youseeus

[youseeus @you_see_us]

We need YOU, #ysuTribe! Please? If you follow our Facebook page (@ysueds), you'll know why... 🙂👇👇 #HEDSUpAbleismEdition

[youseeus @you_see_us]

@edscymru have uploaded our #PatientA directly to their Facebook page. Email us [[email protected]] for a copy for your social media, blog or website - and share reality this #EDShsdAwarenessMonth. #IgnoranceIsNoExcuse #nhsExposé Which #NHS Trust will it be? It could be YOURS📢

[youseeus @you_see_us]

HEDS Up, #ysuTribe! #nhsExposé video now on youtube too - https://t.co/FglJSgG1bs . Together we can prove #IgnoranceIsNoExcuse - and end #InstitutionalAbuse. It's time for #ANewKindOfFight. Which NHS Trust will it be? #nhsEngland🏴󠁧󠁢󠁥󠁮󠁧󠁿 v #nhsWales🏴󠁧󠁢󠁷󠁬󠁳󠁿. It could be YOURS...👀📢💡

[youseeus @you_see_us]

#HEDSup, #YouSeeUs Tribe! BRAND NEW #nhsExposé SOUNDBITE VIDEO GOING UP ON FACEBOOK @ysueds!👀 Hear #PatientA tell the #nhsDirector how it really is. May be distressing to some. #InsitutionalAbuse #WeSeeYou[official] It's time for #ANewKindOfFight.

[youseeus @you_see_us]

From the covert recording we have - when the #NHSdirector THOUGHT he was speaking off the record. It's time for #ANewKindOfFight. @NHSEngland 🏴󠁧󠁢󠁥󠁮󠁧󠁿 v #NHSCymru 🏴󠁧󠁢󠁷󠁬󠁳󠁿(@NHSDirectWales). WHICH TRUST WILL IT BE? https://t.co/TGixn9JBsc

[youseeus @you_see_us]

@SaveSamantha - another warrior against #InstitutionalAbuse. #SamanthaWeSeeYou

[youseeus @you_see_us]

@robyndarcey5 @SaveSamantha_ @NHSEngland @LaraBloomEDS @fiightback Samantha #WeSeeYou. This is yet more #InstitutionalAbuse. #SpoonieSolidarity = #SpooniePower

[AMANDA EDS @EDSAmanda]

@robyndarcey5 @SaveSamantha_ @NHSEngland @LaraBloomEDS @fiightback We all know #hEDS #Hypermobile #EhlersDanlosSyndrome is not rare - it's rarely diagnosed due to lack of awareness and education. I've not heard of @NHSEngland funding any surgery for #EDS #CCI #AAI cases. @actionnoneglect @you_see_us Do you know of any cases funded by NHS?

[youseeus @you_see_us]

This many errors CANNOT be accidental. Did #NHS nursing staff deliberately complete Risk Assessment forms incorrectly to lower their workload? #nhsExposé
#InstitutionalAbuse Will #YouSeeUs? #WeSeeyou [official] #EDShsd2019 #StripeyPower NEW!! https://t.co/fsqKWIaKjo

[youseeus @you_see_us]

New website for #ANewKindOfFight. Our priority for #EDShsd2019. See our Facebook for details @ysueds. together we can prove #IgnoranceIsNoExcuse and end #InstitutionalAbuse. Will #YouSeeUe? #WeSeeYou [official] https://t.co/XPwP4gbAV7

[youseeus @you_see_us]

We asked if you wanted to ask our project creator anything. #ysuLongTermGoal #EDShsd2018 #WeSeeYou💡😃📢 https://t.co/qkJMVHcZ6x

[IFFGD @IFFGD]

The Functional GI & Motility Disorders Research Enhancement Act (#HR1187) receives a cosponsor from the "Keystone State"! We are grateful to @RepBrianFitz (PA-8) for his commitment to all those affected by a chronic digestive disorder. #Pennsylvania #FGIMD

[Melissa VanHouten @melissarvh]

New Endoscopic Approach Provides Benefit for #Gastroparesis

https://t.co/CEugh9xXhl

#CureGP @bundytr5 @IFFGD @gimotility @ANMSociety

[youseeus @you_see_us]

TheTribe is two years-old toady, #ysuTribe - happy birthday to you! #WeSeeYou 💡😍

[youseeus @you_see_us]

https://t.co/Kwb28giL0l is currently closed for cleaning, #ysuTribe.💡⛔️

[youseeus @you_see_us]

@daydreamer_mum Wow. That's not on. Sharing your anger.

[youseeus @you_see_us]

@EDSAmanda @MichelePaduano @TheEDSociety @Ehlers__Danlos Things will change if we come together and keep sharing each other's stories and struggles so we all get more exposure and make a stronger overall message - ENOUGH! It's #InstitutionalAbuse. It IS utter neglect. #StripeySolidarity = #StripeyPower #ANewKindOfFight

[youseeus @you_see_us]

Spanish doctors who treated this young woman state that the NHS hasn't treated her as they would have hoped. #InstitutionalAbuse #EDShsd2018 #ToniaWeSeeYou #CCI

[Michele Paduano @MichelePaduano]

Spanish doctors who treated this young woman state that the NHS hasn't treated her as they would have hoped.
"I think Antonia hasn´t been attended as I hoped it was supposed to be," Natalia Juan Serra @TheEDSociety @Ehlers__Danlos

[youseeus @you_see_us]

We agree. At least they're getting more attention now. We need to come together to ensure we get MORE attention. Too many with #EDShsd and #CCI are suffering - without having to go through this trauma too. Together we can prove #IgnoranceIsNoExcuse and end #InstitutionalAbuse.💡

[AMANDA EDS @EDSAmanda]

@MichelePaduano @TheEDSociety @Ehlers__Danlos @you_see_us THIS IS utter neglect.

[youseeus @you_see_us]

#HEDUp, #ysuTribe - We need people who've had GES for email interviews! We don't sell or share addresses and we don't send spam. Will you help us? Write to [email protected] [SUBJECT: GES I'M IN] and we will send you the interview. #HearMeGP #CureGP #SmashGP #GPWeSeeYou💡📢