Alondra Fletcher

Living ME/CFS 20 yrs & Long COVID
Sharing what this illness actually feels like
For those who live it—and those learning

[Alondra Fletcher @WomanInAmericaA]

What Helped Me Rebuild My Life With ME/CFS, EBV, and Long COVID — No Cure, Just What Actually Helped https://t.co/qWfq1SO4tw

[Alondra Fletcher @WomanInAmericaA]

The World Kept Moving. Mine Didn't.
The years taught me that not everyone has the strength to remain beside suffering. They also taught me that hope has a remarkable way of finding those who refuse to stop believing in tomorrow.
#MECFS
#LongCovid
#Chronic
https://t.co/N325PDJFdL

[Alondra Fletcher @WomanInAmericaA]

I didn't expect my first Stellate Ganglion Block to change this much in the first 72 hours.

#StellateGanglionBlock #SGB #HornersSyndrome #LongCOVID #MECFS #Dysautonomia #POTS #PTSD #AutonomicNervousSystem #ChronicIllness #InvisibleIllness

https://t.co/dgYxKIzb5j

[Alondra Fletcher @WomanInAmericaA]

I Was Bedridden With Cement Fatigue.

Supplements Weren't Tolerated.

This Is The Step-By-Step Process I Used To Rebuild My Life.
https://t.co/7FyoA2uIAT
#MECFSRecovery #LongCovidRecovery #HealingJourney #RecoveryStory #Dysautonomia #POTSRecovery #ChronicIllness #HopeForRecovery

[Alondra Fletcher @WomanInAmericaA]

You are not responsible for making your growth comfortable for everyone else.
https://t.co/8k1UyUBLbx

#Authenticity #PersonalGrowth #Boundaries #SelfRespect #KnowYourWorth
#mecfs

[Alondra Fletcher @WomanInAmericaA]

Brain Monitoring Is Coming
What happens when technology starts measuring the things we've never been able to see?

https://t.co/NJRUAqfLYD

#MECFS #LongCOVID #Neurotechnology #BrainHealth #ArtificialIntelligence

[Alondra Fletcher @WomanInAmericaA]

Congratulations to Ken Cardwell on his TEDx talk, Identity Comes Before Output. As AI makes identity programmable, Ken asks a question that may define the century: Who is allowed to become you? A conversation about identity, consent, authorship, and accountability.

#tedx

[Alondra Fletcher @WomanInAmericaA]

It all adds up, making our House and cars chemical free resulted in significant improvements for all of us.

#MECFSRecovery #ChemicalSensitivity #LongCovidRecovery #NervousSystemHealing #InvisibleIllness

[Alondra Fletcher @WomanInAmericaA]

#MECFS
#LongCovid
#ChronicIllnessAwareness
#InvisibleIllness
#TheUnmeasuredLoss

[Alondra Fletcher @WomanInAmericaA]

When My Voice Disappeared, literally https://t.co/QX7jXGnQrR

#mecfs #vocalparalysis #longcovid #substack

[Alondra Fletcher @WomanInAmericaA]

Years later, I realized I wasn't defending my opinions.
I was defending my worth.
Sometimes what looks like stubbornness is really self-protection.

https://t.co/gTclGDWyp8

#NervousSystemHealing #SelfWorth #EmotionalGrowth #HealingJourney

[Alondra Fletcher @WomanInAmericaA]

We Didn't Lose Decades Because We Thought Wrong.

https://t.co/OlTxDchiSF

#MECFS
#LongCovid
#MillionsMissing
#ListenToPatients
#FundTheResearch
#wiredmagazine

[Anil van der Zee © @AnilvanderZee]

1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME.

It is one of the only places where the sickest patients can receive specialised care.

We need this everywhere!!

#pwme #myalgicE #millionsmissing #severeME

[Alondra Fletcher @WomanInAmericaA]

Dark Barbie #3 ME/CFS Barbie Champagne Edition Includes: • Deluxe crash bed • Emotional support water bottle • Supplement mountain • Tea pills of mystery • Infrared sauna mat • Acupressure mat • Qigong channel • Normal lab results trophy Battery level sold separately.
#me

[Alondra Fletcher @WomanInAmericaA]

Sometimes the hardest part of ME isn't resting.
It's stopping when you finally feel capable of doing more.

https://t.co/QrPZ24GJli

#MECFS #LongCovid #Pacing #PEM #ChronicIllness

[Harry Spoelstra @HarrySpoelstra]

The COVID generation: the neurodevelopmental consequences of in-utero COVID-19 exposure

😡A USA study that really frightens me!

In-utero COVID-19 exposure associates with early brain alterations and toddler developmental delays, warranting long-term monitoring of these children.

➡️They conducted a prospective longitudinal study with 142 mother-baby dyads(mother-infant pairs): 39 exposed to COVID-19 in utero (2020–2022) vs. 103 pre-pandemic controls (2016–2019).

➡️Neonatal brain imaging used quantitative 3D volumetric MRI (2 weeks corrected age).

➡️Toddler assessments (2 years) included Bayley Scales (BSID-III) for cognition/social-emotion and ITSEA for behaviours.

➡️Exposure linked to reduced neonatal brain volumes in cortical/subcortical gray matter, cerebral white matter, and left hippocampus (all significant after FDR correction).

➡️At age 2, exposed toddlers showed lower cognition and social-emotional scores (BSID-III), plus higher internalizing behaviours (ITSEA).

➡️Reduced cortical gray matter partially explained lower cognition (21.9%); lower cognition mediated increased internalizing behaviours (61.0%).

➡️Conclusion:
1. “Children exposed to the SARS-CoV-2 virus in utero display lower cognitive abilities than children who had not been exposed, mediated in part by the neonatal cortical gray matter volumes.”

2. “Cognitive ability in toddlers also mediated the association between in utero SARS-CoV-2 exposure and their early social-emotional development.”

3. “These findings highlight the need for continued surveillance to best identify and provide early interventions for at-risk children and provide new insights regarding prenatal exposures on early fetal programming."

4. “Further studies into the longitudinal effects of this exposure are currently ongoing.”

So, frightening and making me angry:
In-utero exposure to COVID-19 is associated with reduced neonatal brain volumes and persistent neurodevelopmental delays in cognition and social-emotional functioning by age 2.

‼️Please mothers, get vaccinated and AVOID sarscov2!
https://t.co/OGjwDlTNQG

[Alondra Fletcher @WomanInAmericaA]

Greatest medical scandal of the 21st century

Keep sharing!

https://t.co/tvIXXsa1H6

#MECFS
#MillionsMissing
#LongCOVID
#InvisibleIllness
#HealthJustice

[Alondra Fletcher @WomanInAmericaA]

I don't want pity for people with ME/CFS. I want understanding. I want research. I want treatments. I want a future where patients don't spend years proving they're sick before they can get help. https://t.co/LHGLsn1yW7
#MECFS #LongCOVID #MillionsMissing #PwME #MedicalResearch

[Alondra Fletcher @WomanInAmericaA]

We Paid Into This Too.
Stop Treating Disabled People Like We Never Contributed.

https://t.co/H5Wj7KNSmP

#Hashtags
#DisabilityAwareness #ChronicIllness #InvisibleIllness #DisabledAndProud #SocialSecurity

[Alondra Fletcher @WomanInAmericaA]

https://t.co/HE29x0UgPO

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

I learned today that some clinicians are specifically told by their healthcare organizations NOT to see patients with #POTS. Perhaps it's time to mobilize and organize from a legal standpoint to fight this blatant patient discrimination.

[Alondra Fletcher @WomanInAmericaA]

https://t.co/HtLXumpgBw

[World ME Alliance @WorldMEAlliance]

ME/CFS is a seriously disabling condition impacting at least 67 million people.

Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.

Share your story and the World ME Alliance's Medical Education Hub #EducateME