Zipper Sisters

Sisterhood of Women with Congenital Heart Defects
We are 1 in 100! #CHD #ACHD awareness. Patient first.
Established 2012

[Zipper Sisters @ZipperSisters]

Dom Vervoort dedicated his life to improving global access to surgical care. His family faces significant costs to bring him home. Please consider donating or sharing to honor his legacy & support the causes he championed. Every contribution helps. #CHD https://t.co/pOK9reHmpP

[Maral Ouzounian @OuzounianMD]

The world has lost a shining light.

@DVervoort94 walked this world with grace, compassion, and a deep passion for health equity.

We are heartbroken to have lost Dom and are grieving with his family and all those around the world who knew him and loved him.

[American College of Cardiology @ACCinTouch]

🏒💛 Hockey has heart! Huge thanks to @PredsNHL & @LukeBryan for helping put congenital heart disease on the scoreboard this #HeartMonth! #CHD affects nearly 1 in 100 babies born each year in the U.S. Learn more: https://t.co/yh78VvynRM

#Preds #MNWild #CHDAwareness #CardioSmart

[Conquering CHD @conqueringchd]

#chdfact #conqueringchd #beyondthediagnosis

[ACHA @ACHA_Heart]

This #BlackHistoryMonth, ACHA honors Vivien Thomas—a pioneer in congenital heart disease treatment. Despite tremendous obstacles, Thomas was instrumental in developing the revolutionary "blue baby operation" with Drs. Alfred Blalock and Helen Taussig in the 1940s, transforming #CHD care. Read ACHA Board Vice Chair William F. Causey's blog post about how Thomas's work impacted his own life-saving surgery in 1952: https://t.co/dvnjxV2a8T

#CHDAwareness #BlackHistory #HeartMonth #CHDCare4Life #ACHD

[cchaforlife @cchaforlife]

🎉 #Moisducoeur est ICI ! 🎉 Rejoignez la communauté CHD - du #CanadaEnRouge de partage de votre histoire, chaque action compte! Rejoignez-nous et agissez! Visitez https://t.co/IiRZenxxpf pour savoir comment participer.
#CardiopathieCongenitale

[ACHA @ACHA_Heart]

It’s #HeartMonth! We are so thankful to our dedicated community for joining us to spread #CHDAwareness every February. Please know we see you out in your communities and online putting the work in to recognize congenital heart disease this month—most notably that lifelong care for #CHD, the most common birth defect in the U.S., is crucial. We are inspired by your voices and stories ❤️ #ACHD #ACHACares #CHDCare4Life

[Somerville Heart Foundation @HeartSomerville]

And we're off....1st February marks the start of our February Footsteps walking challenge!

There's still time to join the challenge at: https://t.co/NWkRBO395z

[Heart Heroes @HeartHeroes]

❤️ It’s Heart Month!
Congenital Heart Disease (CHD) affects 1 in 100 children. It's an abnormality of the heart present at birth. This February, we’re shining the light on CHD to raise awareness, share real stories, & remind families they are never alone. Join us all month long.

[Zipper Sisters @ZipperSisters]

@FredWuMD He's back for a limited time....much better than the McRib though!

[Zipper Sisters @ZipperSisters]

So many topics that have limited discussion and attention regarding adults w #CHD. This is and has been a HUGE concern. How do we advocate for screenings for #ACHD pts? #Cancer

[American College of Cardiology @ACCinTouch]

Malignancy is a major driver of mortality & morbidity in patients w/ #ACHD. The factors influencing cancer risk in this population are complex & likely interconnected.

Explore further insights in this expert analysis on malignancy in ACHD: https://t.co/BvfdTj8eUZ #CardioX

[American College of Cardiology @ACCinTouch]

Neurocognitive deficits are prevalent in young adults w/ moderate & severely complex #ACHD, & it is essential to integrate neurocognitive assessments into routine ACHD care, according to the MINDS-ACHD study published in #JACC.

Read more: https://t.co/Q0aXHXEgiD #CHD

[Somerville Heart Foundation @HeartSomerville]

We are excited to announce we have some new leaflets: 'Exercise and ACHD' and 'Menopause and ACHD'. They are available to download from our website, and ACHD teams are able to request these from us for free.
To download all of our leaflets, go to https://t.co/Hsr5eDvWDb

[Shelagh Ross @shelagh_ross]

Please share ❤️ Registration: https://t.co/C6LCPO5fQA

@cchaforlife @globalarchorg @ZipperSisters @conqueringchd @ACHA_Heart

[Katie Salciccioli, MD @DrKBSalc]

Incredible to meet with patients and the teams supporting them in driving patient involvement in #ACHD research design through @PCORI in TX, LA, and OK - excited to work together moving forward! @linds_alano @JoeyV1in100 @AnuAgarwalMD @valeriaduarteMD @TCH_adultCHD

[Rebecca Garber @RebeccaGarberMD]

As more children with congenital heart disease are growing up, it’s important for us to understand how to manage and treat these children as adults! Learn about Tetralogy of Fallot here!

https://t.co/QIYIyKyFGi

#achd #CriticalCareCardiology #tetralogyoffallot #uicim

[Sukriti Banthiya @sukritibanthiya]

I had so much fun creating this comic on Partial Anomalous Pulmonary Venous Connection! Thank you @ClaireCambron @RawanAAmir @T_GuptaMD @jsaef1 @CardioNerds for continuing to inspire me & share our love for #ACHD! 🫀🤓

[Kelly Rea, PhD @kellyerea]

We want to hear from you, #CHDcommunity!

The Michigan Transition to Adulthood Lived Experience (MiTALE) Study is looking for young adults ages 18 to 30 with #ACHD to share their thoughts in an online study!

[Zipper Sisters @ZipperSisters]

@SenatorDurbin Thank you Senator for being a champion of children and adults with congenital heart defects in memory of your daughter. We appreciate all that you do to help bring research funding (and awareness to the hardships that patients and families have endured over their lifetime).

[Zipper Sisters @ZipperSisters]

@DrTonyPastor FYI: We think you're a total ROCKSTAR! We ❤️ you!