Young Dementia Network

The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.

[Young Dementia Network @YoungDemNetwork]

Our short animation explains what the Young Dementia Network is, what it does and how to join, from the perspective of a person living with the condition.

Please feel free to share it with your family, friends, colleagues and networks to help us grow our membership.

[Young Dementia Network @YoungDemNetwork]

We're very sorry to hear what a difficult time you've had over the last eight years. Please do reach out to the Dementia UK Helpline for information, advice and support on 0800 888 6678 or book a virtual clinic appointment online with its dementia specialist Admiral Nurses: https://t.co/o4rl7LjI1d They're here to help.

[Young Dementia Network @YoungDemNetwork]

Today is Young Onset Dementia Awareness Day (YODA), a Dementia Forward initiative which we are very pleased to support.

The awareness day, now in it's fourth year, seeks to raise awareness of young onset #dementia, tackle stigma and champion change.

Find out more about #YODA here:
https://t.co/kuOBGQpOF9

[Young Dementia Network @YoungDemNetwork]

After losing her mother to young onset Alzheimer’s disease, @DementiaUK's Consultant Admiral Nurse for Children and Young People Hannah Gardner turned her grief into purpose, advocating for children and young people whose lives are affected by #dementia.

You can read more on her story in the article below. https://t.co/gvZGIOFFQl

[Young Dementia Network @YoungDemNetwork]

The Care Quality Commission (CQC) is developing new statutory guidance on what good dementia care looks like across health and social care services and wants to spend time listening to people affected by #dementia care and working across the sector.

To take part in the CQC's survey visit: https://t.co/iaxMM5DmFy

Please note the survey closes at 5pm on Friday 30th October 2026.

[Young Dementia Network @YoungDemNetwork]

The Decision-making guide for #GPs, endorsed by the Royal College of GPs, aims to help clinicians recognise the symptoms of #dementia in younger people.

It currently takes twice as long – on average more than four years – for a younger person to receive a diagnosis as it does an older person.

Download yours now: https://t.co/U6VJ23Kw8j

[Young Dementia Network @YoungDemNetwork]

Researchers at the University of West London are planning to run a focus group to understand how different parts of a person’s life and identity shape their experiences of living with young onset #dementia, including any barriers or unfair treatment people may face.

Find out more by reading the study information: https://t.co/h7E3uNIXeT

[Young Dementia Network @YoungDemNetwork]

A very big thank you to everyone who came to see us on our stand at Dementia Forward's Young Onset #Dementia Conference in York on Tuesday, including Dr Jeremy Isaacs, National Clinical Director for Dementia and Older People's Mental Health at NHS England.

Congratulations to @dementiaforward for organising such a fantastic and well-attended event. We met lots of inspiring people and hope to see you again next year!

[Young Dementia Network @YoungDemNetwork]

Researchers from the University of Nottingham are inviting people to share their experiences of living with young onset dementia or supporting someone with the condition.

They plan to use the stories to develop an online tool called LEND (Lived Experience Narratives in Dementia) which will be designed to help and support other people affected by #dementia.

Find out more by reading the study information: https://t.co/0YTHBtbn28

[Young Dementia Network @YoungDemNetwork]

Dementia UK has grown its dementia support for families from the Chinese and South-East Asian communities living in the UK with a brand-new nationwide clinics service, delivering culturally tailored support.

Free virtual or telephone appointments with a dementia specialist Admiral Nurse can be booked up to one month in advance.

Visit the Dementia UK website for more information: https://t.co/XRyZMCOsbz

@DementiaUK

[Young Dementia Network @YoungDemNetwork]

University of Essex group offers ‘lifeline’ to people with young onset dementia https://t.co/mMroLhtE7c

[Young Dementia Network @YoungDemNetwork]

The new ARC England Learning Disability and Dementia: Best Practice Support – Co-Produced Interactive Online Training is now available to book.

The course takes learners through from pre-diagnosis to what best practice in post-diagnostic support looks like, including as #dementia advances.

For more information and booking details visit the ARC website: https://t.co/uGBWJHm9g2

[Young Dementia Network @YoungDemNetwork]

The resources section of the Working With Dementia Network Plus website has been improved to make the content easier to read and navigate and work better on mobile and tablet devices.

You will find a variety of resources relating to #dementia and employment including downloads, videos, recordings and infographics: https://t.co/brmEEd7hci

[Young Dementia Network @YoungDemNetwork]

Peer support groups and services for younger people living with #dementia can be hard to find. @DementiaUK's unique database of groups and services across the UK is a great place to look for support where you live 👇

[Dementia UK @DementiaUK]

This week on @itvcorrie, Ronnie attended a dementia support group as Debbie’s young onset dementia symptoms worsened. 💙

If you’re affected by young onset #dementia, finding a group that feels right can be difficult. Search our UK directory of groups and services: https://t.co/F1xIDOcbJM

(Photo credit: ITV)

[Young Dementia Network @YoungDemNetwork]

Dementia UK's free online Summer School took place in July 2026 for health and social care practitioners, students and allied professionals.

Presentations included 'Frontotemporal dementia' and 'Tackling the stigma in young onset dementia'.

Recordings of these and other presentations from the event can now be found on their YouTube: https://t.co/PdFowY2wxI

@DementiaUK

[Young Dementia Network @YoungDemNetwork]

With live performances from Younger People With Dementia's choirs and community group, Lyrics and Laughter, its Christmas Concert is sure to be a wonderful evening. 🎄

It takes place on Tuesday 15th December 2026 from 6.30-9pm at Sindlesham Court, Mole Road, Wokingham RG41 5EA. ❄️

Find out more and purchase your tickets here: https://t.co/67NyrQZzjv

@YPWD

[Young Dementia Network @YoungDemNetwork]

Chelsea's dad was diagnosed with young onset #dementia on her brother's 16th birthday. Her dad was 49, and she was 26 at the time.

She has created a series of short videos sharing her family's experiences. The first touches on the signs and symptoms that led her dad, a self-employed joiner, to get a dementia diagnosis.

Watch on Dementia UK's YouTube channel here: https://t.co/eviuzrn7TG

[Young Dementia Network @YoungDemNetwork]

This is a fantastic opportunity for children and young people in families affected by #dementia to offer feedback on a new online peer support programme 👇

[UTV Live News @UTVNews]

In the latest edition of the UTV podcast, Going the Extra Mile, @CarolJordanTV sits down with Emily Wilson.

Emily campaigns for faster dignosis and better support services for young-onset dementia after her husband Jim started to develop the condition in his early fifties. @alzheimerssoc

More here: https://t.co/rZ7VItTfPQ

[Young Dementia Network @YoungDemNetwork]

@PaulFurness10 Do come and say hi to us on the Young Dementia Network stand Paul, it would be great to meet you - Kate 😀

[Young Dementia Network @YoungDemNetwork]

The Young Dementia Network is looking forward to attending Dementia Forward's U&ME young onset #dementia conference at York Racecourse on Tuesday 20th October 2026.

The conference will bring people together to listen, learn and explore new ways of working collaboratively for the benefit of people living with young onset dementia and those who support them.

Find out more or book tickets here: https://t.co/eEfbh1tFtA

@dementiaforward

[Young Dementia Network @YoungDemNetwork]

Over a recent 10-week period, disAbility Cornwall & Isles of Scilly delivered a landmark Young Onset Dementia Pilot Programme in Redruth, in partnership with LivDem, for people under 65 who have recently been diagnosed with #dementia.

When the programme ended, attendees were filmed talking about their experiences and what the group meant to them. You can watch the video here: https://t.co/DY8rr9Tcho