Xia-Gibbs Society @XGSociety - Twitter Profile

almost 3 years ago

We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Oscar. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Oscar.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/pD6MP5wW5b

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Natalie. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Natalie.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/ZRRlWTW2j9

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Xia-Gibbs Society @XGSociety

almost 3 years ago

What is Sleep Apnea? #XGSFacts #XiaGibbs Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

Our favorite part of Awareness Week is introducing our Xia-Gibbs Syndrome community and helping you get to know us better! Meet Molly. #XiaGibbsAwareness Donate through the link in our bio to support our cause!

XGSociety's tweet photo. Our favorite part of Awareness Week is introducing our Xia-Gibbs Syndrome community and helping you get to know us better! Meet Molly.
#XiaGibbsAwareness
Donate through the link in our bio to support our cause! https://t.co/ZhuAS9S9Yn

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Who to follow

NWRareCoalition

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We support the PNW’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage policy makers.

Xia-Gibbs Society @XGSociety

almost 3 years ago

We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Miranda. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Miranda.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/hIFloNFySn

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Matthew. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Matthew.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/A1LZIXUOZT

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Jaxon. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Jaxon.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/Szim1z6AEb

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Xia-Gibbs Society @XGSociety

almost 3 years ago

Day 6 fundraising update. Getting closer to our goal, keep going everyone! Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. Day 6 fundraising update. Getting closer to our goal, keep going everyone!

Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/VsqfYq3Npu

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Xia-Gibbs Society @XGSociety

almost 3 years ago

Our favorite part of Awareness Week is introducing our Xia-Gibbs Syndrome community and helping you get to know us better! Meet Madelyn. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Maddie. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Maddie.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/1RpG7ZheQf

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Xia-Gibbs Society @XGSociety

almost 3 years ago

What is Hypotonia? #XGSFacts #XiaGibbs Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Madalynn. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Madalynn.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/NKP3fKS2PA

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Xia-Gibbs Society @XGSociety

almost 3 years ago

What research has the XGS Patient Registry enabled so far? https://t.co/yfODZwrkKG Donate at https://t.co/z5wqjIL33y to support our mission! #XiaGibbsAwareness #XiaGibbs

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Xia-Gibbs Society @XGSociety

almost 3 years ago

Our favorite part of Awareness Week is introducing our Xia-Gibbs Syndrome community and helping you get to know us better! Meet Louis. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Leopold. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Killian. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We’re so excited to introduce our Xia-Gibbs Syndrome community and help you get to know us better! Meet Killian.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/LO9oTvIBWZ

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Xia-Gibbs Society @XGSociety

almost 3 years ago

We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Kevin. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

XGSociety's tweet photo. We are so proud of our amazing Xia-Gibbs Syndrome community and we want to help you get to know us better! Meet Kevin.
#XiaGibbsAwareness
Donate at https://t.co/z5wqjIL33y to support our mission! https://t.co/0ySXh0seOg

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Xia-Gibbs Society @XGSociety

almost 3 years ago

What is Global Developmental Delay (GDD)? #XGSFacts #XiaGibbs Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

Our favorite part of Awareness Week is introducing our Xia-Gibbs Syndrome community and helping you get to know us better! Meet Kelepi. #XiaGibbsAwareness Donate at https://t.co/z5wqjIL33y to support our mission!

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Xia-Gibbs Society @XGSociety

almost 3 years ago

Our Patient Registry is so important for ongoing and future research, as Scientific Advisory Board member, Dr Wendy Chung, explains. https://t.co/AbPdhgdaSn Donate at https://t.co/z5wqjIL33y to support our mission! #XiaGibbsAwareness #XiaGibbs

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Xia-Gibbs Society

@XGSociety

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