Did you know the treatment of craniofacial conditions is commissioned by highly-specialised services from NHS England and carried out at four Designated supra-regional Craniofacial Units? #CraniosynostosisAwareness
Did you know that children and families in the UK can access support from Headlines Craniofacial Support @HeadlinesCranio, a charity supporting people with #Craniosynostosis and other rare craniofacial conditions.
Surgery to advance the mid portion of the face for patients with syndromic #Craniosynostosis involves maxillofacial surgery & plastic surgery, this is performed to correct breathing difficulties and improve the appearance of the eyes & midface in patients with complex syndromes.
The operations to treat #Craniosynostosis essentially involve removing large pieces of bone, reshaping them by bending and cutting them and turning the top of the skull into a 3 dimensional jigsaw puzzle which is then replaced back on to the head.
Welcome the incredible Craniofacial SLT Emma from Birmingham Craniofacial Unit to the discussion. Do you have any questions for us? We would love to hear from you ❤️
The surgery to treat #Craniosynostosis is typically undertaken in the first few years of life, though occasionally surgery is needed much earlier, even within a few weeks of life. #CraniosynostosisAwareness
In 1995, @OxfordCranio Unit clinical geneticist, Professor Andrew Wilkie and his team discovered the cause of Apert syndrome – two specific mutations within the gene encoding fibroblast growth factor receptor type 2 (FGFR2). #CraniosynostosisAwareness@MRC_WIMM
Looking forward to the Craniofacial Giving Voice twitter take over today! Keep an eye out for a wealth of information about the range of conditions we support and the services we offer children and their families #craniosynostosisawareness@GivingVoiceUK@HeadlinesCranio
Most cases of #Craniosynostosis are not genetic and can be corrected with single operation, but approximately 35% have a genetic form which forms part of a syndrome which can affect the face as well as other parts of the body including hands and feet. #CraniosynostosisAwareness
If the growing lines of the skull become fused then the head shape grows abnormally. In untreated cases the brain come become under pressure leading to severe headaches, fits and seizures, damage to vision and developmental delay. #CraniosynostosisAwareness
Craniosynostosis is a rare congenital condition affecting approximately 1 in 1400-2100 children causing premature or early fusion of the cranial sutures of the growing lines of the skull which normally coordinate the growth between the brain and the skull.