real headway today! Please take a moment out of your #GivingTuesday to donate to help us hit our funding goal! https://t.co/BiNSKGTaeQ

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

We are halfway through #GivingTuesday, and also halfway to claiming the entire $5000 match the #WhiteSuttonSyndrome Foundation has been offered today! Want to know about the research we're trying to fund? Head to https://t.co/6C8nT8Aaaw - you can donate there too! #POGZ

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

This #GivingTuesday, help fuel research into #WhiteSuttonSyndrome! Scientists are building 3D brain organoids and using gene editing to crack how POGZ variants affect development—and how to fix them. Real steps toward real treatments! Donate at https://t.co/BiNSKGTaeQ
#POGZ

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

This #GivingTuesday, please help support critical research into #WhiteSuttonSyndrome. We’re raising funds to help scientists study changes in the #POGZ gene, with the goal of developing targeted therapies that go beyond managing symptoms.

Donate at https://t.co/BiNSKGTaeQ today!

[White Sutton Syndrome Foundation @WhiteSuttonFdn]

#GivingTuesday is tomorrow — and we have a $5,000 match on the line! 💙
Every dollar donated tomorrow = DOUBLED for #POGZ research.
Set up your fundraiser now + get ready to make it count:
👉 https://t.co/FzfmCaZ0kH
#WhiteSuttonSyndrome