I just took part in an interview with @sophie_doph and she is AMAZING. The questions were easy to answer but things I’d never had addressed before so I HIGHLY recommend getting involved + having your say, CF community 💡💛
27... how did that happen!? A day filled with lots of emotions. I am so lucky to have my life filled with so many beautiful people, including those now only in my heart and mind. I am blessed 🖤 #livelifewithnoregrets
Cant believe we have received over 230 young people's responses to the secondary/6th form returning to school survey https://t.co/PIC3ujne08 survey still open until 2nd Sep please continue to share. Report of findings will be shared via @GenrYPAGs #involveyoungpeople
What is the path to impact for our @lbgvillagechild project when using #ois methods? Today we are co-creating with our village stakeholders and @OIS_Center an impact pathway and indicators of success when working alongside the community in research @imed_tweets #ppie
Dan Perry's approach to getting kids engaged in major trauma trials is proving to be a huge success "involve them from the start — let them own the branding" @MrDanPerry @OfficialNIHR @NIHRCRN
Want to hear more about @aoifedalylaw's brilliant new book, "Children, Autonomy and the Courts:Beyond the Right to be Heard"?
Come to the book launch on the 13th of Dec (details below). We are also welcoming Prof Kathryn Hollingsworth as guest speaker on the day!
Looking forward to a good week presenting about why young people,parents and patients play a vital role in clinical trials @LUPUSUK@raiiseuk@EATC4Children @GenrYPAGs @AHFTResearch
#PCTrials great to be attending PCT2018 in beautiful Barcelona presenting about young people’s involvement in health research (28th, 29th) & discussing the value and impact patients have on the design of trials @GenrYPAGs @eYPAGnet@sammy_ainsworth@BegonyaNafria
A great opportunity for a young person! Share your experiences and how you manage your asthma while empowering your peers. Full training will be given and will be supported by a great team! Please contact us for details to apply!
Please, please sign this. My beautiful mum has been waiting 121 days for treatment since diagnosis, in what feels like a fight to save her life. I’m horrified by the way current care is for people with complex health histories. It’s a living nightmare. #DemandFasterTreatment
Our new campaign – let's #DemandFasterTreatment for #pancreaticcancer. We're asking for treatment in *20 days* from diagnosis. Add your name to the petition-> https://t.co/tMyCIO1kgR ✍️
Our new report shows that your chance of being hospitalised with #asthma - or dying from it - could be determined by where you live.
That's why we're calling on official bodies to tackle health inequality.
Find out more:
https://t.co/q1P2OgqiZ9