Young Dementia Network

The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.

[Young Dementia Network @YoungDemNetwork]

Our short animation explains what the Young Dementia Network is, what it does and how to join, from the perspective of a person living with the condition.

Please feel free to share it with your family, friends, colleagues and networks to help us grow our membership.

[Young Dementia Network @YoungDemNetwork]

This episode of the ‘Defy dementia’ podcast explores how to talk to children and young people about dementia in an age-appropriate, stigma-reducing way. 🎤

Angeleta Cox shares how she talked about her late mother’s diagnosis of young onset Alzheimer's disease to her children.

Listen to the podcast here: https://t.co/nXmzRNIbEl

[Young Dementia Network @YoungDemNetwork]

A researcher at University of the West of England is starting a research project focused on improving support for people after a dementia diagnosis.

They are setting up a group for people living with young onset dementia who are willing to share their thoughts and ideas to help shape and develop a new 'LivDem' course.

Find out more here: https://t.co/RSZFPzDu0R

[Young Dementia Network @YoungDemNetwork]

Julie Hayden’s book, 'Living with young onset dementia,' is an accessible coffee table style book. 📖

Told through a combination of poetry and prose, @julieha15141038's words are brought to life through imagery by digital artist Daisy Vest.

To purchase a copy, please email Julie at [email protected]. ✉️

[Young Dementia Network @YoungDemNetwork]

A Bristol and South Gloucestershire initiative for people living with young onset #dementia has grown from a small walking group set up during the pandemic into a wide-ranging programme of social and activity-based meetups.

For more information, click here: https://t.co/EyzUcJEo0T

[Young Dementia Network @YoungDemNetwork]

It's not too late to get involved with Operation Ouch! 📹

The team is hoping to film a family in which a parent or grandparent is living with dementia and where a child or young person aged 7-15, who has a relationship with them, would feel comfortable sharing their experience on camera.

In particular, they would love to hear from families from ethnic minority backgrounds.

Find out more here: https://t.co/OP1G3lHzMs

(Photo credit: BBC)

[Young Dementia Network @YoungDemNetwork]

Our webinar on Wednesday 17th June 2026 will share emerging evidence from three research projects currently underway by the Working With Dementia Network Plus Research Team exploring #dementia and employment.

Sign-up here: https://t.co/cqpVXKME7F

[Young Dementia Network @YoungDemNetwork]

Dementia UK is looking for a person living with #dementia who has experience or knowledge of its dementia specialist Admiral Nurses who would be willing to join its advisory group.

For more information, click here: https://t.co/1M0BEmmGaN

@DementiaUK

[Young Dementia Network @YoungDemNetwork]

Save the date: Dementia Forward has announced it will be holding its fourth annual U&ME conference titled 'Shaping the future of young onset dementia support' on Tuesday 20th October 2026 at York Racecourse.

More details to follow when available... ⏳

@dementiaforward

[Young Dementia Network @YoungDemNetwork]

UK Health Radio host Pete Hill recently interviewed author and dementia advocate Julie Hayden on his 'The 'D' Word' show.

Julie was a social worker when she was diagnosed with young onset #dementia at the age of 54.

Click on the headphones icon to listen to the interview here: https://t.co/Fh8AcsVSl4

[Young Dementia Network @YoungDemNetwork]

As part of Dementia Action Week, we are sharing the new short film 'Little Rock' from @YPWD.

It tells the story of Lana, a teenager learning to live with her dad’s decline due to young onset dementia. 🎬

Watch the film here: https://t.co/v9StvObApC

[Young Dementia Network @YoungDemNetwork]

A campaign to highlight the caring duties that fall on the families of people diagnosed with young onset #dementia launched in April 2026 on Radio 4's 'Woman's Hour' programme.

The interview starts 15 minutes into the programme, which you can listen to here: https://t.co/z0wsvjs4MB

[Young Dementia Network @YoungDemNetwork]

Today marks the start of Dementia Action Week.

We're sharing Dementia UK's animation explaining 'What is young onset dementia', to raise awareness of the condition and how it affects younger people and their families.

You can watch it in full here: https://t.co/srrDpAsuOj

[Young Dementia Network @YoungDemNetwork]

If you are living with #dementia, the University of Worcester would like to hear your thoughts on personal care in a short online survey.

This will help them ensure a book chapter they are writing around the experiences of people living with dementia with personal care includes the voices of people living with condition. 📄

You can find the survey and more information here: https://t.co/L9jSfxuIiT

[Young Dementia Network @YoungDemNetwork]

A new group has been set up in Essex to address a gap in support for younger people with #dementia. 👥

The Young Minds Dementia Group meets weekly on Thursdays from 2.30-4.30pm at the Stroke and Wellness Centre, 85 Frinton Road, Holland-on-Sea, Essex CO15 5UH.

For more information about the group, click here: https://t.co/iJ3puTsea1

[Young Dementia Network @YoungDemNetwork]

Our ID cards were created in collaboration with our members to make it easier for people affected by young onset #dementia to access support while out in the community. 🪪

There are two designs – one for people living with young onset dementia, and the other for family members and supporters. They are one of our most requested resources.

Get your ID card now: https://t.co/VrKkMcxpJz

[Young Dementia Network @YoungDemNetwork]

Good communication is central to meaningful involvement of people with #dementia in #research. Yet research spaces are not always designed with communication differences in mind.

The 'Let’s talk dementia' guidance was created to help change that.

Find out more here; https://t.co/qHuEAUyKZK

[Young Dementia Network @YoungDemNetwork]

Our webinar on Tuesday 19th May 2026 will explore the experiences of autistic people when accessing #dementia healthcare, highlighting some of the barriers they may encounter and the importance of making services more accessible and inclusive. 💻

Sign-up now: https://t.co/XkAhUENYck

[Young Dementia Network @YoungDemNetwork]

The link in our post re: taking part in a special episode about #dementia of Operation Ouch! isn't working. Please use this link instead:
https://t.co/8DoWmvio1O

[Young Dementia Network @YoungDemNetwork]

The Operation Ouch! Production Team is in the early stages of producing a special half-hour programme about dementia for Children's BBC.

The team is hoping to film a family in which a parent or grandparent is living with dementia and where a child or young person aged 7 to 15, who has a relationship with them, would feel comfortable sharing their experience on camera. 📹

If you or your family might be interested in taking part, email Rebecca King at [email protected] or click the link for more information: 👇

https://t.co/mP4yCE0ikO!

(Photo credit: BBC)

[Young Dementia Network @YoungDemNetwork]

Tommy, who is living with young onset Alzheimer's disease, met carer Andrew in a pub in Liverpool to chat about a subject many men struggle to discuss openly: #dementia.

In the latest episode of Dementia UK's 'My life with dementia' podcast, they talk about navigating the emotional ups and downs of living with dementia and how expectations around masculinity have affected their experiences.

Listen to the full episode now: https://t.co/c2hIZKSMDt

@TommyTommytee18 @Swinno1976