You Look Okay To Me

You Look Okay To Me is the online platform for pain and chronic illnesses. Founder: @jamprescod #YLOTM #YouLookOkayToMe

[You Look Okay To Me @YouLookOkayToMe]

For me, post flare-up life is basically "sorry for what I said when I was in pain." 😂

[You Look Okay To Me @YouLookOkayToMe]

It was through the kindness of internet 'strangers' that I realised I was worthy of being treated with softness.

[You Look Okay To Me @YouLookOkayToMe]

It feels like it only takes one flare up to throw my whole routine out of order.

I then spend weeks, if not months trying to get back to where I was, only for another flare up to throw me off again.

[UNINVISIBLE POD @uninvisiblepod]

Guess what we're talking about next week? #sicklecell! We've got Chris from @TSSUK_ on to talk about his experiences. (Stay tuned for a future #innovators ep with the producer of this short doc, @kb__rowne, too!) Thank you to @YouLookOkayToMe for this connect <3 <3 <3

[You Look Okay To Me @YouLookOkayToMe]

https://t.co/oEaGCancge

"My First Lupus Flare Sent Me to the Hospital"

Earlier this week I sat down with my friend @shxda_ to talk about her first lupus flare.

[You Look Okay To Me @YouLookOkayToMe]

I seriously underestimate how mentally stressful situations can impact the physical aspects of my chronic illness.

That shit is real.

[You Look Okay To Me @YouLookOkayToMe]

When things eventually start to improve, I hope workplaces, schools, and other services remember the adaptations they were able to make during the lockdown.

Please remember this for the next time a disabled person asks for adaptations. Clearly, it's not impossible.

[You Look Okay To Me @YouLookOkayToMe]

What's it like dating with a chronic illness? I'm creating a video compiling the experiences of chronic illness patients in the dating scene. I'm looking video responses of people spilling the tea (seriously don't hold back).

Email [email protected] for more info!

[You Look Okay To Me @YouLookOkayToMe]

Coronavirus anxiety is REAL, especially you have a chronic illness. Some of my lupus symptoms cross over with the virus so I'm constantly second-guessing myself.

[You Look Okay To Me @YouLookOkayToMe]

Uncertainty is a stressful feeling.

[Grace 🌱 @GraceFVictory]

I said to my therapist a few days ago that “I feel weirdly calm with all this Coronavirus stuff. Everyone’s panicking and I’m not and it’s making me think I should” and he replied “that’s because you were raised in chaos so you feel at home” I FUCKING SCREAMED 😂

[You Look Okay To Me @YouLookOkayToMe]

Coming out of a flare up usually looks like a thousand "sorry for the late response" emails 🥴🙃

[You Look Okay To Me @YouLookOkayToMe]

Having a mild chronic illness can be a trippy experience. On the one hand, I'm incredibly grateful but at the same time I'm still sick.

I'm always in a position of not knowing how serious to take myself.

[You Look Okay To Me @YouLookOkayToMe]

I still have days where it feels like I've cause all of this.

[You Look Okay To Me @YouLookOkayToMe]

I still struggle with the way my body has changed because of my chronic illness.

[You Look Okay To Me @YouLookOkayToMe]

Soooo many people ask me what it's like to date with a chronic illness so I'm planning an fun online video series where people share their experiences Looking for people to share their stories with me. Send an email to [email protected] if you're interested!

[You Look Okay To Me @YouLookOkayToMe]

@KweenPhotos 😭😭😭😭😭😭

[You Look Okay To Me @YouLookOkayToMe]

There are so many days where I don't feel like a "chronic illness warrior" or a "fighter." Sometimes I feel like 💩

This is normal.

This is not something to feel guilty for.

[You Look Okay To Me @YouLookOkayToMe]

Establishing boundaries with a disability is eye-opening. It's taught me that some people are happy to respect them until it becomes inconvenient.

Self-care has meant upholding my boundaries and putting my health first.

[You Look Okay To Me @YouLookOkayToMe]

I hate flare-ups, but part of me feels validated when the symptoms come about. I've been made to feel like a faker for so long that I've stopped believing myself.