Rachael

[Rachael @WingItRach]

I'm grateful to everyone that is sharing Dylan's story and helping us fight for @MHRAgovuk to nominate a UK company to handle Liposorber. Due to Brexit, NHS are unable to get the vital components for Dylan to have the treatment he desperately needs, as there's no deal in place.

[Rachael @WingItRach]

@DrSuzanneH7 Do you offer any sort of advice to parents of children in ESRF? My son has FSGS. It was crazy to hear you talk about it when not many people even know what it is, so thanks for raising awareness.

[Rachael @WingItRach]

Listening to @DrSuzanneH7 and as the parent of a child with FSGS, on dialysis, I am terrified.

[Rachael @WingItRach]

Today I completed training to do dialysis for my child at home thanks to the incredible team on E17. They are incredibly supportive and compassionate people and go above and beyond for children like mine. I'm very grateful! @EMEESYkidney @NUHCharity @nottmhospitals @E17_Renal

[Rachael @WingItRach]

@joerogan As much as I want to see this fight, I really want to watch Joe Rogan watch this fight more.

[Rachael @WingItRach]

@VictoriaPlumUK Hi, I'd be really grateful if you could let me know an email address for yourselves. I've tried to find one on the website but can't. I'm trying to get in touch with your Doncaster depot.

[Rachael @WingItRach]

@darrengrimes Maybe if you had skin on skin at birth you wouldn't be craving so much attention now? Just a thought.

[Rachael @WingItRach]

@KushKryptonite Did yours say 'Black Card Incoming' too? Just a sick joke to get our hopes up 😭

[Evelina London @EvelinaLondon]

Dylan has been having specialist dialysis at Evelina London for 4 years.

His mum, Rachael, says: "We feel very lucky that Dylan is treated at Evelina. We can't thank the teams enough for always going the extra mile to make sure Dylan is as happy as possible while in hospital."

[Rachael @WingItRach]

Dylan's briefly in the new @EvelinaLondon video for their children's cancer centre proposal with his nurse Tinu. The hospital would be an amazing base for this centre as the staff constantly go above and beyond for children oil Dylan.
https://t.co/ouXxS4wTiv

[Rachael @WingItRach]

👏👏👏👏

[Joe Lycett @joelycett]

. @SuellaBraverman ignore the haters babe ❤️❤️❤️ (by haters I mean the royal court of justice)

[Rachael @WingItRach]

Dylan is back at @EvelinaLondon for his usual treatment and rituximab. Really helps to have visits from @EvelinaSchool who always tailor the sessions to things he enjoys. He loved yesterday's story building with Jane Porter and time with a Lego expert! Thank you ❤️

[Rachael @WingItRach]

@bmagowan1 @capitalkidscric @EvelinaLondon @EvelinaSchool We just found out today that Ray has left! We and Dylan will miss the PE sessions that brightened up his day. Such a shame. Wishing Ray lots of luck with whatever he goes on to do.

[Rachael @WingItRach]

@TTRadioOfficial The story really gripped me. I really believe that is why so many parents, like myself, choose to educate outside of school. A rigid curriculum isn't for everyone and children thrive when they are allowed to follow their interests and be individual.
Loved this podcast.

[Rachael @WingItRach]

@TTRadioOfficial Even as a home educator, I'm finding this podcast about early language learning for primary aged children interesting. Just waiting for @wilkes_shake input!

[Rachael @WingItRach]

@mattrife When are you coming to the UK though? 😔

[Rachael @WingItRach]

Evelina Hospital had a visit from @davidwalliams today. Think Dylan's face says it all 😍
Thank you @EvelinaLondon for organising such lovely memories for the children.

[Rachael @WingItRach]

@mattrife Stayed up until 2am (I'm in the UK) to watch this! Can't wait 😊
#mattrife

[Rachael @WingItRach]

@petch_matt If it helps, you've made my daughters day with her Silver Award and she comes home and tells me every time you ask her "Have you got a smile for me today?"
You make a difference.
Have a good weekend!

[Rachael @WingItRach]

Officially three years since Dylan started his treatment with @EvelinaLondon. We'd have never have thought he'd still be making the trip down every week three years on. The dedication of his team of nurses and Dr Ania Koizell has been incredible. We are so grateful for the NHS ❤️

[Rachael @WingItRach]

The Beach Dialysis staff at @EvelinaLondon have once again gone above and beyond. They've decorated Dylan's bay ahead of his birthday in a few days to celebrate. Thank you 🎉🎂🎈❤️